Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,834 members • 5,407 posts

All posts for May 2018

My daughter Lauren

First time poster, I am going to support as much as I can going forward not for me as I don't have the condition but for my daughter Lauren who at 28 passed...

First time poster, I am going to support as much as I can going forward not for...

Lauren0011

•6 years ago

26 Replies

Hospital appointments

Hello, all you wonderful people. Its been a month of hosp appts!! Lung function, bone density, thorasic echocardiogram and a clinic appt oh and joy of joys my...

Hello, all you wonderful people. Its been a month of hosp appts!! Lung function,...

fairy56

•6 years ago

4 Replies

Does Anybody else have to take Folic Acid with their Scleroderma

I have Scleroderma for 10 Yrs now. I am just wondering how many others have to take Folic Acid Three (3) times day ?

I have Scleroderma for 10 Yrs now. I am just wondering how many others have to t...

horseman694

•6 years ago

8 Replies

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Charity systemic sclerosis

As some of you know I ran London marathon 5 weeks ago after being diagnosed with systemic sclerosis and secondary raynauds in December. I am thinking of trying...

As some of you know I ran London marathon 5 weeks ago after being diagnosed with...

Sylviaherring

•6 years ago

20 Replies

Systemic sclerosis and joint pain

Hi lovelies! Quick question. Last night I got woken with a in my knee. My leg was bent while sleeping and I tried to straighten it but it was locked in place...

Hi lovelies! Quick question. Last night I got woken with a in my knee. My leg wa...

Sylviaherring

•6 years ago

8 Replies

hi, first time poster here! has anybody had botox injections in their fingers for raynauds without a anestetic ?

Hi All, first timer poster here ! Has anybody had botox injections in their fingers without any anestetic ?

Hi All, first timer poster here ! Has anybody had botox injections in their fin...

twists1

•6 years ago

8 Replies

Telangiectasia

Good morning all. I have servers telangietasia on my face and hands, over the past few weeks i have developed many on y tongue and inner mouth, I did have a...

Good morning all. I have servers telangietasia on my face and hands, over the p...

Joanne_Evans030365

•6 years ago

10 Replies

Suspected Raynauds - guidance needed

First time poster here. I've been concerned for a while about my hands. I've been feeling the cold more and more since November and initially put this down to...

First time poster here. I've been concerned for a while about my hands. I've bee...

NutriNotts

•6 years ago

17 Replies

Throat issues

Hi all, I have Raynauld's and scleroderma having all the symptoms of CREST with muscle involvement of the oesophagus. I have had manometry tests which show the...

Hi all, I have Raynauld's and scleroderma having all the symptoms of CREST with ...

newton

•6 years ago

9 Replies

Loss of taste

I have sjogrens type dryness and have totally lost senses of taste and smell Some suggestion is that this could be throid related,l hope so in case it can...

I have sjogrens type dryness and have totally lost senses of taste and smell Som...

LilaJoe

•6 years ago

10 Replies

New

Hi, I have been looking for support and came along this website. I have Pansclerotic Morphea, and need a place for positive help, asking questions, and...

Hi, I have been looking for support and came along this website. I have Panscle...

SEF1

•6 years ago

5 Replies

does this what raynaud's is like?

guy's are u sure that this is raynaud's? 😂remember when i said my symptoms are changing daily??! i don't get cold anymore in fact i get sweaty and very very...

guy's are u sure that this is raynaud's? 😂remember when i said my symptoms are ...

MLaoun

•6 years ago

15 Replies

Anyone else struggling to swallow?

Hi folks, for the past few weeks I have been struggling to swallow my food without help of a liquid drink, weather it be water, milk etc. Went to the doc who...

Hi folks, for the past few weeks I have been struggling to swallow my food witho...

avtargill31

•6 years ago

37 Replies

Leg won’t run !

What could cause my legs to not want to run ? Almost feels like my legs are heavy .

What could cause my legs to not want to run ? Almost feels like my legs are heav...

Emfrenette

•6 years ago

13 Replies

Reasons why drugs won’t work for Raynauds?

Hello to anyone reading. I have secondary Raynauds and Systemic Sclerosis. I don’t know if anyone can answer my question, but does anyone know why medication...

Hello to anyone reading. I have secondary Raynauds and Systemic Sclerosis. I don...

-missymoo

•6 years ago

23 Replies

I’m going to see Professor Denton! 😊

Hi there. I saw my Rheumatologist today for a medication review. I started taking nifedipine (for Raynauds) but had to stop because it made me feel very...

Hi there. I saw my Rheumatologist today for a medication review. I started takin...

-missymoo

•6 years ago

5 Replies

Sore arms, crackling fingers

Hi all, I have raynauds but nothing else showing at the moment but for the last few weeks I've had very sore upper arms and my left shoulder is sore and...

