Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for April 2019

Finger Nail Changes

Can anybody tell me if my finger nails look the correct colour ? They are all the same with a white patch in the middle I have ridges going down them and some...

Can anybody tell me if my finger nails look the correct colour ? They are all th...

Aleigh44

•5 years ago

7 Replies

Keep reading others suffering in same as me so connect with people’s problems...

Hi I have all same problems I’m having so much difficult can’t walk little activity make me breathless always go to emergency hospital outpatient emergency...

Hi I have all same problems I’m having so much difficult can’t walk little activ...

Nurmohammed

•5 years ago

1 Reply

Weakly positive

Can some one explain what a weakly positive means I have a weakly positive for Scleroderma/ Myositis although my muscle biopsy came back normal I have Raynauds...

Can some one explain what a weakly positive means I have a weakly positive for S...

160376

•5 years ago

2 Replies

Want to take advantage of all our features? Just log in!

Still not sure?

So you may have read my previous post. My Dr queried crest which after bloods another dr told me everything came back normal but probably Raynauds. The...

So you may have read my previous post. My Dr queried crest which after bloods an...

Frozen18

•5 years ago

1 Reply

Constant problems vessels in fingers

Sorry but this also and whit lumps under skin and real bad circulation and pain and in feet. Also fingers bend sidewYs or stick together shake uncontrollably...

Sorry but this also and whit lumps under skin and real bad circulation and pain ...

Hidden

•5 years ago

4 Replies

Told this is fibro I believe raynauds?

This with many other symptoms

Hidden

•5 years ago

3 Replies

lacrimal gland retention cyst

Hello all, does anyone know if there is a connection between autoimmune disease and blocked tear ducts due to the development of a cyst within the lacrimal...

Hello all, does anyone know if there is a connection between autoimmune disease ...

Clm1978

•5 years ago

1 Reply

Mums recent diagnosis

Hi Everyone, I’m new here. My mum was diagnosed with systemic sclerosis 8 months to 1 year ago. She was relieved to finally have a diagnosis for the symptoms...

Hi Everyone, I’m new here. My mum was diagnosed with systemic sclerosis 8 month...

OhScarlett

•5 years ago

9 Replies

Numb toe

Hi I have secondary Raynauds the other day thr toe next to my big toe one my right foot went numb for ages then it came back to life but it began to be painful...

Hi I have secondary Raynauds the other day thr toe next to my big toe one my rig...

160376

•5 years ago

3 Replies

Terrific hospital appointment

I had an appointment with a rheumatologist at the local hospital today. I wasn't expecting much after the last guy who was not that good. But this lady is...

I had an appointment with a rheumatologist at the local hospital today. I wasn't...

Inamoment

•5 years ago

8 Replies

Teeth trouble

Due to scleroderma and sjorgon syndrome my back teeth have cracked and i have lost 5 from the top row.i am self conscious of this and am thinking of getting...

Due to scleroderma and sjorgon syndrome my back teeth have cracked and i have lo...

irishgal

•5 years ago

7 Replies

Raynaud’s help please new to site they kept telling me I had gout , nope now doctor says Raynaud’s

So for years they said I had gout with normal Uric acid results now they finally say Raynaud’s I feel like I have been walking on blisters on the bottom of my...

So for years they said I had gout with normal Uric acid results now they finally...

Brendab7869

•5 years ago

3 Replies

Has any one had toe ulcers

Hi before seeing a Rheumatologist privately I was fobed off by my doctors I am 64 had Raynauds for two years in my feet so just told by doctor to wear warm...

Hi before seeing a Rheumatologist privately I was fobed off by my doctors I am 6...

160376

•5 years ago

6 Replies

Advice

Anyone with Primary Raynauds also have vitamin D deficiency, any ideas for supplements besides fultium d3 which I have prescribed.. TIA x

Anyone with Primary Raynauds also have vitamin D deficiency, any ideas for suppl...

BertieB_280616

•5 years ago

3 Replies

Does anyone have burning feet especially at night?

This is my first post. Last year my Dr diagnosed Raynaud's, then this month lupus, then rheumatologist labs came back scleroderma. Does anyone have burning...

This is my first post. Last year my Dr diagnosed Raynaud's, then this month lupu...

Jelly1bean

•5 years ago

13 Replies

How to get diagnosed?

Hi I just need some advice. I’ve been ill for about 16 years, progressively things have got worse. About 6 years ago they discovered a positive ANA, 1:300,...

Hi I just need some advice. I’ve been ill for about 16 years, progressively thin...

flowflow

•5 years ago

12 Replies

Where pain comes from ?

Hi everyone I’ve had scleroderma since 2016 after cyclophosphamide I went on mycophenolate .I’m just wondering what causes all the pain and is there anything I...

Hi everyone I’ve had scleroderma since 2016 after cyclophosphamide I went on myc...

Simon71

•5 years ago

2 Replies

Has anyone experienced dental problems from Nephedipine?

Has anyone experienced dental problems with Nephedipine? I had pain in a tooth that had already had a root canal. The endodontist drilled though the crown and...

