Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,410 posts

All posts for July 2023

Heated waistcoat

Hi all I know it is allegedly midsummer, but does anyone have a recommendation for a heated waistcoat? I see there are several on the market now.

Hi all I know it is allegedly midsummer, but does anyone have a recommendation f...

•9 months ago

Hypnotherapy for Primary Raynaud's

Hello, there are some websites that state that Hypnotherapy can help Raynaud's. There are some Hypnotherapists that offer treatments for Raynaud's which are...

Hello, there are some websites that state that Hypnotherapy can help Raynaud's. ...

•9 months ago

PICC LINE CATHETER FOR SYSTEMIC SCLEROSIS

Hello everyone, I have a question and a personal situation to share. I have been diagnosed with systemic sclerosis and have been undergoing treatment with...

Hello everyone, I have a question and a personal situation to share. I have bee...

•9 months ago

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PIP Review

Hi, Just wondering if anyone has had a PIP review form to complete. I am already stressing :( Any tips much appreciated. thanks Naila

Hi, Just wondering if anyone has had a PIP review form to complete. I am alrea...

•9 months ago

Royal Free Parking

Has anyone driven to the Royal Free? Is it easy to park? I have an appointment today and wondering if I should risk it.

Has anyone driven to the Royal Free? Is it easy to park? I have an appointmen...

•9 months ago

RNA polymerase iii positive question

Hi everyone. I am 34 years old and have had raynauds since I was 18. I had a positive RNA polymerase iii test 5 years ago and again this year. I do not have...

Hi everyone. I am 34 years old and have had raynauds since I was 18. I had a p...

•9 months ago

Trying holistic nutrition approach for scleroderma

I was diagnosed last year with scleroderma, mainly linear and morphea. Now under Royal Free. Have tried tacrolemus cream which was unsuccessful....

I was diagnosed last year with scleroderma, mainly linear and morphea. Now unde...

•9 months ago

Hypertension and Amlodipine

Hi, community. I have a (new) diagnosis of hypertension, which means yet another tablet to add to my cocktail. The proposed first line treatment,...

Hi, community. I have a (new) diagnosis of hypertension, which means yet anothe...

•9 months ago

Trying holistic Nutrition Approach for scleroderma

I was diagnosed with scleroderma last year, mainly linear and morphea. Am now under Royal Free Hospital, where I tried tacrolemus cream which didn’t work. Saw...

I was diagnosed with scleroderma last year, mainly linear and morphea. Am now un...

•9 months ago

Pain in calves while travelling

Hi all, I have Scleroderma and Raynauds. I'm increasing finding long car journeys very uncomfortable. My calves swell and are painful if I am sitting in the...

Hi all, I have Scleroderma and Raynauds. I'm increasing finding long car journey...

•9 months ago

shingles

hi all just wondering if anyone has any tips for managing shingles? So sore and uncomfortable 🥴

hi all just wondering if anyone has any tips for managing shingles? So sore and ...

•9 months ago

any advice welcome

I’m sorry to bother you all but feeling a bit lost 😞 . The ongoing saga of the waking headache continues as it approaches its 4 year birthday 🤦‍♀️. I Saw a...

I’m sorry to bother you all but feeling a bit lost 😞 . The ongoing saga of the...

•10 months ago

❗New Support Groups in Wales and Bedfordshire🤝

We are pleased to announce that two new support groups will be starting in September. They will start out as online meetings initially....

We are pleased to announce that two new support groups will be starting in Septe...

Partner•10 months ago

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Peripheral Neuropathy & Driving

Hi, Community. I am 72 and have Lupus, Raynaud's, Erythromelalgia, Peripheral Neuropathy and Muscular Dystrophy, Type 1. Neurophysiological testing in...

Hi, Community. I am 72 and have Lupus, Raynaud's, Erythromelalgia, Peripheral...

•10 months ago

Infertility with Scleroderma & Raynauds?

Hi all, I was diagnosed with limited systemic sclerosis two years ago. Also have severe Raynauds and Hashimotos. I've recently been told that my eggs were so...

Hi all, I was diagnosed with limited systemic sclerosis two years ago. Also have...

•10 months ago

aplastic anemia

Hello, I have got to know a lady in her early 70s who also has Scleroderma. She has aplastic anemia. She has 3 bags of blood per week, her number can go...

Hello, I have got to know a lady in her early 70s who also has Scleroderma. ...

•10 months ago

Rifaximin

Hi , I have been prescribed Rifaximin for SIBO, 200mg ,3 times a day for 2 weeks to see if it helps with my symptoms.I know others have been prescribed this...

Hi , I have been prescribed Rifaximin for SIBO, 200mg ,3 times a day for 2 week...

•10 months ago