Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,409 posts

All posts for March 2016

systemic sclerosis

hi everyone ive had raynauds for about 5years now in december last year I developed ulcers on 2 toes and since then ive gone down hill ive had nifidepine & ...

hi everyone ive had raynauds for about 5years now in december last year I develo...

•8 years ago

Welcome to Scleroderma & Raynaud's UK (SRUK) community!

Welcome to the Scleroderma & Raynaud's UK (SRUK) HealthUnlocked community! SRUK will be formed on 1st April 2016 due to a merger between The Scleroderma...

Welcome to the Scleroderma & Raynaud's UK (SRUK) HealthUnlocked community! SRUK...

Partner•8 years ago

Kefir

ok so we only have kefir milk cultures here in the US...will this work for me to poop?there is no motillium no anything anyone has suggested...now they link...

ok so we only have kefir milk cultures here in the US...will this work for me to...

•8 years ago

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Dentist and Sjorgens Syndrome

I have just been for my 6 monthly check up. My usual dentist is on long term sick after a knee injury so they put me in with another dentist. I wasn't happy...

I have just been for my 6 monthly check up. My usual dentist is on long term si...

•8 years ago

Confused

Been back to see consultant, iloprost didn't make a jot of difference, tried steroids, no help, had ct of heart & lungs, both seem ok, now going for heart echo...

Been back to see consultant, iloprost didn't make a jot of difference, tried ste...

•8 years ago

I've had raynaulds for yrs now last year I started going into week long vomiting spells that landed me in the hosp for a week

Now they say I have scleroderma I've lost 15 lbs last month,my hands have blown up and it seems my rectal sphincter is not working right...any advice from...

Now they say I have scleroderma I've lost 15 lbs last month,my hands have blown ...

•8 years ago

New treatments research for Scleroderma

"We found that a common link exists between the fibrosis in different organs affected in scleroderma, specifically skin, lungs, GI tract, and peripheral blood...

"We found that a common link exists between the fibrosis in different organs aff...

•8 years ago

Sjogren's Syndrone/Raynauds Prognosis

HI there, I have suffered with Raynaud's since I was in my teens (now 45) and in 2007 I was diagnosed with Sjogren's syndrome. My symptoms are overreacting to...

HI there, I have suffered with Raynaud's since I was in my teens (now 45) and i...

•8 years ago

Systemic sclerosis sufferers.

Hi, Joanne here, Anybody available for a meet up for a coffee and a chat? Will be in town again on the 18th march, would be good if some of us could get...

Hi, Joanne here, Anybody available for a meet up for a coffee and a chat? Will b...

Joanne_Evans030365

•8 years ago

Scleroderma & Raynaud's UK (SRUK)

On the 1st April 2016, The Scleroderma Society and The Raynaud's & Scleroderma Association will be merging to form Scleroderma & Raynaud's UK (SRUK). Our...

On the 1st April 2016, The Scleroderma Society and The Raynaud's & Scleroderma A...

Partner•8 years ago

Advice

Hi, I'm new to all this and have just been diagnosed with systemic sclerosis and Raynaud's, never having heard of this or know anybody that does, please could...

Hi, I'm new to all this and have just been diagnosed with systemic sclerosis and...

Joanne_Evans030365

•8 years ago

How do you know if it's scleroderma?

I have Reynaud's, probably for a few years but most noticeable the last couple. Generally more of an annoyance than anything, and my doctor didn't seem too...

I have Reynaud's, probably for a few years but most noticeable the last couple. ...

•8 years ago

Scleroderma &raunurds

I have scleroderma & raynuards also copd& vascular disease I have stents in both legs and angioplasty balloons in both legs and blocked artery in my stomach...

I have scleroderma & raynuards also copd& vascular disease I have stents in both...

•8 years ago

Would like to raise funds for this organisation. Any information would be greatly appreciated

My mum has raynaud's & scleroderma. And has just had major surgery to have her large bowel removed as the blood supply stopped and her bowel died so she now...

My mum has raynaud's & scleroderma. And has just had major surgery to have her l...

•8 years ago

What is Raynaud's, I know but do you?

I've been having some discussions about what Raynauds Phenomenon is and what sufferers think it is and what it's related to? Would you say what you think it is...

I've been having some discussions about what Raynauds Phenomenon is and what suf...

•8 years ago