Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

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Scleroderma and prolapse uterus

Hello everyone I have actually got UCTD but worsening features of Limited System...

Have been told autoimmune.. After being treated for Giant cell arteritis..they think SLE

I have developed tiny white spots on 2 of my knuckles and are painful if knocked...

Get them checked!! Little black spots on fingers or toes

>> If you ever have black numb or painful spots show up on your fingers or toes ...
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Survey for school

Hi everyone, I'm currently studying product design at a level and I am going to ...

Raynauds and Eczema

Does anyone else out there have Raynauds and Eczema? I've had Raynauds for lite...

Scleroderma info from John Hopkins Scleroderma Centre

Just came across this useful resource https://www.hopkinsscleroderma.org/patient...

Confusion over information relating to pro biotics!

Now I feel the Gabapentin is helping me be more comfortable with my leg ulcer pr...

Sleeping with raynauds

Hi, My names Matt and I’ve been suffering with raynauds for around 8 years now. ...

Keep face masks petition

The followingis a petition to keep face masks. Please share on other social s...

pain from leg ulcer

Hi / I am 78 years of age and about 5 months ago I developed phlebitis in right ...

Interesting article here on gaslighting by medical professionals

https://themighty.com/2021/06/subtle-medical-gaslighting-chronic-illness-disabil...

Colostomy

I have been recommended for colostomy for Scleroderma bowel. Been using Qufor...

Numb side of throat

Half of my throat has felt numb for the past 8 or 9 years. When I cough or clear...

Lung transplant

Hi all I’m just starting the process to see if I am suitable for a lung transpla...

Treatments for Erythromelalgia

Hello, Community. I have Lupus, severe Raynaud's and a long history of secondary...

Disease flare post vaccinations

Anyone else just felt sicker generally a few weeks after the second jab (AZ)? I ...

Face changes

Hi all, the whole left hand side of my face has started to feel quite uncomforta...

Methotrexate

Hi Ruby Robs, I have circumferential Morphea with fasciitis. My elbows, wrists,...

Covid vaccinations

Hi My mum is too nervous to have the vaccine due to the lack of information on ...

Covid vaccinations

Has anyone with lung fibrosis contracted covid since receiving the vaccinations?...

Methotrexate

Thanks for the responses to my previous post. I have now had two doses of Metho...

Digital ulcer treatment?

What do you do to help heal digital ulcers?. Talking to rheumy nurse tomorrow, b...

Hello

I'm new, apparently, they like me to say that. I was researching the constant m...

Baricitinib

Hi has anyone tried Baricitinib, sold under the brand name Olumiant

PULMONARY HYPERTENSION?

Hi, I’ve just received results of my echocardiogram. I have interstitial lung di...

Heated glove suppliers?

Has anyone found a UK-based maker of heated gloves - especially thin/ liner glov...

Hi there, has anybody tried Baricitinib? What if any side effects were there please?

MCTD RA

Is this Raynaud's?

Hello! I've been having some issues with swelling of my fingers, it started in ...

Scollosis in Systemic sclerosis.

Hello everyone I hope you all are fine. I have a some questions about something ...

Covid 19 vaccine and systemic sclerosis

I have been diagnosed with limited cutaneous of systemic sclerosis and I took im...
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