Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,408 posts

All posts for April 2013

Sunny Bristol! :)

Another gloriously sunny - no mittens - day in Bristol. Time to top up on free vitamin D. Summer is on it's way! Have a good day everyone :)

Another gloriously sunny - no mittens - day in Bristol. Time to top up on free v...

Skwiglee

•11 years ago

14 Replies

I don't understand anything about this condition and cant seem to find any answers can anyone please help cos its driving me mad..

I had never heard of Raynauds til I was told I had it,about 4 years ago i was 36 when I got it, I went away for a weekend and for no reason 3 of my fingers...

I had never heard of Raynauds til I was told I had it,about 4 years ago i was 36...

TanyaSmith

•11 years ago

10 Replies

Advice needed re: talking to my GP - any advice gratefully received

Hi About 2 weeks ago the Doctor I think agreed I have Raynauds. As well as the hands/feet symptoms, I had recently been experiencing blue lips and numbing...

Hi About 2 weeks ago the Doctor I think agreed I have Raynauds. As well as t...

niky257

•11 years ago

11 Replies

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MANY CONGRATULATIONS TO ANNE AND THE RSA FOR REACHING THE COOL MILLION

Hi everyone http://raynauds.org.uk/press/million-thanks-from-anne-mawdsley-mbe I have just seen on the raynauds.org.uk website that Anne, the founder of...

Hi everyone http://raynauds.org.uk/press/million-thanks-from-anne-mawdsley-mb...

living-the-dream-ssc-ray

•11 years ago

15 Replies

New Diagnosis

Hi everyone I have only just joined this great forum and can really empathise with niky257 and graygirl1 about the length of time it takes to get a proper...

Hi everyone I have only just joined this great forum and can really empathise wi...

newbe

•11 years ago

16 Replies

i have raynauds but my hand stay dis coloured all the time with my knuckes haveing a whit line across on both hands? is this normal ?

kmartin

•11 years ago

1 Reply

I have Rarnauds and am worrying it might be the secondary type, Doctor doesn't seem to be so concerned.

After the cold snap just gone I woke up one morning unable to move my fingers or hands with pains extending along both forearms- went on all day then relaxed...

After the cold snap just gone I woke up one morning unable to move my fingers or...

glidewell

•11 years ago

7 Replies

University project on design for people with hand or wrist problems

Hi back in October I completed a survey ask people what kitchen tasks they found most difficult, form these findings it was determined the most people found...

Hi back in October I completed a survey ask people what kitchen tasks they found...

timby21

•11 years ago

5 Replies

Pain

The pain in my knees today is making me feel sick been bad for a couple of weeks now. I can only take paracetamol as I have kidney problems. My wife thinks...

The pain in my knees today is making me feel sick been bad for a couple of weeks...

buryboy

•11 years ago

5 Replies

Song title for the Scleroderma and Raynauds experience ;)

Hi everyone, since I try and bring the party into my eskimo cave at the weekend I was thinking of a song to describe the Scleroderma and Raynauds experience...

Hi everyone, since I try and bring the party into my eskimo cave at the weeken...

living-the-dream-ssc-ray

•11 years ago

3 Replies

Fluoxetine

anyone successfully treated Raynauds with the use of Fluoxetine?

cvdd1983

•11 years ago

15 Replies

First step

Hi all I've finally been diagnosed as having Raynauds today after struggling to get a "routine" appointment with our GP. I guess I've always known I've got...

Hi all I've finally been diagnosed as having Raynauds today after struggling to...

Hidden

•11 years ago

5 Replies

Whoops

Whoops, i forgot to tell the dr that i have problems with my feet, should i eait to tell the rheumatologist?

Whoops, i forgot to tell the dr that i have problems with my feet, should i eait...

littlemissshy

•11 years ago

4 Replies

Cramp

I get really bad cramp in my toes. Does anybody else suffer from cramp.

buryboy

•11 years ago

12 Replies

Yes, yes, i know, i ask a lot of questions, but if i dont ask i wont ever know. So please answer!!!!

Does anyone get a burning sensation when you are having your hair straightened? I do when my mum does it, as most of the time my arms become tired 2 mins in!...

Does anyone get a burning sensation when you are having your hair straightened? ...

littlemissshy

•11 years ago

7 Replies

Question

Does anyone elses arms ache when brushing hair? I brush my hair in the morning and after less than a minute my arm aches...help please??

Does anyone elses arms ache when brushing hair? I brush my hair in the morning a...

littlemissshy

•11 years ago

7 Replies

Purple hands....and school

Hi, can someone help me? I obviously have raynauds but i have it in my hands and feet, i am still in school which is a problem i have to overcome everyday. I...

Hi, can someone help me? I obviously have raynauds but i have it in my hands and...

littlemissshy

•11 years ago

10 Replies

Confused about digital scleroderma/sclerosis, what symptoms would you have?

I have Raynauds, SLE, APS and Sjorgens. I recently saw a new registrar who trained under Prof Caroline Gordon. She would like to change my diagnosis to...

I have Raynauds, SLE, APS and Sjorgens. I recently saw a new registrar who tra...

dizzy2

•11 years ago

3 Replies

Is my raynauds getting worse?

I was diagnosed aged10 with primary raynauds when a few of my finger joints looked out of shape and my hands and feet were always freezing. Apart from the...

