Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,822 members • 5,405 posts

All posts for January 2017

Influenza

I have received a letter from my gp advising me to have influenza vaccination due to my age (65 ) . I have Raynauds and Crest Syndrome has anyone with the...

I have received a letter from my gp advising me to have influenza vaccination du...

Banker123

•7 years ago

9 Replies

Hi

Hi everyone, I am new to this site but can see from other comments how friendly you all are. I was diagnosed in 2008, after having my daughter, with...

Hi everyone, I am new to this site but can see from other comments how friendly ...

Zoe1973

•7 years ago

2 Replies

Can deep tissue massage cause a flare?

Hi I am new to SRUK and have suspected Limited Systemic Scleroderma (test were positive but not seen a consultant). I hurt my back and went to an Osteopath...

Hi I am new to SRUK and have suspected Limited Systemic Scleroderma (test were p...

Judi1810

•7 years ago

4 Replies

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Passing out and low blood pressure

Lat Friday I was out shopping and collapsed, passed out in our local supermarket...i ass taken to the A & E department of our local hospital. It transpired my...

Lat Friday I was out shopping and collapsed, passed out in our local supermarket...

aramaya

•7 years ago

7 Replies

Phenylephrine cold tablets

Ive been diagnosed with Raynauds for about 6 years now, and i read one one packet (when i was diagnosed) that said i couldnt have that particular brand of cold...

Ive been diagnosed with Raynauds for about 6 years now, and i read one one packe...

Siobhan_McAtom98

•7 years ago

13 Replies

Swollen eyelids/Scleroderma

Hi Fuchie here. I would like ask does anyone else get puffy/ swollen eyelids? I have noticed the past few weeks I have this new addition. Particularly in the...

Hi Fuchie here. I would like ask does anyone else get puffy/ swollen eyelids? I...

Fuchia

•7 years ago

10 Replies

Raynauds,

My GP originally diagnosed me with Raynauds, and in the beginning my hands would go through the standard changes, red, blue, white.... but after 2 months they...

My GP originally diagnosed me with Raynauds, and in the beginning my hands would...

Tay171

•7 years ago

4 Replies

ACHES AND PAINS

Hi everybody, I am fed up!! Its the aches and pains today, actually these past few days, its my shoulders, neck, hips, knees and ankles. Does anyone else get...

Hi everybody, I am fed up!! Its the aches and pains today, actually these past ...

fairy56

•7 years ago

8 Replies

Received the Puritan's Pride order

Have previously replied to the person who said they had purchased Garlic, Gingko and Butcher's Broom and after taking found the symptoms to be tolerable. Less...

Have previously replied to the person who said they had purchased Garlic, Gingko...

Richmi

•7 years ago

Be the first to reply

Infusion for Raynaud's and Erythromelalgia?

Saw a vascular specialist for the first time yesterday. She confirmed that I have both of these conditions and calls is vessel wall instability since I have a...

Saw a vascular specialist for the first time yesterday. She confirmed that I hav...

Goldyukr

•7 years ago

13 Replies

I cant cope right now

hi all, i am really suffering with this cold at the mo,i have secondary raynauds and at work these last couple of weeks ive been struggling, at work we have an...

hi all, i am really suffering with this cold at the mo,i have secondary raynauds...

vic78

•7 years ago

18 Replies

Blood works advice

I have been told I have systemic sclerosis (crest). But my recent bloods also show some other things going on. Can anyone help me understand them. I'm waiting...

I have been told I have systemic sclerosis (crest). But my recent bloods also sh...

Sami13

•7 years ago

6 Replies

duppydoo

thankyou peeps so much for all your replies to my questions some real good advice . and my head still itching like crazy thinking i am going to stop all...

thankyou peeps so much for all your replies to my questions some real good advic...

duppydoo

•7 years ago

1 Reply

Newbie just diagnosed with Lupus and Scleroderma

I just wanted some other people who are going through this to talk to. I don't have a lot of people who know what I am dealing with so Hello

I just wanted some other people who are going through this to talk to. I don't h...

Ratdoc

•7 years ago

5 Replies

duppydoo

hi peeps i too have just been diagnosed scleroderma plus sjogrens syndrome too . my question to you all at the moment does anyone else get terrible itching my...

hi peeps i too have just been diagnosed scleroderma plus sjogrens syndrome too ....

duppydoo

•7 years ago

11 Replies

Just need to have a moan...

Evening guys, I've come on tonight to have a bit of a moan. My big toe is so very painful atm, that it's driving me to distraction. Even a sock is hurting it,...

