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KatieAnna2 days ago
Hi someone called suesure2002 has tried to contact me via messenger on this site but I can't read the message. Any tips? When I clicked on t...
Which one is the ***Rarest Form*** of the different types of **Scleroderma**???
8whitetoes2 days ago
Because I'm now puzzled ....
Just over the past year ..., Now ..., I thought there were Several people being treated ..., (With ***Systemic ...
4 Replies1 Like
Living by faith
StudyGodwords3 days ago
Living by faith hi I just wanted to make friends with people who have scleroderma I want to let you know that you can over come by GOD'S gra...
1 Reply3 Likes
blueberry204 days ago
I had 5 days of Iloprost infusion for the first time last week. How long is it before you usually start to feel the benefit?
Pain in legs
Mac-12345 days ago
On holiday I was diagnosed with cellulitis. I was given clindamycin and the redness and swelling reduced quickly. 2 months later however I’v...
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aa445 days ago
Hi, anyone here developed scoliosis as an older adult? All info I read seems to be addressing teenagers.
I'm agonising about surgery, the...
Birmingham meeting in November and Facebook page
avtargill315 days ago
Hi Folks, just a gentle reminder that we have our next meeting in Birmingham is booked for November 30th at 2.00pm in the John Lewis restaur...
marcuspaul1237 days ago
Can methotrexate cause being diabetic
Possibly worse than acid reflux
107us7 days ago
Last year around this time I stayed up a whole night puking so bad that my throat bleed and eventually nothing but acid came up for a while ...
Limited cutaneous systemic sclerosis and lung involvement question.
-missymoo8 days ago
Hello to anyone reading. I just wanted to get a general feel for how many people diagnosed with Lcss actually have lung involvement? Trying ...
Taking a gamble!
marcuspaul1238 days ago
This is a bit of a gamble if anybody from the London area is going to the raynounds conference in Windsor tommoro esp if travling alone and ...
Emfrenette10 days ago
I was told by my rheumy I was in remission? Can anyone explain this to me ? I have been diagnosed with secondary reynauds and they found it ...
Things u can do that doctors do not mention. A journey that few people understand.. we need to help each other..
BCTK12 days ago
I have read all personal struggles with Raynauds that I can find... not only do I have Raynauds ,one daughter and one granddaughter suffers ...
3 Replies4 Likes
Erythromyalgia or something else/more? Mast Cell Activation Disorder?
bengali13 days ago
Bit of history first - I've had Reynaud's since a young girl. No other issues related to anything rheumatalogical other than intermittent u...
Scleroderma and Lung cancer
Lorna14 days ago
I was diagnosed with systemic scleroderma in 1999 with fibrosis to my lungs. In a routine x-ray with my pulmologist an anomaly wa...
7 Replies1 Like
Feeling rubbish after exercising
Cubbikins16 days ago
Hi everyone - I was diagnosed with Systemic Sclerosis earlier this year and am suddenly feeling really crappy after my usual visit to the gy...
Could someone interpret these results please?
-missymoo16 days ago
Just looking through my blood test report and not really sure how to interpret them. Looking at the photo, what are my actual result...
Picture of cigarette like sore ....
8whitetoes16 days ago
Here is picture of *sore as it is healing* ....
Anyone have Any clue as too ...., What the what?????!!!!!????
I'm really tired of the things ...
Here is a picture of *cigarette* like sore
8whitetoes17 days ago
HERE is picture of sores at "2sd" stage.....
Sores that look like cigarette burns
HERE is a picture of a *sore* at it's start.....
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Cindyione17 days ago
I feel very sorry for whoever put this article in on behalf of there child. It is a very devastating disease! The only thing I can say is ...
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Getting in touch second time not used to emailing!H
Selsey18 days ago
Hi everyone thank you so much for your messages already.A little about myself. Am 81 systemic scleroderma for 26 years. 0steoporosis for 8 y...
3 Replies1 Like
Digital ulcer or something else
Emfrenette18 days ago
My finger has a crack at the very tip pretty much under my nail and its hurting so bad it hurts to touch it the slightest . I've been warned...
New member first email
hello I am a new member and not used to emailing. I have had scleroderma for 26 years and also osteoporosis. I have felt rather alone as onl...
10 Replies3 Likes
james8719 days ago
So.. me again hi 👋 everyone 🤗
I’m feeling the cold like many of you and am contemplating about buying vests. Typical 27 (not wearing the ol...
fairy5621 days ago
Hello everybody, I hope you are all keeping as well as you can. Well the sun as been shining most of the week, the nights are drawing in, th...
5 Replies6 Likes
connections with autoimmune conditions
food12321 days ago
Hello. First post! I am in my mid seventies and developed
crest when I was 25
My nieces have Hashimotos disease and my grandson
has cystic fibr...
Jen313122 days ago
When attending an occupational physio appointment this week, the lady had a referral form in front of her that said I had Scleroderma and in...
CSC3923 days ago
Hello everyone. I’ve just joined on behalf of my 14 year old daughter who was diagnosed with Raynauds a couple of years ago. It is in the fa...
Problems with fingerprint recognition?
EmmaMac23 days ago
Hi, does anyone have problems using fingerprint recognition?
I’ve never been able to use that function on my iPhone (it works initially but ...
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