I was diagnosed aged10 with primary raynauds when a few of my finger joints look...

Laulau

•11 years ago

3 Replies

More antibiotics :(

Ive just had the results from the swab of the calcinosis lump on my left knee and have to take more antibiotics boo hoo ! Having had almost a 2 week antibiotic...

Ive just had the results from the swab of the calcinosis lump on my left knee an...

living-the-dream-ssc-ray

•11 years ago

17 Replies

Hi - I'm new , a bit muddled and confused, but definitely not neurotic!!

Hi. I'm new, so would like to say hello to everyone. I'm 40 (actually, nearly 41!) and I have been diagnosed with Raynauds - I had numerous blood tests...

Hi. I'm new, so would like to say hello to everyone. I'm 40 (actually, nearly ...

niky257

•11 years ago

12 Replies

help please!

i have raynauds, but i have a lot of pain alongside the usual pain which accompanies the colour changes in my hands and feet. these pais include sharp pains...

i have raynauds, but i have a lot of pain alongside the usual pain which accompa...

littlemissshy

•11 years ago

20 Replies

Finally People who are like me

Hi everyone, I am new to this site and I am so grateful to Nicola Whitehill who told me about this site. I have suffered for years with Raynaud's but have only...

Hi everyone, I am new to this site and I am so grateful to Nicola Whitehill who ...

plum3010

•11 years ago

12 Replies

Intro by new reynards sufferer and IVF question

Hi all, My name is Dan and i am 39 and have just been diagnosed with primary reynards, I have it in my fingers only so far which went white especially...

Hi all, My name is Dan and i am 39 and have just been diagnosed with prim...

Hidden

•11 years ago

3 Replies

What a beautiful day!

Hi everyone! Just a quickie! It's a glorious spring day today in Bristol. I had a lovely comment from my hairdresser this morning. He remarked on how my...

Hi everyone! Just a quickie! It's a glorious spring day today in Bristol. I h...

Skwiglee

•11 years ago

12 Replies

Primary Reynauds &Trying to Conceive - conflcting info on difficulties that can be had. Anyone have any first hand experience or opinions?

I am 35 and was diagnosed with primary reynauds about 5 years ago. I suffer with the usual cold hands and feet and my finger joints used to swell very...

I am 35 and was diagnosed with primary reynauds about 5 years ago. I suffer with...

ickle-katie

•11 years ago

7 Replies

Illoprost infusion

Hi I'm due to start illoprost infusion soon, have systemic scleroderma etc , wondering how others thought to the out come of it if this don't work been told...

Hi I'm due to start illoprost infusion soon, have systemic scleroderma etc , won...

Dka48

•11 years ago

31 Replies

Can anyone recommend a mobile phone with a touchscreen that actually works if you have Raynaud's?

I find that mobiles with a touch screen keypad don't work for me, this is probably because they work due to heat from your fingertips so assume it's down to...

I find that mobiles with a touch screen keypad don't work for me, this is probab...

SuzanneCC

•11 years ago

11 Replies

OMG...cant believe the dr said that!!!

went to my rheumy apt on Friday. didn't see my Rheumatologist but some other dr. I mentioned that I wasn't eating normal sized meals and was losing weight,...

went to my rheumy apt on Friday. didn't see my Rheumatologist but some other dr....

Kerry72

•11 years ago

12 Replies

Link to an American study looking at environmental conditions and scleroderma diagnosis

http://www.boston.com/news/local/massachusetts/articles/2010/01/25/study_says_genetics_not_environment_may_be_cause_of_s_boston_scleroderma_cluster/

http://www.boston.com/news/local/massachusetts/articles/2010/01/25/study_says_ge...

living-the-dream-ssc-ray

•11 years ago

4 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for April 2013

Sunny Bristol! :)

I don't understand anything about this condition and cant seem to find any answers can anyone please help cos its driving me mad..

Advice needed re: talking to my GP - any advice gratefully received

MANY CONGRATULATIONS TO ANNE AND THE RSA FOR REACHING THE COOL MILLION

New Diagnosis

i have raynauds but my hand stay dis coloured all the time with my knuckes haveing a whit line across on both hands? is this normal ?

I have Rarnauds and am worrying it might be the secondary type, Doctor doesn't seem to be so concerned.

University project on design for people with hand or wrist problems

Pain

Song title for the Scleroderma and Raynauds experience ;)

Fluoxetine

First step

Whoops

Cramp

Yes, yes, i know, i ask a lot of questions, but if i dont ask i wont ever know. So please answer!!!!

Question

Purple hands....and school

Confused about digital scleroderma/sclerosis, what symptoms would you have?

Is my raynauds getting worse?

More antibiotics :(

Hi - I'm new , a bit muddled and confused, but definitely not neurotic!!

help please!

Finally People who are like me

Intro by new reynards sufferer and IVF question

What a beautiful day!

Primary Reynauds &Trying to Conceive - conflcting info on difficulties that can be had. Anyone have any first hand experience or opinions?

Illoprost infusion

Can anyone recommend a mobile phone with a touchscreen that actually works if you have Raynaud's?

OMG...cant believe the dr said that!!!

Link to an American study looking at environmental conditions and scleroderma diagnosis

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