Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,823 members • 5,405 posts

All posts for November 2020

Mycophenalate

Thank-you everyone for your reply. I have been taking live probiotics from a trusted nutritionalist and wondered if those could affect the balance and...

Thank-you everyone for your reply. I have been taking live probiotics from a tru...

•3 years ago

Mycophenalate

Has anyone been taken off Mycophenolate due to their blood test results particularly in relation to WBC and neutrophil ? Jogging along nicely and slowly...

Has anyone been taken off Mycophenolate due to their blood test results particul...

•3 years ago

Pulmonary hypertension and the coronavirus vaccines

For those with pulmonary hypertension who are wondering about the vaccines being developed, and how safe they are, the following website has a very good video...

For those with pulmonary hypertension who are wondering about the vaccines bein...

•3 years ago

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feeling the cold!

Hi all, I think I wrote about this a few weeks ago when we had a tiny cold spell, but now the cold is here for good (probably) I am shocked by how I just...

Hi all, I think I wrote about this a few weeks ago when we had a tiny cold spell...

•3 years ago

anyone?

Hi all I have Raynaud's and Inflammatory Arthritis. Today has been first proper white finger day as there was a frost but I expect it will be in full swing...

Hi all I have Raynaud's and Inflammatory Arthritis. Today has been first proper...

•3 years ago

SLC-70 of 1.5?

I’ve recently had a autoimmune blood panel done and besides my hashimotos thyroid this scleroderma one showed up at 1.5. I don’t know anything about it and I...

I’ve recently had a autoimmune blood panel done and besides my hashimotos thyroi...

•3 years ago

Post nasal drip

Hi, everyone i have post nasal drip for while, i went to ENT and did endoscopy two times which was good. but mucus keep coming from back of throat and its too...

Hi, everyone i have post nasal drip for while, i went to ENT and did endoscopy ...

•3 years ago

Numb half of throat

I have lots of mucus in my throat particularly first thing in the morning. I am forever coughing or clearing my throat but I can only feel it in one side of my...

I have lots of mucus in my throat particularly first thing in the morning. I am ...

•3 years ago

Does anyone else live their life according to 'one day my scleroderma could get worse'? (I'll elaborate inside)

I was diagnosed when I was fifteen, in 2013. I had a bunch of GCSEs to revise for, and a methotrexate injection to look forward to every week. I was in pain,...

I was diagnosed when I was fifteen, in 2013. I had a bunch of GCSEs to revise fo...

thepictrofdoryingrey

•3 years ago

Nifedipine

I take nifedipine to help with Raynaud's - which it does- but I get headaches. Reluctant to stop nifedipine because it helps. Does anyone else get headaches?...

I take nifedipine to help with Raynaud's - which it does- but I get headaches. R...

•3 years ago

Spots on arms

Hi everyone, Over the last few weeks I seem to be getting a lot of red spots on my arms, is anyone affected with these. Regards Ann

Hi everyone, Over the last few weeks I seem to be getting a lot of red spots on ...

•3 years ago

Pip being stopped

Help, I have received a letter to state my pip is stopping as I no longer meet the conditions although nothing has changed since last assessment apart from...

Help, I have received a letter to state my pip is stopping as I no longer meet t...

•3 years ago

Dry Mouth advice please

Hello, has anyone got any recommendations for products that help tackle a dry mouth, especially during the night (I have CREST). I've tried Biotene toothpaste...

Hello, has anyone got any recommendations for products that help tackle a dry mo...

•3 years ago

COVID VACCINE

GREAT NEWS ABOUT THE VACCINE BUT DO WE STOP MYCOPHENOLATE BEFORE WE HAVE THE INJECTION AND HOW LONG BEFORE WE RESUME THE MEDICATION?

GREAT NEWS ABOUT THE VACCINE BUT DO WE STOP MYCOPHENOLATE BEFORE WE HAVE THE IN...

•3 years ago

Starting on Mycophenolate

Hi guys, i have diffuse systemic sclerosis with lung fibrosis and I have just been started on mycophenolate and hydroxychloroquine. Has anyone been on these...

Hi guys, i have diffuse systemic sclerosis with lung fibrosis and I have just be...

•3 years ago

Feeling like i have a fold or crease in my sock.

Hi i have Limited scleroderma . Recently i have been getting a lot of discomfort with the sole of my feet , taking off my shoes straitening my socks checking...

Hi i have Limited scleroderma . Recently i have been getting a lot of discomfor...

•3 years ago

any help does it look like scleroderma hand ?

hy can someone told me does my hyperpigmentation on my hand does it look like a scleroderma ? but my hand don’t slippery and dry

hy can someone told me does my hyperpigmentation on my hand does it look like a ...

•3 years ago

Educating GPs

Has anyone here had to actually teach their GP what their condition involves? Mine actually expressed surprise that SSc can involve the bowels/small intestine...

Has anyone here had to actually teach their GP what their condition involves? Mi...

•3 years ago

Oxygen & Diffuse Systemic Sclerosis

Hi all Well I have had a appointment today with my local Respiratory dept at the request of Mr Bierne (Leeds Rheumatology). I had 6 minute walk test whilst...

Hi all Well I have had a appointment today with my local Respiratory dept at th...

•3 years ago