Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

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Why did this emergency happen and how to prevent again?

My wife (66) has diffuse systemic scleroderma with interstitial lung disease/fibrosis plus Raynaud's and GERD. Diagnosed in January but we are sure she's had...

My wife (66) has diffuse systemic scleroderma with interstitial lung disease/fib...

Pomoc

•2 days ago

15 Replies

Feeling cold all the time

Hi, I have scleroderma and reynauds and while I am used to having cold hands and feet of late I am very cold all over, even my core. I was wondering if I...

Hi, I have scleroderma and reynauds and while I am used to having cold hands and...

Deiseboy

•6 days ago

7 Replies

any ideas ?

hey amazing people This is bit out there but I know someone in the forum normally comes up trumps 🙂. Last week I had an overnight watch from hospital to...

hey amazing people This is bit out there but I know someone in the forum normal...

Tiggywoos

•7 days ago

8 Replies

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Positive Tests no skin involvement

I received a very high positive (+++) SCL70 which stated scleroderma/systemic sclerosis. GP has referred me to rheumatology which I will likely be waiting...

I received a very high positive (+++) SCL70 which stated scleroderma/systemic sc...

LooseBananas

•7 days ago

6 Replies

Effective lotion for softening skin

Hello lovely people! I just want to thank everyone who has replied to my first post about me being a newly diagnosed Scleroderma patient. Grateful for all your...

Hello lovely people! I just want to thank everyone who has replied to my first p...

luna_lovegood

•9 days ago

4 Replies

feeling anxious and alone

hey all I had my rhemotologist appointment this week after many months of my latest issue swelling in joints knees feet ankles wrists and fingers so full blood...

hey all I had my rhemotologist appointment this week after many months of my lat...

Jaq1971

•9 days ago

10 Replies

Newly diagnosed scleroderma

Hello. I just got diagnosed with Diffused Scleroderma and now my Rheumatologist wanted me to start Mycophenolate. So devastating to hear my diagnosis. I suffer...

Hello. I just got diagnosed with Diffused Scleroderma and now my Rheumatologist ...

luna_lovegood

•9 days ago

7 Replies

freezyfeet

Nothing seems to help with cold feet except my heated mat and gloves for my hands.

Nothing seems to help with cold feet except my heated mat and gloves for my han...

Freezyfeet

•10 days ago

Be the first to reply

Which hospitals carry out Digital Botox Treatments?

Hi all, during a recent consultation with my vascular consultation, he advised because my Raynaud's is so severe all year round, I can't keep putting myself...

Hi all, during a recent consultation with my vascular consultation, he advised b...

Slinky72

•13 days ago

7 Replies

Does rhis sound like scleroderma symptoms?

Hi all, I was actually on this form under a different user name but for some reason couldn't get access to this group with the old user name. Anyhow, long...

Hi all, I was actually on this form under a different user name but for some rea...

Elsie2022

•13 days ago

2 Replies

What to expect, medication etc - First appointment since Systemic Sclerosis diagnosis

Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca...

Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then Decemb...

Jules1821

•14 days ago

4 Replies

Nifedipine - how do YOU take it?

Hi! The rheumatologist I last saw has sent a vague instruction to my GP recommending that I take nifedipine “in the winter months”, but not specifying...

Hi! The rheumatologist I last saw has sent a vague instruction to my GP recomme...

Purple_Badgers

•15 days ago

19 Replies

Pentoxyfiline

hi I’ve been prescribed Trental 400 mg ( pentoxyfiline) for firearm pain and hand pain associated with Raynauds. The team who prescribed it have discharged me...

hi I’ve been prescribed Trental 400 mg ( pentoxyfiline) for firearm pain and ha...

Rubytunes

•19 days ago

5 Replies

Two recommended products for Raynauds

Hi all, I stumbled upon these two AMAZING products for helping to manage my raynauds. I have terrible (secondary) raynauds and still work in an office, so...

Hi all, I stumbled upon these two AMAZING products for helping to manage my ra...

Nw6London

•22 days ago

2 Replies

I am scleroderma patient.

My name is farwa munawwar. I am from pakistan. I am 34 years old and patient of scleroderma since 8 years. I have 3 kids. I entered in uk before 6 month. And...

My name is farwa munawwar. I am from pakistan. I am 34 years old and patient of ...

Lion-yellow057

•27 days ago

8 Replies

Raynauds Newbie

Hi, I suffer terribly from coldness, even in the hot months my feet and hands get cold. Constantly cold in the winter months, my skin colour turns purple and...

Hi, I suffer terribly from coldness, even in the hot months my feet and hands ge...

Nomis21

•27 days ago

5 Replies

Hello All.

Hope everyone is ok. I am new to this Community. I was diagnosed with Raynaud's in April. I,m managing ok, but it takes a bit of getting used to. I get...

Hope everyone is ok. I am new to this Community. I was diagnosed with Raynaud's ...

Purpleandblack

•29 days ago

1 Reply

Raynaud’s

Has anyone had any type of surgical procedure or injections for Raynaud’s?

