Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,823 members • 5,405 posts

All posts for December 2017

NEW YEAR

Hello everybody, well 2017 is coming to a close, I know, like myself our friend Scleroderma has given us quite a few worrying and frustrating times and...

Hello everybody, well 2017 is coming to a close, I know, like myself our friend ...

fairy56

•6 years ago

10 Replies

Flolan

Hi can anybody help With the Flolan treatment I have just had a five day course at the local hospital as a inpatient The Question i have ' is Does anybody...

Hi can anybody help With the Flolan treatment I have just had a five day cours...

Psg83

•6 years ago

4 Replies

Is this Telangiectasia?

I have noticed quite a few red spots like this; a couple on my chest and quite a few on my tummy. Are these Telangiectasias? My rheumatologist said I had none...

I have noticed quite a few red spots like this; a couple on my chest and quite a...

Rudiguer

•6 years ago

11 Replies

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Breathing

I was diagnosed with scleroderma about 18 mo ths ago. Consultant has rated it as mild with minor change in lungs CT scan. I now get pain in thumbs and ankles....

I was diagnosed with scleroderma about 18 mo ths ago. Consultant has rated it as...

NSV69

•6 years ago

14 Replies

Is this telangiectasia ?

I noticed red dots on my stomach and on my chest but I also have quite a few purple/red lines above my knees that look like spiders. Are these both the red...

I noticed red dots on my stomach and on my chest but I also have quite a few pur...

Rudiguer

•6 years ago

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Perfect timeing for Raynauds

I have only just recently developed Raynauds - what a fantastic time of year ey haha! Any tips ? They hurt so bad :(

I have only just recently developed Raynauds - what a fantastic time of year ey ...

JazPont

•6 years ago

15 Replies

Niacin helps Raynaud's Syndrome

Dear Everyone, Raynaud's is scary and confusing. I have learned the safest way to treat it is with Niacin, 500 mgs., about every four hours during cold...

Dear Everyone, Raynaud's is scary and confusing. I have learned the safest way ...

beaglab

•6 years ago

11 Replies

Time of the month x

Hi my name is Laura I’ve had scleroderma for just over 12 years but need advice from other ladies with it! Can it affect your menstrual cycle? I’ve been...

Hi my name is Laura I’ve had scleroderma for just over 12 years but need advice ...

Laurajcartwright84

•6 years ago

4 Replies

How do you keep your feet warm to mitigate the effects of Raynaud's?

When I'm at home, I've recently started using a hair dryer to quickly restore the circulation to my feet during a Raynaud's attack. I find the concentrated...

When I'm at home, I've recently started using a hair dryer to quickly restore th...

Rollcage

•6 years ago

24 Replies

Mother of 6 yr old with Scleroderma en coup de sabre

Newly diagnosed and a little in the dark! He has started Methotrexate. Does anyone have this diagnosis and suffer from reflux problems also or are the two...

Newly diagnosed and a little in the dark! He has started Methotrexate. Does anyo...

Kharding

•6 years ago

3 Replies

Raynauds tip

I have a great tip for raynauds sufferers. Wear the very thin vinyl gloves under your chosen cold weather gloves. They actually keep your hand so warm. Even if...

I have a great tip for raynauds sufferers. Wear the very thin vinyl gloves under...

kimbalina

•6 years ago

7 Replies

Erythomelalgia

Hi, I would be very grateful for any help you can give me regarding Erythomelalgia. I have all the symptoms from above my knees down to my feet. There are...

Hi, I would be very grateful for any help you can give me regarding Erythomelalg...

Roselda

•6 years ago

5 Replies

Ouch!

In agony with yet another wicklow that I've knocked whilst it and has protruded and is now bleeding. I should be grateful as the paper cut symptoms are at a...

In agony with yet another wicklow that I've knocked whilst it and has protruded ...

gindy

•6 years ago

4 Replies

Blood splinters under nails / heart gallops

Hi guys! Not been on here for a while! I hope your all okay, ready for Christmas and not suffering to much with your Raynauds. I’ve had quite a few strep...

Hi guys! Not been on here for a while! I hope your all okay, ready for Christma...

JazPont

•6 years ago

5 Replies

Would value your thoughts

To give a bit of background, I was diagnosed with discoid lupus many years ago but was offered no treatment and just left to get on with it largely. a couple...

To give a bit of background, I was diagnosed with discoid lupus many years ago b...

Lula76

•6 years ago

4 Replies

Amlodipine for Raynaud's?

I was diagnosed with Raynaud's (cold hands) about 5 years ago, and my doctor put me on Nifedipine ER which has helped significantly. I just got a notice from...

