Vestibular disease: Has anyone been... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,823 members5,405 posts

Vestibular disease

4 Replies

Has anyone been diagnosed with vestibular disease as a result of scleroderma? I just have and would like to know if anyone else has and if any medication is helping. Mine is not Menieres.

4 Replies
dojurols profile image
dojurols

I have autoimmune ear disease manifesting as endolymphatic hydrops, aka Meniere's.

I was diagnosed with systemic sclerosis about 6 years ago, ear has been affected for about 3 years with the MD happening in january this year. Medication mainly to address the MD and gut probs. Not fun, had to give up work.

dojurols profile image
dojurols

My MD meds reduce the swelling and fluid build up in the inner ear and work well in conjunction with diet and careful living.

sylvana profile image
sylvana

I have Menieres and take betahistine which doesn't seem to help much in my case..

.but I've heard good reports so its worth a try. I've had Menieres and Scleroderma for about 20 years. I asked my consultant if I might have autoimmune ear disease instead of Menieres and he said that the treatment was the same in both cases. Take care.

Thank you very much Sylvana for your advice. Also dojurol's. handy to hear other's advice and experiences. Many thanks indeed.

You may also like...

Chronic Kidney Disease

Hi, has anyone else been diagnosed with CKD in relation to Scleroderma or connective tissue...

Anyone continually being diagnosed with more and more auto-immune diseases?

I have been diagnosed over a lengthy period of time with Mixed Connective Tissue Disease, Morphea...

Connective Tissue Disease?

systemic scleroderma. So, is this a progression or a different disease altogether? Also, has anyone...

Undifferentiated Connective Tissue Disease, and I think The have Lupus!

my GP has ceased the Plaquenil because she believes it has caused the rashes, which it has been...

Disease flare post vaccinations

Anyone else just felt sicker generally a few weeks after the second jab (AZ)? I had loads of weird...