Dermatray15

•30 days ago

4 Replies

Out to left field, I live in Australia and was doing some reading about surgical procedures that used leaches to increase the blood flow.

My mind has gone into overdrive and wondered if anyone had looked into this from a Raynaud's affect point of view? I know it's out there but I'm trying to work...

My mind has gone into overdrive and wondered if anyone had looked into this from...

Downunder27

•1 month ago

8 Replies

Advise on medication for GI issues

Good Morning everyone, I am currently experiencing a lot of chest discomfort , wind ,etc due to acid reflux , GERDs and dysmotility. I am currently on...

Good Morning everyone, I am currently experiencing a lot of chest discomfort ,...

Buttsy

•1 month ago

26 Replies

My question is about the best way of getting a diagnosis of scleroderma or of discounting it?

I was diagnosed recently with Raynaud's disease which can get quite painful, but is manageable. I have GORD and a small hiatus hernia. However I do get...

I was diagnosed recently with Raynaud's disease which can get quite painful, but...

strongmouse

•1 month ago

5 Replies

Dealing With Facial Changes

hi all, I’m quite new to this & was hoping for some advise. I’m 34 and have been diagnosed almost 4 years now, I’m struggling to come to terms with all the...

hi all, I’m quite new to this & was hoping for some advise. I’m 34 and have been...

LeLe_

•1 month ago

14 Replies

Feet reacting to heat but not cold

I have had Reynaud's in my hands for years and which I manage. Since having Covid and 'Covid toes' I have been left with feet that react badly (redness,...

I have had Reynaud's in my hands for years and which I manage. Since having Covi...

ES26

•1 month ago

2 Replies

Photos Nails and Hands?

I developed Reynauds a couple years ago, which my doctor dismissed once he saw pictures. Didn’t know that if you are over the age of 40 and develop it could...

I developed Reynauds a couple years ago, which my doctor dismissed once he saw ...

Quin5

•1 month ago

1 Reply

howdo gain weight? If you have reflux problems?

Hi, I have been diagnosed with systemic sclerosis/myositis, I lost 20kg, and I eat a lot but have no weight gain, if I eat fats I have big problems with...

Hi, I have been diagnosed with systemic sclerosis/myositis, I lost 20kg, and I e...

skinnynow

•1 month ago

3 Replies

Nails Splitting! Is this my Raynauds?

Hi everyone,For a few years now my fingernails split then the nail breaks, taking a peice of nail off. I have sent nail cuttings off for checking but nothing...

Hi everyone,For a few years now my fingernails split then the nail breaks, takin...

flamenca1

•2 months ago

5 Replies

looking for information on pancreas insufficiency.

Good afternoon to you all, Just wondering if anyone has, had faecal Elastese test? Have the results been low or has anyone been diagnosed with Pancreas...

Good afternoon to you all, Just wondering if anyone has, had faecal Elastese te...

Buttsy

•2 months ago

1 Reply

Vibrations

Dr google is sending me down a blind alley so thought I'd ask the experts:Does anyone here with primary or secondary Raynaud's ever get an attack from using a...

Dr google is sending me down a blind alley so thought I'd ask the experts:Does a...

Brychni

•2 months ago

11 Replies

Hand, Foot & Mouth

Be aware of the childhood desease HF&M. My 2 year old grand twins caught HF&M last year.Unfortunately I caught it from them & it was a nightmare. Because of...

Be aware of the childhood desease HF&M. My 2 year old grand twins caught HF&M l...

Ildivolover

•2 months ago

2 Replies

Diffuse SSc Diagnosis

hey everyone, I’m new here and was diagnosed with SSc in 2022. I am still waiting for a formal diagnosis for the type I have but due to the strongly positive...

hey everyone, I’m new here and was diagnosed with SSc in 2022. I am still wait...

Prettyfalcon

•2 months ago

21 Replies

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Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

Why did this emergency happen and how to prevent again?

Feeling cold all the time

any ideas ?

Positive Tests no skin involvement

Effective lotion for softening skin

feeling anxious and alone

Newly diagnosed scleroderma

freezyfeet

Which hospitals carry out Digital Botox Treatments?

Does rhis sound like scleroderma symptoms?

What to expect, medication etc - First appointment since Systemic Sclerosis diagnosis

Nifedipine - how do YOU take it?

Pentoxyfiline

Two recommended products for Raynauds

I am scleroderma patient.

Raynauds Newbie

Hello All.

Raynaud’s

Out to left field, I live in Australia and was doing some reading about surgical procedures that used leaches to increase the blood flow.

Advise on medication for GI issues

My question is about the best way of getting a diagnosis of scleroderma or of discounting it?

Dealing With Facial Changes

Feet reacting to heat but not cold

Photos Nails and Hands?

howdo gain weight? If you have reflux problems?

Nails Splitting! Is this my Raynauds?

looking for information on pancreas insufficiency.

Vibrations

Hand, Foot & Mouth

Diffuse SSc Diagnosis

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