Hi all, I have raynauds but nothing else showing at the moment but for the last ...

marie5454

•6 years ago

13 Replies

Please can someone help or advise me in what to do. As my condition is getting worse. An am scared of the worst...!!!

I'm a 38 year old male who now suffers with secondary Reynaud's in a bad way on a daily basis. I've been giving sedenifail which did nothing. But now they have...

I'm a 38 year old male who now suffers with secondary Reynaud's in a bad way on ...

TonySpit

•6 years ago

18 Replies

GLORIOUS SUNNY WEATHER

Hello all you wonderful people out there, I hope you are enjoying this glorious warm sunny weather the best way you can. I did some gardening yesterday making...

Hello all you wonderful people out there, I hope you are enjoying this glorious ...

fairy56

•6 years ago

5 Replies

Sibo

Hallo I have sibo and am generally constipated all the time. Just stopped taking antibiotics and don't want to be taking them all the time. Can anyone tell me...

Hallo I have sibo and am generally constipated all the time. Just stopped taking...

Ela1

•6 years ago

Be the first to reply

Sibo

Hallo I have sibo and am generally constipated all the time. Just stopped taking antibiotics and don't want to be taking them all the time. Can anyone tell me...

Hallo I have sibo and am generally constipated all the time. Just stopped taking...

Ela1

•6 years ago

2 Replies

Anyone else get relief from freezing hands shortly after eating?

Hi everyone, I'm new to all this so bear with me! I've recently been diagnosed with Raynaud's although I had lots of other symptoms at the moment too (which I...

Hi everyone, I'm new to all this so bear with me! I've recently been diagnosed w...

Cghkent

•6 years ago

2 Replies

help me please ! it's been more than a month

can some one help me please :( i'm having 105 heart beats per minute all the time for the last month ! right hand and my two legs turning blue cold sensation...

can some one help me please :( i'm having 105 heart beats per minute all the ti...

MLaoun

•6 years ago

2 Replies

help me please ! it's been more than a month

can some one help me please :( i'm having 105 heart beats per minute all the time for the last month ! right hand and my two legs turning blue cold sensation...

can some one help me please :( i'm having 105 heart beats per minute all the ti...

MLaoun

•6 years ago

15 Replies

Anyone with hot, tingling hands?

Does anyone suffer from erythromelalgia. I started with raynauds a number of years ago which seems to have resolved. I am now in the process of being...

Does anyone suffer from erythromelalgia. I started with raynauds a number of ye...

Hidden

•6 years ago

3 Replies

Skin changes in systemic sclerosis

Hey you lovely lot ! I have some new skin changes, little red dots in.patches and wondered if anyone else has similar and if it's just to be expected as part...

Hey you lovely lot ! I have some new skin changes, little red dots in.patches an...

Sylviaherring

•6 years ago

14 Replies

Dry mouth

Hi all Just looking for some advice. I have Sjögrens Syndrome and have suffered with dry mouth for quite a while but I feel it’s got much worse the past few...

Hi all Just looking for some advice. I have Sjögrens Syndrome and have suffered ...

Dani_7

•6 years ago

14 Replies

It's back with vengeance

Hey guys, I havnt posted in a little while.. Little update!! I had my dermatology app moved to Friday just gone.. I was finally seen by a lovely man, but...

Hey guys, I havnt posted in a little while.. Little update!! I had my dermatol...

Rebecca1993Foster

•6 years ago

9 Replies

Common virus linked to seven autoimmune diseases [link to IFLSCIENCE.COM]

Thought this could be relevant and interesting for some of us... A groundbreaking study has linked a common virus to autoimmune diseases from lupus and...

Thought this could be relevant and interesting for some of us... A groundbreaki...

hunkyd0ry

•6 years ago

4 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for May 2018

My daughter Lauren

Hospital appointments

Does Anybody else have to take Folic Acid with their Scleroderma

Charity systemic sclerosis

Systemic sclerosis and joint pain

hi, first time poster here! has anybody had botox injections in their fingers for raynauds without a anestetic ?

Telangiectasia

Suspected Raynauds - guidance needed

Throat issues

Loss of taste

New

does this what raynaud's is like?

Anyone else struggling to swallow?

Leg won’t run !

Reasons why drugs won’t work for Raynauds?

I’m going to see Professor Denton! 😊

Sore arms, crackling fingers

Please can someone help or advise me in what to do. As my condition is getting worse. An am scared of the worst...!!!

GLORIOUS SUNNY WEATHER

Sibo

Sibo

Anyone else get relief from freezing hands shortly after eating?

help me please ! it's been more than a month

help me please ! it's been more than a month

Anyone with hot, tingling hands?

Skin changes in systemic sclerosis

Dry mouth

It's back with vengeance

Common virus linked to seven autoimmune diseases [link to IFLSCIENCE.COM]

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