Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

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scleroderma, egg harvesting, surrogacy(?) and more

Appreciate this could be a bit sensitive, so a warning in advance. As a relatively young person who was been recently diagnosed 2 years(?), and was completely...

Appreciate this could be a bit sensitive, so a warning in advance. As a relativ...

Nw6London

•24 days ago

6 Replies

Diagnosis of Scleroderma using the ACR criteria

According to the diagnostic criteria of the American College of Rheumatology, someone will be considered to have Scleroderma if the sum of the scores for...

According to the diagnostic criteria of the American College of Rheumatology,...

dacharya

•1 month ago

2 Replies

SRUK Webinar - Physiotherapy for Scleroderma

Hi everyone! We will be hosting a webinar tomorrow on Physiotherapy for Scleroderma with William Gregory, a Consultant Physiotherapist working in...

Hi everyone! We will be hosting a webinar tomorrow on Physiotherapy for Scler...

SRUKadmin

Partner•4 months ago

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Disability benefits?

Hi! As a newly diagnosed scleroderma patient, do you know if anyone who has this illness is entitled to any disability benefits? Like if we can apply any form...

Hi! As a newly diagnosed scleroderma patient, do you know if anyone who has this...

luna_lovegood

•6 months ago

6 Replies

Effective lotion for softening skin

Hello lovely people! I just want to thank everyone who has replied to my first post about me being a newly diagnosed Scleroderma patient. Grateful for all your...

Hello lovely people! I just want to thank everyone who has replied to my first p...

luna_lovegood

•6 months ago

5 Replies

Newly diagnosed scleroderma

Hello. I just got diagnosed with Diffused Scleroderma and now my Rheumatologist wanted me to start Mycophenolate. So devastating to hear my diagnosis. I suffer...

Hello. I just got diagnosed with Diffused Scleroderma and now my Rheumatologist ...

luna_lovegood

•6 months ago

8 Replies

collagen

I’m wondering if anyone takes a collagen supplement for your skin (wrinkles) I’m not sure if anyone with scleroderma is able to…does it hurt us more ? thanks...

I’m wondering if anyone takes a collagen supplement for your skin (wrinkles) I’m...

Maxamillions

•10 months ago

4 Replies

Raynauds

Dr diagnosed me in 1994 with Raynauds said it’s usually a prelude to later disease like, arthritis or scleroderma I have both now. Along with numerous other...

Dr diagnosed me in 1994 with Raynauds said it’s usually a prelude to later disea...

Oldbones88

•1 year ago

6 Replies

Gut and hands!

I would say these are my two major symptoms. I started suffering from acute indigestion in late summer 2018 and the GP prescribed Omeprazole. Only a few...

I would say these are my two major symptoms. I started suffering from acute ind...

cheeselover342

•1 year ago

8 Replies

Sorry for myself

I have had a lousy cold for over a week,endless runny nose, sneezing and coughing( it's not COVID) My dry eyes are getting worse the hospital want to put...

I have had a lousy cold for over a week,endless runny nose, sneezing and coughin...

KathleenMary

•1 year ago

12 Replies

❗New Support Groups in Wales and Bedfordshire🤝

We are pleased to announce that two new support groups will be starting in September. They will start out as online meetings initially....

We are pleased to announce that two new support groups will be starting in Septe...

SRUKadmin

Partner•2 years ago

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📊Help SRUK Help You: Take Part in our Patient Registry Survey

SRUK have launched a Patient Registry Survey, which asks for your feedback on how you might feel about sharing health information. A patient registry would:...

SRUK have launched a Patient Registry Survey, which asks for your feedback on ho...

SRUKadmin

Partner•2 years ago

1 Reply

Interesting Podcast series: Scleroderma Education Podcast - FREE

Hi all, I stumbled upon this series and thought I'd share. A Podcast series discussing scleroderma(!) between medics and patients. Each episode focuses on a...

Hi all, I stumbled upon this series and thought I'd share. A Podcast series dis...

Nw6London

•2 years ago

5 Replies

Swollen painful fingers, systemic sclerosis

Hi all, Wondered if anyone here suffers the same symptoms in their fingers/hands/arms? For nearly a year my fingers are swollen/puffy, which makes them...

Hi all, Wondered if anyone here suffers the same symptoms in their fingers/hand...

andy7551

•2 years ago

29 Replies

Any experience with Phototherapy / UVB / UVA1 ?

Hi all - my main problem is swollen puffy sore fingers that won't flex - I've experienced this since January when all my fingers (except 1 thumb) swelled up...

Hi all - my main problem is swollen puffy sore fingers that won't flex - I've e...

andy7551

•2 years ago

2 Replies

Tadalafil

I have been using Tadalafil for 2 months now. I too was afraid of the side effects but went forward and am so happy I did. I have Pulmonary Hypertension,...

I have been using Tadalafil for 2 months now. I too was afraid of the side effe...

klee1951

•3 years ago

1 Reply

Because Y is a crooked letter that cannot be straightened....

Happy Fri-yay to all my fellow Warriors!! Today I want to tackle the subject of parenting when suffering with Scleroderma and other autoimmune diseases. I...

Happy Fri-yay to all my fellow Warriors!! Today I want to tackle the subject of...

