Steam Cell treatment
sharon27517 hours ago
Hi I have been offered the chance to have steam cell treatment at Sheffield hospital UK has anyone had it?
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Pain fatigue uti
Selsey10 hours ago
Hello everyone my best wishes to you all. Am feeling really low just fatigued all the time and swallowing worse tired of people telling me w...
Toppzydo7 days ago
My bottom is itching me. Every time I remove my pant that's when I began to feel it and after I scratched it, some things like misuses will ...
Weakly positive ANAs - best rheumatologist?
Julesboz7 days ago
All, just want to say thanks to everyone for their advice. My raynauds is getting worse and I’m getting weird spontaneous bruising on my fin...
2 Replies1 Like
Ear Arthritis ...., I swear I feel like I'm going to die .....
8whitetoes9 days ago
How many of y'all ever Heard about Arthritis of the 3 little Bone's in your Ear's ???
I have been having trouble w/ ear pain ..., Repeatedly ...
5 Replies4 Likes
Tapson9 days ago
Hi at the age of 50 i found out i had osteopinia,i started doing weight training and yoga at the gym 4 times a week,when had dexa scan it ha...
FOLLOW UP TO HELPING HAND
fairy5610 days ago
Hi everybody, hope you are all as well as you can be. So off to Sainsburys to do my weekly shop, lanyard in my shopping bag, as I have said ...
12 Replies6 Likes
Kc_141113 days ago
Hi guys it’s been a while, hope u are all well and looking forward to Xmas!
So... my husband has gone in for his yearly iloprost treatment h...
Treatment for raynauds in a teenager
Julesboz13 days ago
Hi all, I have primary raynauds and all 3 of my children have unfortunately inherited it. My 2 adult children aren’t too bad and manage thin...
Pennypetra13 days ago
Just been told that I have to have a course of cyclophosphamide one day a month for 6 months. Has anyone else had this and what effect...
Hot water bottle is my new best friend
Dousey8514 days ago
So...I’ve found that permanently having my poorly hand on a hot water bottle really works, it comes everywhere with me, bed, sofa, mums hous...
4 Replies5 Likes
Any help in Florida?
Susanissufferingtoo15 days ago
Hey y'all, seems like being here feels like I'm doomed😢 I really want A stem cell transplant. How would I get it? How do I sign up? I
11 Replies1 Like
Do I really have Raynauds?
wrongdiagnosis15 days ago
Last month I was diagnosed with Raynaulds by Dr Price. I have had this health problem for 15 years now which has been diagnosed incorrect...
Erythromelalgia getting worse
skylark1515 days ago
In response to Coco's post with the new TEA Guidelines, I said I had an appointment to see an NHS consultant in London. Profe...
4 Replies1 Like
Chronic gvhd and treatments
jontee16 days ago
Hi ,is anybody taking sirolimus for chronic gvhd. Been on few months now seems to be slowing it down. Second attempt on this been on a few t...
SarahJane92617 days ago
I was just wondering if any of you are taking Methotrexate for Scleroderma? My specialist has recommended I change medications due to...
A HELPING HAND
fairy5618 days ago
Hi everybody, I hope you are as well as you can be. Anyway went to Sainsburys to do my weekly shop, usual fast trip down the chilled area, g...
11 Replies6 Likes
Fee6619 days ago
I’ve been prescribed MELOXICAM and just read the leaflet, there’s quite a lot of side effects. I would love to hear from you if your on this...
TinaScott196819 days ago
I'm laying here in bed with the electrical impulses throughout my body . Only get the impulses when I lay down . I do have nerve damage in m...
2 Replies2 Likes
Torture treatment on the NHS!!
Motherm20 days agoPOPULAR
I have had Raynauds for the past 7 yrs but more severely the past 3 . This autumn the fouth toe of my left foot got owrse than usual and aft...
24 Replies2 Likes
Left side body muscle pain
BinodMahat22 days ago
I have pain and burning sensation just below left rib cage and having cracking sound. Burning sensation keep moving in left area of body fro...
amd2122 days ago
I have SSc and take nifedipine for rays with good effect but have had a lot of oedema, flushing and night sweat so consultant advised trying...
5 Replies1 Like
Feeling completely frozen
Rp32122 days ago
Does anybody have the issue when it's cold or vaguely chilly your whole body kind of tenses as if you just stepped into -100 degrees or some...
Turquoise199322 days ago
Hi, has anyone ever had chilblains but only on one foot and a few toes? I've googled and the symptoms do match, on my big toe and the two ne...
SherrySanford6524 days ago
Colon problems. I have systemic scleroderma and found myself needing surgery for a prolapsed colon. They did the surgery, pulled it back up ...
Selsey24 days ago
Hi everyone good to read posts.I have had. Two days of IVIG for the scleroderma but do not feel so well ache all over and keep going to. Sle...
Anyone here with negative ANA results?
puggyboy25 days ago
I've recently seen a consultant at the Royal Infirmary in Glasgow, who tells me that he is highly confident that I don't in fact have sc...
k9lover58a month ago
Hi all, I was just wondering if anybody has had any derma fillers especially Sculptra with this connective tissue disease? I am so depresse...
Sjogren's - Puntal plugs or Ciclosporin drops?
lupieibbiea month ago
Does anyone have experience of both of these treatment options for very dry eyes and, if so, which would you recommend?
Folic acid effect?
Inamomenta month ago
Much to my surprise i got out of bed like a normal person rather than staggering up full of aches and pains and been feeling like a gazelle ...
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