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Scleroderma & Raynaud's UK (SRUK)
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Treatment for Autoimmune conditions with great success but we must travel!

Hi everyone, I feel that I have to share this with you! It has been a great expe...

Painful digital ulcer scars

Hi everyone, I need some advice on digital ulcer management. I was diagnosed wi...

AIP

Hello, Have you had experience with autoimmun protocol? I am reading about it ev...

Lichen scleroma

I have had this diagnosed with this distressing disease in Feb '19 and started o...

Secondary conditions

Hi all. Hope you are all as well as can be :) I have systemic sclerosis with ra...

New girl in the town

Hi, Finally diagnosed with scleroderma, Reynaud symptoms though since 10 years. ...

Coccydynia and Muscle Spasms in Back - Primary Raynaud's

So a little update, I seen a GP about the pains in my back after my private phys...

Advice please!

I’m 36 and was finally diagnosed with limited systemic sclerosis in March. Firs...

How long until this awful moon face goes away?

I’ve been on prednisone now for three years. My neurologist finally agreed to ad...

Weird toe?

I have secondary Raynauds through Systemic Sclerosis....my query is....does anyo...

Tinitus

Hi i was diagnosed with Raynaud's and scleroderma 15 years ago, i have also h...

B12? Or something else?

Hi guys, I havnt posted on here for quite a while now.. I was wondering if anyo...

Diagnosed with Scleroderma but am having really bad muscle pains to the point where I’m in bed 4days!!! Hopefully u can relate?

I was diagnosed with scleroderma about year n a half now.... I’m on cellcept 500...

Morphea Patches

Hi, My 9 year old daughter has Morphea with several patches on her body (2 on he...

SRUK Patient Survey

Hi All, If you wouldn't mind taking 10 minutes to fill in our Patient Survey for...

Plmt

ik ben op zoek naar mensen met plmt. Heb ook last van piriformer en sacro_iliac...

Recently purchased.....

Hi everyone I’m a newbie here. I’ve got Raynaulds and had it For years but I rec...

Confused by anticentromere antibodies

Hi I had parvovirus at the beginning of the year with swollen fingers and terrib...

Disabling badge

Has anyone had success when applying for a disability badge. I am having problem...

Back pain

Hi guys I've been experiencing back pain in my lower back, tailbone area. If I s...

Hydroxychloroquine and hypoglycaemia

Hi, My husband and I have noticed now, that if there is too much of a gap betwe...

Electric feeling strange scary sensation throughout whole body

Back then I used to get this weird like surge rush feeling like kinda like I’m g...

Feeling depressed scleroderma

I have scleroderma raynauds osteoporosis and feel really ill.GPs don't understan...

Medication

Hi can anyone tell me what medication they are on for Raynauds as I have been to...

Little walk or little activity makes me breathless stomach floating with Diarrhea.

This is going more wars since last 3 weeks did concert gp same time when this su...

Hot hands! No sweating, just putting off intense heat, any suggestions for a cause?

My hands get so hot and it makes me miserable, anyone else have this issue?

elprof7557

Suffering from limited scleroderma and Raynaud's since Nov.2011.

Weird feeling

Just coming broadside of a 4 week flare of whatever this is causing it. Firearms...

Recently diagnosed. Confused and concerned.

I was diagnosed with late onset Raynaud and Scleroderma in November 2018. This ...

Bizarre

I find it totally bizarre that the majority of us have the ‘same’ condition but ...
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