I was diagnosed with Raynaud's (cold hands) about 5 years ago, and my doctor put...

shedridc

•6 years ago

7 Replies

Terrified

Hi I've got raynards disease have to go on azathioprine and have flu jab but I'm terrified of the side effects of the medication also is there any bad side...

Hi I've got raynards disease have to go on azathioprine and have flu jab but I'm...

Hidden

•6 years ago

8 Replies

I can't seem to beat this cellulitis

Hi ,I am 42 and have always been very active,I've never had any medical issues that really effected my life,until now,...I stepped into a hole in the floor on...

Hi ,I am 42 and have always been very active,I've never had any medical issues t...

Michellemarie

•6 years ago

1 Reply

Sausage fingers

Does this look familiar to anyone please?

Queencara78

•6 years ago

23 Replies

Could it be scleroderma

Hi all just wanted to share my recent symptoms and hopefully someone will be able to relate to them. I was diagnosed in 2014 with Raynauds phenomenon, and been...

Hi all just wanted to share my recent symptoms and hopefully someone will be abl...

Queencara78

•6 years ago

5 Replies

Viagra for Raynauds?

Hi everyone. I've suffered with secondary Raynauds for 7 years....shortly after a heart operation and was diagnosed with scleroderma 2 years ago. My...

Hi everyone. I've suffered with secondary Raynauds for 7 years....shortly afte...

Hidden

•6 years ago

9 Replies

Flaky facial skin

Anyone have any remedies to help get rid of flaky skin on the face? I've been told not to exfoliate.

Anyone have any remedies to help get rid of flaky skin on the face? I've been t...

Burlwood

•6 years ago

4 Replies

More paper cuts!!

Does nifidipine prevent cuts? Many thanks.

Rudiguer

•6 years ago

1 Reply

Raynaud's and induction hobs in kitchen

Hi I have primary Raynaud's and will shortly be refurbishing my kitchen. The designer has recommended an induction hob. I have heard that if your fingers are...

Hi I have primary Raynaud's and will shortly be refurbishing my kitchen. The des...

LorraineVarney

•6 years ago

8 Replies

Positive note

I was diagnosed with ltd scl (Crest) 12 years ago. Over the last few years my results began to get worse especially lung function. Went for my annual check up...

I was diagnosed with ltd scl (Crest) 12 years ago. Over the last few years my re...

Noni1

•6 years ago

4 Replies

White fingers in the middle

Why are my fingers white in the middle? They are not even cold. Has anyone experienced this? Than you very much.

Why are my fingers white in the middle? They are not even cold. Has anyone exper...

Rudiguer

•6 years ago

10 Replies

What happens after job loss due to your health?

Hi Everyone, I’ve been quiet recently but could do with your advice once again. I’ve been diagnosed with UCTD and numerous other things for a few years now...

Hi Everyone, I’ve been quiet recently but could do with your advice once again....

Croft1987

•6 years ago

8 Replies

Advice and hope?

I was diagnosed with scleroderma last year but had raynauds before that. I was not to bad to begin with but now have shortness of breath, joint pain and...

I was diagnosed with scleroderma last year but had raynauds before that. I was n...

NSV69

•6 years ago

13 Replies

Feeling sad

Hi I went back to working with children after take 6 months off to let the methotrexate get into my system. I’ve been back 3 weeks and this morning I feel...

Hi I went back to working with children after take 6 months off to let the metho...

Sami13

•6 years ago

13 Replies

Little hand movement

Hi there I am writing on behalf of my sister - she is under the Royal Free and was diagnosised in May with diffuse scleroderma. The biggest problems for her...

Hi there I am writing on behalf of my sister - she is under the Royal Free and w...

JSW75

•6 years ago

6 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for December 2017

NEW YEAR

Flolan

Is this Telangiectasia?

Breathing

Is this telangiectasia ?

Perfect timeing for Raynauds

Niacin helps Raynaud's Syndrome

Time of the month x

How do you keep your feet warm to mitigate the effects of Raynaud's?

Mother of 6 yr old with Scleroderma en coup de sabre

Raynauds tip

Erythomelalgia

Ouch!

Blood splinters under nails / heart gallops

Would value your thoughts

Amlodipine for Raynaud's?

Terrified

I can't seem to beat this cellulitis

Sausage fingers

Could it be scleroderma

Viagra for Raynauds?

Flaky facial skin

More paper cuts!!

Raynaud's and induction hobs in kitchen

Positive note

White fingers in the middle

What happens after job loss due to your health?

Advice and hope?

Feeling sad

Little hand movement

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