Gwantwaa day ago
2 Replies1 Like
Problem not clear
I have had neck pain for about 5 years now, I was assigned to physiotherapy but had no relief only getting worse sometimes
Extreme fatigue and cognitive issues
AngG14 days ago
Hi, new on here n a little nervous about posting. Just looking to see if others feel the same and how you cope. Got blood results back from ...
Is this Scleroderma? I’m so unwell
Pat1ence6 days ago
I’m currently undergoing first line blood tests (ANA etc) my doctor suspects sjogrens/crest/scleroderma/lupus.
I need some advice. I have a ...
JJMR7 days ago
I posted yesterday but cannot find my post.
Chrisey357 days ago
Well...guess I'm joining the gang. Yesterday i was diagnosed with Systemic Sclerosis/Scleroderma. I have suffered from Raynaud's for ...
Vertigo and nauseous
Littleleni9 days ago
I have scleroderma and spinal issues ( 4 levels in my necked were fused and two areas in my thoracic area are compressed on cord and bulged)...
Newly diagnosed systemic sclerosis
Fr4nces9 days agoPOPULAR
Hi, I am a 54 female and have recently been diagnosed with systemic sclerosis. I had never heard of it before so it came as a big shock. But...
25 Replies2 Likes
Pennypetra9 days ago
I have had systemic sclerosis for 18 years and my fingers are very curled. I have been recommended to get finger splints to wear at ni...
13 Replies1 Like
iloprost for scleroderma
babycatcherem9 days ago
I was diagnosed with systemic scleraderma just over a year ago following a stomach ulcer and a positive ana blood test.
Have been on losa...
Raynauds - help?
AField10 days ago
Hi, I was diagnosed with Raynauds back in January 2017. I was given a leaflet which referred to arthritis and had a section referenced to Ra...
Bexsam10 days ago
Anyone out there has the same problems I am experience? This first time in years and I'm feeling the cold more than usual. I becoming more s...
Belinda196011 days ago
I have Crest and my hair is breaking off does anyone know if thats possible?
Lisa1712 days ago
Anyone out there with a child who has Raynauds?
bloo12 days ago
Does anyone else suffer with a sore nose it feels like it's raw inside and constant for weeks then clears up for a while then starts again. ...
Sami1313 days ago
Just wondering if anyone else craves salt ? I always have but it seems to be getting worse lately and wondered if it’s connected
5 Replies1 Like
marie545415 days ago
Anyone on amitriptyline and is it working?
11 Replies1 Like
Duttie16 days ago
I have just been watching some of the lectures from the Oct 17 SRUK conference and the talk by Prof Peter Butler seemed to have some very po...
3 Replies2 Likes
Marthab19 days ago
Has anyone had flolan infusion to dilate blood vessels, and if so how effective is this treatment.
How do you combat post nasal drip?
SRUKadmin22 days ago
One of our community said - "I have Scleroderma and Raynaud's and now the winter is coming I get constant post nasal drip especially at nigh...
6 Replies1 Like
My Gastric Electrical Trial surgery for Gastroparesis a First for any Scleroderma Patient
mkugler25 days ago
I am a Scleroderma patient here in Sunny Perth Western Australia.
I have severe gastroparesis and been suffering for many years.I am recently...
7 Replies8 Likes
Meds to slow down scleroderma
Kc_141125 days ago
Which medicine or treatment works best for u to slow down the effects of scleroderma?
polly11a month ago
Just wondering if anyone else has receding gums? My gums are shrinking so quickly, my dentist has referred me to dental hospital ...
How do you manage your Digital Ulcers with Scleroderma or Raynaud's?
sclerodermauka month ago
How do you manage your Digital Ulcers (sores on your fingers and toes)?
Our SRUK specialist, Prof. Denton says "Ulcers over the tip of the fi...
5 Replies3 Likes
Iloprost intravenous infusion
paula-mooa month ago
I am struggling with secondary Reynaud's (undifferentiated connective tissue disease) and my fingers/hands are swelling so badly during flar...
18 Replies2 Likes
Has anyone in the group have this Diagnosis
Roxy-2018a month ago
Hello I'm new to the group. I don't know for sure if this is the right one. I had a CT scan of my lungs due to asthma attacks. Seems I'm get...
Psg83a month ago
Hi i'm Pete 55 years old and have been diagnosed with CREST and RAYNAUDS It's all new to me . Don't know what to expect . Doctors tell me...
Issues with teeth
Kc_1411a month ago
Hey all so my husband has scleroderma for 15yrs. His teeth are in a bad way bleeding gums severe deterioration. Also his mouth has shrunk so...
15 Replies1 Like
james87a month ago
Hi I’m James!
I have raynauds and am tired of excess sweating, I am a teacher and am always on the run (yes we do work before and after scho...
Sicca/ sjogrens too
LilaJoea month ago
Anyone out there with diffuse plus sjogrens?
It adds to the dryness and means swallowing is hard.
It would be good to chat if so! .
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