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Scleroderma & Raynaud's UK (SRUK)

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Delayed Stomach Emptying GERD SIBO

Hi guys a few questions what's the best dose and treatment for GERD - mine...

recent biopsy

hello everyone, I’m new to this group. I have had trouble for a while, vitilg...

numbness in left leg when rising from sitting

hi, I have scleroderma and secondary raynauds in my fingers. I take sildenafil w...
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Atemara

Hello, My mother was diagnosed with Scleroderma over a year ago, however, no on...

Micofenolat Mofetil

hello everyone, I have been diagnosed with progressive systemic sclerosis. And...

getting odd pains ..

ive only been diagnosed with reynauds/limited scleroderma(crest) and vertigo no...

An injection of iloprost and rituximab for systemic sclerosis Raynaud's phenomenon

Has anyone received an injection of iloprost and rituximab? After it is received...

finger pad sensation

has anyone experienced an odd sensation in their finger pads ? Feels bit like I’...

Can you help us find runners for the Royal Parks SRUK Team?

SRUK needs your help - we have a few remaining places for the Royal Parks Half M...

diagnosis doubts

I was diagnosed with limited systemic scleroderma 4 years ago with the usual pos...

Reflux recovery after antibiotics

I have limited systemic sclerosis. For years I have had very bad reflux and inve...

minocycline

hi all, has anyone being prescribed minocycline for calcinosis cutis, they ha...

Low thyroid levels

Hello everyone, my latest bloods have shown low thyroid levels. They're going ...

Vaccine side effects.

Hello. Just wondering, has anyone who received the Pfizer vaccine and boosters h...

Mycophenolate and possible Covid

Hello. Wonder if anyone knows whether it’s advised to keep taking Mycophenolate ...

Remission

Has anyone else's Dr talked to them about remission. I have the echo voice of my...

Weight loss

Hi all. Has anyone experienced weight loss with limited Scleroderma, without tr...

Hard peeling skin on my palms

does anyone else have this symptom?

Purple toes when sitting

Hi, I would like to know if anyone is experiencing something like this. My toes ...

Warm weather and Secondary Raynauds

I had thought that with the warmer/hot! weather the pain in my fingers and condi...

Sclerodactyly (clawed hands) & Iluprost

Does anyone know if Iluprost treatment can help with Sclerodactyly? I have been ...

Iloprost

Hi, has anyone had Iloprost in the summer and did it help with the burning?

How Many Of You Developed HAVS Raynaud's or Vibration Finger at Work?

My GP believes I have HAVS, my OH doesn't, but my OH is basing it on more advanc...

Milk

Does any body know if your aloud to drink lots of milk and yogurts with this. Do...

Gall bladder operation

I have scelerderma and Raynauds as well as lupus and myositis, diagnosed 3 years...

Small Calcified lump in abdomen

Hello there, I have scleroderma and Sjogrens. Two years ago I felt a tiny pea-si...

Calcinosis in thumb

Hi, just wondered if anyone has/had extensive calcinosis on thumb pad and if so,...

Ariane Herrick

Hi, Just wondered if anyone has been under the care of consultant Ariane Herrick...

Scleroderma specialist

Hi does anyone know a scleroderma specialist in Northern Ireland?. I am under rh...

COVID Anti-Viral Drugs

Hi, just wondered if any of you who have had COVID and are immune suppressed, ha...
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