Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

I get Raynaud's in my hands and they become numb and painful. But my feet also gets cold and painful during cold weather. So, I want to know whether people...

Starting two weeks before Christmas ‘23 I have had over eleven weeks in hospital and am now on total parenteral nutrition, scleroderma resulting in failed...

Finally after waiting about 10 months I have a rheumatology appointment later this month re my Raynaud's I will not want to be fobbed off off so I have started...

If you have Scleroderma then I would like to know how your Scleroderma is diagnosed? Was it confirmed from the blood test?

I came to know that Scleroderma can be caused from Silicosis---a lungs disease caused from the inhalation of silica dust. A similar lungs disease called...

I was diagnosed with Raynaurd's some 20 + years ago, recently in say last six months, I've woke up from sleeping on left side to not feeling anything in my...

Hi - my mum is taking mycophenolate for systemic sclerosis and pulmonary fibrosis. She has been taking a small dose for about 3 months. She has caught some bug...

I would like to know how people with scleroderma are able to earn money for living? Doing a job is not easy but I would like to know how such patients are able...

Hello everyone I am looking for some answers from you in regards to taking micophenalic acid and loosing weight. Ever since I start taking it I have loss...

Hi, I have suffered with Raynaud's since a teenager, my mum also suffered with it. I think? I may have some symptoms of Scleroderma, I have acid reflux, a...

I've had Scleroderma for 14 years. This summer I started having extreme pain going to the loo. I'm dealing with it with laxatives and a diet change (no...

I need to know whether the medications like Amlodipine, used for the management of Raynaud's can help someone to prevent Raynaud's attack in any cold...

Had scleroderma for 10 years suffer with calcinosis on hands just been put on nifedipine for better circulation xxxhaving problems with bleeding hemoroids when...

I would like to know how people get Scleroderma? I heard that Scleroderma can run on families but it can also happen from exposure to chemicals. Can someone...

hi , Just wondering people’s thoughts and experiences . It’s a last resort for me I’ve tried everything else . Is it useful for attacks ? Side effects ?...

Do you get Raynaud's in your hands without any change in color of your fingers from pink to white or blue? The palms of my hands turn white when they get cold...

Just an update to my earlier post, approximately a month ago, I have now received my blood test results which show nothing alarming or different so while I am...

Hey all just thought I would pop in and give you an update on my experience with iloprost infusions, so I had 5 days worth 6 hrs a day two weeks ago and my god...

Appreciate this could be a bit sensitive, so a warning in advance. As a relatively young person who was been recently diagnosed 2 years(?), and was completely...

Has anyone had a surgical procedure to relieve Raynaud’s pain? If not what do you do for pain?

Hi there, I've had scleroderma for just over 5 years now and have pulmonary hypertension and ILD (interstitial lung disease). Over the past few months my bowel...

just wanted to say a big thank you for all the support and advice I have received from this forum over the year. Reading about shared experiences has made a...

My daughter (6 years old) was diagnosed with Ststemic Scleroderma in August. Is there anybody else experiencing the same thing with their children?

I have one toe causing issues that my GP says is Raynaud's, but having suffered previously in my fingers, it feels like a very different issue to me. Does...

Has anyone found any relief for tinnitus. I lost some of my hearing a while ago and have been provided with hearing aids and believe this is all scleroderma...

I posted a couple of weeks ago about an appointment with Liver Specialist. This appointment was very productive and whilst at the hospital I got bloods done...

hi I have raynauds and been diagnosed with a mild connective tissue disorder. I’m currently on 50 mg sildenafil 3 times a day - morning, lunchtime and bedtime...

Hope everyone had a warm Xmas and Happy New Year to you all. I brought some fingerless gloves from a company called Turtle Doves. Perfect for my Raynaud's....

I have t been diagnosed yet, but have consult in January with a rheumatologist. Has anyone else experienced things that look similar? I get these red...

Hydroxychloroquine was added to my drug regime 3 weeks ago at a visit to the Rhematologist. I also had Tadalafil dosage increased and Famotidine added for my...