Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,963 members • 5,488 posts

All posts for July 2024

Anticoagulants

Anyone had experience with being offered anticoagulants? With me for atrial fibrillation. I'm worried about the bleeding risk of course.

Anyone had experience with being offered anticoagulants? With me for atrial fibr...

•24 days ago

Hepatic liver

so I have been to London again to see the scleroderma clinic to find that still a year after my gall bladder was removed my liver is still showing no signs of...

so I have been to London again to see the scleroderma clinic to find that still ...

•24 days ago

Nifedipine brand?

Hi folks, does the brand of nifedipine matter? I see on some NHS prescribing guidelines that the same brand should be supplied if possible, eg Adapine,...

Hi folks, does the brand of nifedipine matter? I see on some NHS prescribing gu...

•25 days ago

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Disability benefits?

Hi! As a newly diagnosed scleroderma patient, do you know if anyone who has this illness is entitled to any disability benefits? Like if we can apply any form...

Hi! As a newly diagnosed scleroderma patient, do you know if anyone who has this...

•28 days ago

PM Scl 100

Hello lovely peopleGot my blood results back from rheumatology today, they were looking for scleroderma because of my worsening Raynaud's and finger ulcers....

Hello lovely peopleGot my blood results back from rheumatology today, they were ...

•30 days ago

systematic sclerosis

My 16 year old daughter has been recently diagnosed with Systematic Sclerosis. She is struggling to cope with all the changes in her body and lifestyle. Her...

My 16 year old daughter has been recently diagnosed with Systematic Sclerosis. S...

•1 month ago

Why did this emergency happen and how to prevent again?

My wife (66) has diffuse systemic scleroderma with interstitial lung disease/fibrosis plus Raynaud's and GERD. Diagnosed in January but we are sure she's had...

My wife (66) has diffuse systemic scleroderma with interstitial lung disease/fib...

•1 month ago

Feeling cold all the time

Hi, I have scleroderma and reynauds and while I am used to having cold hands and feet of late I am very cold all over, even my core. I was wondering if I...

Hi, I have scleroderma and reynauds and while I am used to having cold hands and...

•1 month ago

any ideas ?

hey amazing people This is bit out there but I know someone in the forum normally comes up trumps 🙂. Last week I had an overnight watch from hospital to...

hey amazing people This is bit out there but I know someone in the forum normal...

•1 month ago

Positive Tests no skin involvement

I received a very high positive (+++) SCL70 which stated scleroderma/systemic sclerosis. GP has referred me to rheumatology which I will likely be waiting...

I received a very high positive (+++) SCL70 which stated scleroderma/systemic sc...

•1 month ago

Effective lotion for softening skin

Hello lovely people! I just want to thank everyone who has replied to my first post about me being a newly diagnosed Scleroderma patient. Grateful for all your...

Hello lovely people! I just want to thank everyone who has replied to my first p...

•1 month ago

feeling anxious and alone

hey all I had my rhemotologist appointment this week after many months of my latest issue swelling in joints knees feet ankles wrists and fingers so full blood...

hey all I had my rhemotologist appointment this week after many months of my lat...

•1 month ago

Newly diagnosed scleroderma

Hello. I just got diagnosed with Diffused Scleroderma and now my Rheumatologist wanted me to start Mycophenolate. So devastating to hear my diagnosis. I suffer...

Hello. I just got diagnosed with Diffused Scleroderma and now my Rheumatologist ...

•1 month ago

freezyfeet

Nothing seems to help with cold feet except my heated mat and gloves for my hands.

Nothing seems to help with cold feet except my heated mat and gloves for my han...

•1 month ago

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Which hospitals carry out Digital Botox Treatments?

Hi all, during a recent consultation with my vascular consultation, he advised because my Raynaud's is so severe all year round, I can't keep putting myself...

Hi all, during a recent consultation with my vascular consultation, he advised b...

•2 months ago

Does rhis sound like scleroderma symptoms?

Hi all, I was actually on this form under a different user name but for some reason couldn't get access to this group with the old user name. Anyhow, long...

Hi all, I was actually on this form under a different user name but for some rea...

•2 months ago

What to expect, medication etc - First appointment since Systemic Sclerosis diagnosis

Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca...

Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then Decemb...

•2 months ago

Nifedipine - how do YOU take it?

Hi! The rheumatologist I last saw has sent a vague instruction to my GP recommending that I take nifedipine “in the winter months”, but not specifying...

Hi! The rheumatologist I last saw has sent a vague instruction to my GP recomme...

•2 months ago

Pentoxyfiline

hi I’ve been prescribed Trental 400 mg ( pentoxyfiline) for firearm pain and hand pain associated with Raynauds. The team who prescribed it have discharged me...

hi I’ve been prescribed Trental 400 mg ( pentoxyfiline) for firearm pain and ha...

•2 months ago