Has anyone experienced dental problems with Nephedipine? I had pain in a tooth t...

Berniz

•5 years ago

2 Replies

Informal chilled out meeting 28.07.19

we have a date and venue for our next meeting in Birmingham. It's on Sunday 28th July 2019 at 11.30am. It'll be in the restaurant of John Lewis, 2 Station...

we have a date and venue for our next meeting in Birmingham. It's on Sunday 28th...

avtargill31

•5 years ago

Be the first to reply

Update on Nifedipine

Hi all, Thank you to everyone who responded to my previous post. Just to clarify it’s the Bayer Adalat Nifedipine that is no longer available. I’ve now been...

Hi all, Thank you to everyone who responded to my previous post. Just to clarify...

M0nt1

•5 years ago

4 Replies

Burning feet as well as cold?

Does anyone diagnosed with Raynaud's also suffer from burning feet? This is my worst symptom - it stops me going anywhere hot, or even warm, if affects sleep,...

Does anyone diagnosed with Raynaud's also suffer from burning feet? This is my w...

Gillmarg

•5 years ago

11 Replies

how to gain weight

Hi I am a scleroderma patient long time ago ,I lost almost 22 kilos and still losing weight ,my tummy is always bloating and I have diahrrea every day, mal...

Hi I am a scleroderma patient long time ago ,I lost almost 22 kilos and still lo...

halaalysaleh

•5 years ago

4 Replies

Newly diagnosed any advice would be very much appreciated.

I was diagnosed 2 weeks ago with crest disease. Today has by far been my worst. Apart from the fatigue and awful brainfog. My.hands are cold and so painful....

I was diagnosed 2 weeks ago with crest disease. Today has by far been my worst. ...

Angcav

•5 years ago

9 Replies

Article on Nifedipine

Here’s the article about discontinuing Nifedipine. I’ll try and find out more tomorrow

Here’s the article about discontinuing Nifedipine. I’ll try and find out more to...

M0nt1

•5 years ago

Be the first to reply

Nifedipine alternatives ?

Hi, can anyone help please. I have been using nifedipine 5mg 3 times a day for about a year to manage my Raynauds. However the pharmacy can no longer get these...

Hi, can anyone help please. I have been using nifedipine 5mg 3 times a day for a...

M0nt1

•5 years ago

30 Replies

Advice needed

I haven’t posted on here for such a long time! It’s been a case of get on with it I think 😂. However in need a bit of chat as I’ve just been referred to...

I haven’t posted on here for such a long time! It’s been a case of get on with i...

GillB46

•5 years ago

10 Replies

Please help if you can. What is this?

Two dermatologists have looked at my hands and prescribed steroid creams that had no positive effect. I recently saw a rheumatologist and she was baffled. Now,...

Two dermatologists have looked at my hands and prescribed steroid creams that ha...

ChiBree

•5 years ago

6 Replies

Informal chilled out meeting 14.04.19 (reminder)

Hi folks just a gentle reminder that our meeting is next Sunday. If you need any info, please feel free to ask. I have copied and pasted message for ease. we...

Hi folks just a gentle reminder that our meeting is next Sunday. If you need any...

avtargill31

•5 years ago

7 Replies

Raynaud’s feet

Does anyone have Raynaud’s that primarily affect their feet? My fingers and nose also get very cold and take forever to warm but don’t do the color change.

Does anyone have Raynaud’s that primarily affect their feet? My fingers and nose...

Vc06

•5 years ago

17 Replies

How does Venlafaxine and amitriptyline affect Raynauds

Has anyone had experience of using low level venlafaxine and/or amitriptyline 10mg? Did you find it made your raynaud symptoms worse initially? If so did this...

Has anyone had experience of using low level venlafaxine and/or amitriptyline 10...

Cloudsurfer

•5 years ago

6 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for April 2019

Finger Nail Changes

Keep reading others suffering in same as me so connect with people’s problems...

Weakly positive

Still not sure?

Constant problems vessels in fingers

Told this is fibro I believe raynauds?

lacrimal gland retention cyst

Mums recent diagnosis

Numb toe

Terrific hospital appointment

Teeth trouble

Raynaud’s help please new to site they kept telling me I had gout , nope now doctor says Raynaud’s

Has any one had toe ulcers

Advice

Does anyone have burning feet especially at night?

How to get diagnosed?

Where pain comes from ?

Has anyone experienced dental problems from Nephedipine?

Informal chilled out meeting 28.07.19

Update on Nifedipine

Burning feet as well as cold?

how to gain weight

Newly diagnosed any advice would be very much appreciated.

Article on Nifedipine

Nifedipine alternatives ?

Advice needed

Please help if you can. What is this?

Informal chilled out meeting 14.04.19 (reminder)

Raynaud’s feet

How does Venlafaxine and amitriptyline affect Raynauds

Search posts

Pinned Posts

Latest poll

How do you pronounce Raynaud's? Listen to English Cambridge Dictionary: http://bit.ly/2DmGhmz Vote now. If other then reply below.

Topics

Archive