Anyone near Birmingham?
avtargill3117 hours ago
How folks, just wandering if anyone is near Birmingham that I can have a coffee and a chat with regarding Raynaud's and other stuff? Perhaps...
10 Replies1 Like
Back with a smile and a wave
fairy5619 hours ago
Hello everybody, first of all thank you to all of you that sent me your encouraging thoughts, thank you. Anyway here goes, got up this morni...
2 Replies7 Likes
Hi People taking fluoxetine for Raynauds, I have scleroderma too, what time of day do you take it?
trunchalobesity20 hours ago
Ive tried iloprost and sindifal
Pain in feet and hands/ Raynauds and tarsal tunnel
Skaygooda day ago
Needing suggestions- I recently was diagnosed with Raynauds as well as tarsal tunnel. I’ve been prescribed gabepentin which hasn’t done much...
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fairy562 days ago
Hi everybody, I am afraid that my get up and go, as well and truly gone. I have spent most of the day sat in chair watching tv. Normally I ...
16 Replies2 Likes
Rosieandsid2 days ago
Hello..i was diagnosed with primary reynauds two years ago. It seemed to kick off when my marriage very much suddenly ended in 2013? My feet...
How do I cancel out of a forum I accidentally slgned up for by mistake
irina19752 days ago
Can anybody tell me in simple step by step terms how to withdraw from the "SCLERODERMA & REYNAUD'S UK (SRUK) forum. While looking up somethi...
5 Replies1 Like
agnbg08263 days ago
Hello my name is Bobbiann and I am so scared right now. I have been trying to get a diagnosis of what's wrong for 2 years now. My skin start...
irina19753 days ago
I just noticed that this(Scleroderma) is now one of my communities. I pulled up a post related to Losarten but I didn't mean to join this co...
Salty dry mouth
LilaJoe3 days ago
This is so unpleasant! I have dry mouth and gerd( silent reflux). Any tips? Thanks.
Does omezaprole help this? It's ,only temporarily relived...
Help with crest symptoms
catkar4 days ago
My name is Cathie. I was diagnosed with crest 5 weeks ago. The results of tests are still ongoing. I am a single mother and ful...
Scars in systemic sclerosis
Sylviaherring5 days ago
Hi all. I have had scars on my forearms which look like little burns. They have been there a couple of years, however some of the scars on m...
Sjögren syndrome & Scleroderma ?
JazPont6 days ago
Hey guys so, I had a follow up appointment with my ophthalmologist on Friday and he said that my disease is now attacking the tear glands a...
2 Replies1 Like
Reoccurring, extremely painful sore throat.
-missymoo6 days ago
Diagnosed with limited cutaneous systemic sclerosis February 17, but suffered awful Raynauds for 11-13 years. Whenever I pick up a ...
1 Reply1 Like
Nails falling apart...
Croft19876 days ago
I’ve always had really nice nails and it’s been one of the few parts of my body I actually liked! I’ve always looked after them ...
One for the men
meders7 days ago
Do any of the men with this condition suffer with erectile dysfunction?
I’m taking sindenafill (viagra) on a daily basis. So finding it doesn...
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Quitting Fluoxetine (prozac)
hunkyd0ry7 days ago
I find the thought of the amounts of medications I am supposed to take for my severe Raynauds with SSc rather sickening. Especially as we mi...
7 Replies2 Likes
How much did you consider the direct connection of your condition with your diet?
I would like to start a debate on the following subject:
How much did you consider the direct connection of your condition with your d...
4 Replies1 Like
Scleroderma with sore mouth rash
23Whitehorse8 days ago
I had a sore rash in my mouth to were every thing I would eat or drink would burn. My Rheumatology doctor at Cleveland clinic referred me t...
1 Reply2 Likes
skybluepink8 days ago
Always had blue & white fingers in cold as a child relieved with piriton.Then I got it again after MI - cardiac & realised ,when read insert...
NSV6910 days ago
I am currently taking mycophenolate but have been advised to stop it for at least 2 weeks as i am going abroad in 3 weeks and having boost...
New to this community.
dholland2910 days ago
Diagnosed with Limited Scleroderma, only by accident, approximately 3 years ago and have had Raynaud’s for about the past 30 years.
A BIG THANK YOU
fairy5611 days ago
Hi everybody, thank you to everyone that replied to my previous post. You will be happy to know that today my body is no longer reminding me...
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My first broken heart 💔
JazPont11 days ago
I’ve had my Holter monitor rigged up. I have to wear it for 4 days, see what’s going on with the little ticker.
Recap - since beco...
4 Replies2 Likes
Electric shock type pain.charcot marie tooth
Maz196111 days ago
Hi I'm diagnosed as having chariot marie tooth disease and peripheral neuropathy. I suffer terrible electric shock type pains when resting o...
This thing called systemic sclerosis!
Hi everybody, just logged on to the sruk site, and read all the posts. It truly is amazing that most of the posts mention lots of the irrita...
7 Replies16 Likes
Frances1812 days ago
I have raynaurds at Christmas my hands and legs bloated up very painful someone mentioned about getting my heart checked out is that right ...
Hidden12 days ago
Hello I’m charliegirl as I get older I swear things that never bothered me is now bothering me smh I have these like paper cuts on 7 of my f...
Leg pain after Iloprost?
hunkyd0ry12 days ago
I have had a week of Iloprost infusions at the beginning of January. Besides some headaches and a little bit of nausea I handled it f...
Pennypetra13 days ago
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