Raymounds condition or disability?
marcuspaul1233 days ago
I feel raymounds and related conditions should be considered a disability and allowances financly benifits awarded for medication ect off ...
7 Replies1 Like
Emfrenette3 days ago
Just got more test done for my hands and wrist . Rheumy thinks I'm starting to get calcinosis build up on my Fingers. Also I've had this cou...
Us FRosties re cold need a bit of love and warmth!!
marcuspaul1234 days ago
Re conference this year raymounds society has a conference yearly did not know this till last year went last year very usefull talks and deb...
1 Reply1 Like
Systemic scleroderma and parenting young children
Kylima4 days ago
Hi everyone. I haven't received my diagnosis yet but I'm sure I will when I see a rheumatologist in 2 weeks. I'm quite convinced I have syst...
Hot weather raynouds syndrome???
marcuspaul1235 days ago
Just wondering with raynouds syndrome we know cold weather makes our hands ect numb and painfull but in this recent heatwave hands and feet...
-missymoo6 days ago
Hi there, I’ve recently been prescribed Glyceryl Trinitrate (Deponit) patches & Hydroxychloroquine (tablets) for my limited cutaneous system...
Week 3, of fun and laughter!
fairy566 days ago
Hello all you lovely people, well I cant believe its the end of week 3 of the school holiday, its right what people say, time flies when you...
12 Replies1 Like
Have you used an UrgoStart dressing for ulcers?
NICEGetInvolved7 days ago
I work at the National Institute for Health and Care Excellence. We are looking at how effective the UrgoStart dressing is for l...
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side of hands have a blue tinge
babyinny7 days ago
finally have rhuematology appointment 23rd August
crest syndrome antibodies blue tinge on side of hands since last night have been having ...
Conference 2018 -apologies
Wengc9 days ago
I posted earlier today regarding the conference in October, but my post has vanished...I was asking for accommodation tips for the co...
babyinny9 days ago
I am still waiting to see rheumatologist for definite diagnoses of crest . I have been attending dental hospital with a granuloma inflamatio...
Sylviamoore429 days ago
I am a little baffled and confused..
From January I have been in pain throughout my body, my hands have been puffy and sore,I’ve wee red dots...
Still enjoying school summer hols!!
fairy5613 days ago
Hello everybody, I hope you are all coping well with our second round of hot weather. Although I have had a few aches and pains this week, I...
7 Replies2 Likes
First timer here!!! Be kind! 👋 Water? How much should I be drinking?
NikkiDoggett13 days ago
I have diffuse scleroderma, with renal impairment, Raynauds, and a whole list of other problems. I take about 20 - 25 tablets a day ( a vari...
Emfrenette14 days ago
Has anyone had pregnancy with Crest /reynauds ? And was is a high risk ?
Update on how our meeting went.
avtargill3114 days ago
Hi folks. Well what can I say, we had our 1st ever meeting in Birmingham and it was a great success, no awkward silences, no stresses at all...
10 Replies8 Likes
Debbiedoughnut17 days ago
My most upsetting problem is my eyes. Do any of you good people have vision problems?
17 Replies2 Likes
scared and lonely
volvox4517 days ago
I meant this to appear in the scleroderma site but it got put into the lung one – so here it is again:
I was diagnosed with limited systemic ...
Sarog7218 days ago
Hi my name Sarah Taylor got scleroderma n raynards some days so pain full no one seems to understand what it's like xx
Incontinence due to torn spinchter muscle due to childbirth
Meimster198918 days ago
Has anyone had this ? I am living a nightmare I cannot wish I was always constipated so I wouldn't have accidents but I think my only other...
babyinny18 days ago
Just invested in CBD oil has anyone used ? Do anything to relieve pain now
Blepharospasm, paraesthesias nerve and neurological symptoms orthostatic hypotension
shaunalouise2618 days ago
Hi there I'm due to see a neurologist again soon so I'm trying to gather some information before I do. I have suffered with a lot of paraest...
9 Replies1 Like
Burning sore tongue and throat for a year getting worse driving me to despair
I have recently tested positive for Crest Syndrome awaiting rheumatology appointment I have been attending dental hospital were they diagnos...
Who feels lonely?
Debbiedoughnut19 days ago
Why does it seem odd to others that I want to find a person who I can talk to about the way I feel and not feel like an alien? At the moment...
13 Replies2 Likes
Hi, I don't really know much about computers but am trying to find someone,anyone who also has scleroderma, raynauds, and other seemingly st...
Struggling with middle finger/arm.
Cyrus65Conra19 days ago
Hi I am just hoping someone can help me with this ongoing problem. About 5 months ago I had a sharp pain in my middle finger on my right han...
the joys of school summer hols!!!
fairy5620 days ago
Hello everybody, oh the joys of looking after my 11yr old granddaughter!! First week in, and we have had a day out at a museum, a macdonalds...
4 Replies8 Likes
Experience of Iloprost infusion?
celvo21 days ago
Hi all, long post incoming but I need some advice/help!!
I am a 24yo female was diagnosed with Primary Raynaud’s when I was 11 and I suffer w...
hendryx82621 days ago
Does anyone here have Secondary Raynauds? The more severe case of typical Raynauds? My husband was diagnosed at the beginning of May after s...
13 Replies1 Like
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