Vicrum88

•4 years ago

3 Replies

Covid Vaccine Experience! Sometimes you've just got to put your big girl pants on and be brave xx

Hi everyone! I've noticed recently that there are a lot of posts on here asking about people's experiences with the covid vaccine. It's clear to me that a lot...

Hi everyone! I've noticed recently that there are a lot of posts on here asking...

Vicrum88

•4 years ago

10 Replies

Kitchen Witch Remedies or Pharmaceutical? 420 VS Painkillers?

Hi Everyone!! Firstly, Happy Fri-yay!! I hope everyone is keeping as safe and well as humanly possible. Today I've been reading up on self medicating while...

Hi Everyone!! Firstly, Happy Fri-yay!! I hope everyone is keeping as safe and ...

Vicrum88

•4 years ago

3 Replies

Can't get off this carousel!!

Hi all! It's not my style to show anger in my posts but today I can't help my frustration. I feel like I'm going round and round and round in circles just...

Hi all! It's not my style to show anger in my posts but today I can't help my f...

Vicrum88

•4 years ago

18 Replies

When The Pity Party Goes On Parade

Hey everyone! It's only me again, the Human Giraffe! Back with another update and of course - Questions!! It's been a big week for me this week! I finally had...

Hey everyone! It's only me again, the Human Giraffe! Back with another update an...

Vicrum88

•4 years ago

Be the first to reply

Freaky Freckles and Mysterious Moles?

Hey everyone, it's just me again! Today I'm looking for some advice and guidance. I don't even know what topic to put this post under because it's a bit of an...

Hey everyone, it's just me again! Today I'm looking for some advice and guidanc...

Vicrum88

•4 years ago

3 Replies

Illness vs Vanity.....

As a new recruit to the Scleroderma world, I'm finding new questions I want to ask every single day. Today's question? - When illness and vanity clashes, how...

As a new recruit to the Scleroderma world, I'm finding new questions I want to a...

Vicrum88

•4 years ago

10 Replies

Newbie to Scleroderma

Hello!! I'm a newbie and looking to make contact with people who have similar issues to my own! I'm constantly cold, I have a brown foot due to...

Hello!! I'm a newbie and looking to make contact with people who have similar is...

Vicrum88

•4 years ago

9 Replies

High lymphocytes blood test

Please does anyone have a lymphocyte blood result that is always higher than the normal range, any comment, advice or how to get it down. Is there any...

Please does anyone have a lymphocyte blood result that is always higher than the...

Nnms

•4 years ago

3 Replies

Does this look like Scleroderma ?

I was diagnosed with Raynauds & Erythromelalgia 2019 & also have MS, December my fingers swelled up like sausages really dry, sore, tight & some red dots under...

I was diagnosed with Raynauds & Erythromelalgia 2019 & also have MS, December my...

BlueLady6110

•4 years ago

9 Replies

Reduced lung capacity scleroderma

Does anyone else have a scleroderma that reduces their lung capacity. Looking to connect with someone. Thank you in advance.

Does anyone else have a scleroderma that reduces their lung capacity. Looking to...

Hidden

•4 years ago

8 Replies

Thinning hair

Hi just wondering if anyone has experience of thinning hair? Was diagnosed about 4 years ago with scleroderma and secondary raynauds. I take hydroxychloroquine...

Hi just wondering if anyone has experience of thinning hair? Was diagnosed about...

Mirv

•5 years ago

7 Replies

Asking for help with blood test results

I have recently have had blood work done and are not understanding the results I would like to see if I can get some help with these results ex: one of the...

I have recently have had blood work done and are not understanding the results I...

JoAnnR

•5 years ago

2 Replies

AIP

Hello, Have you had experience with autoimmun protocol? I am reading about it everywhere, especially in the US seems to be a big success (?!)… this is my...

Hello, Have you had experience with autoimmun protocol? I am reading about it ev...

Poenyfan

•6 years ago

3 Replies

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Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

Scleroderma posts

scleroderma, egg harvesting, surrogacy(?) and more

Diagnosis of Scleroderma using the ACR criteria

SRUK Webinar - Physiotherapy for Scleroderma

Disability benefits?

Effective lotion for softening skin

Newly diagnosed scleroderma

collagen

Raynauds

Gut and hands!

Sorry for myself

❗New Support Groups in Wales and Bedfordshire🤝

📊Help SRUK Help You: Take Part in our Patient Registry Survey

Interesting Podcast series: Scleroderma Education Podcast - FREE

Swollen painful fingers, systemic sclerosis

Any experience with Phototherapy / UVB / UVA1 ?

Tadalafil

Because Y is a crooked letter that cannot be straightened....

Covid Vaccine Experience! Sometimes you've just got to put your big girl pants on and be brave xx

Kitchen Witch Remedies or Pharmaceutical? 420 VS Painkillers?

Can't get off this carousel!!

When The Pity Party Goes On Parade

Freaky Freckles and Mysterious Moles?

Illness vs Vanity.....

Newbie to Scleroderma

High lymphocytes blood test

Does this look like Scleroderma ?

Reduced lung capacity scleroderma

Thinning hair

Asking for help with blood test results

AIP

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