Evening guys, I've come on tonight to have a bit of a moan. My big toe is so ver...

gindy

•7 years ago

3 Replies

Systemic Scleroderma aka Systemic Sclerosis

I was diagnosed this past June. I've had emotional ups and downs and I'm learning to cope with changes... very mental disease... has anyone has IVIG TReatment?...

I was diagnosed this past June. I've had emotional ups and downs and I'm learnin...

Marinav

•7 years ago

3 Replies

PERCEPTION COSTS

PLEASE HELP - I'm getting myself in such a panic. I have recently had to give up work and have applied for contribution-based ESA. Which my claim is being...

PLEASE HELP - I'm getting myself in such a panic. I have recently had to give up...

sharon2751

•7 years ago

19 Replies

Iloprost

Hi reading your story about Iloprost Im from N.I. & couldn't tolerate Iloprost so I get Flolan infusion instead I get it for 6 hours for 5 days & it is much...

Hi reading your story about Iloprost Im from N.I. & couldn't tolerate Iloprost s...

Gdonnelly

•7 years ago

Be the first to reply

tony bluenose

hi everyone ive just been diagnosed with raynaud's disease plus ive got type 1 diabetes which ive had for 5 years.

hi everyone ive just been diagnosed with raynaud's disease plus ive got type 1 d...

BIRKENHEAD2017

•7 years ago

3 Replies

Responding to a Previous Post

Recently read that someone did well taking 200 mg Garlic, 240 mg. Butcher's Broom and 3000 mg. Ginko. Are you sure it's 3000mg. Ginko and not 300mg. Ginko? Was...

Recently read that someone did well taking 200 mg Garlic, 240 mg. Butcher's Broo...

Richmi

•7 years ago

3 Replies

DAY 3 ILOPROST

Hello everybody, day 3 finished. Managed to get to hour 4 before I got headache and upto 40ml an hour, took my paracetamol and continued on to my 6th hour!...

Hello everybody, day 3 finished. Managed to get to hour 4 before I got headache...

fairy56

•7 years ago

3 Replies

Raynaurds and skiing?

My raynaurds just started this year, skiing is a hobbie of mine and i really want to book a holiday for march but i`m not sure this is a good idea, my...

My raynaurds just started this year, skiing is a hobbie of mine and i really wan...

Tay171

•7 years ago

9 Replies

A little help...

Hi guys, So, just wanted to run a couple of questions by everyone... I was diagnosed with localised scleroderma about 5 years ago after one patch of plaque and...

Hi guys, So, just wanted to run a couple of questions by everyone... I was diagn...

jk101

•7 years ago

6 Replies

Iiliprost infusions IV method query

I was admitted for a 5 day 6 hours a day IV for iiliprost infusions. as I have small veins they couldnt get the canulla to function properly or to get it...

I was admitted for a 5 day 6 hours a day IV for iiliprost infusions. as I have ...

aramaya

•7 years ago

4 Replies

First day of iloprost

First of all can I thank everybody for replying to my post, sorry I have not replied to you separately. Well the first day of iloprost is over it went...

First of all can I thank everybody for replying to my post, sorry I have not re...

fairy56

•7 years ago

10 Replies

iloprost appointment

Hi everybody, I have my first iloprost infusion tomorrow and for the rest of the week. I don"t know what to expect so am going with plenty to read, taking my...

Hi everybody, I have my first iloprost infusion tomorrow and for the rest of th...

fairy56

•7 years ago

9 Replies

Tenderness behind fingertips in soft tissue

I recently had a week or so when I had a slight pain and definite tenderness in the soft tissue 'beneath' most of my fingertips - it felt as if it was about...

I recently had a week or so when I had a slight pain and definite tenderness in ...

cowhide

•7 years ago

2 Replies

Are these symptoms linked to localised scleroderma?

Hey guys, Just wanted to reach out and say hello. I was diagnosed with localised scleroderma about 5 years ago after a punch biopsy, with morphea and linear...

Hey guys, Just wanted to reach out and say hello. I was diagnosed with localised...

jk101

•7 years ago

4 Replies

Cold backs of arms

Backs of my arms always cold, I have Raynaud's, but this is a "different" sort of cold. Don't really know how to describe, effects me even when rest of me...

Backs of my arms always cold, I have Raynaud's, but this is a "different" sort o...

foxglove

•7 years ago

5 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for January 2017

Influenza

Hi

Can deep tissue massage cause a flare?

Passing out and low blood pressure

Phenylephrine cold tablets

Swollen eyelids/Scleroderma

Raynauds,

ACHES AND PAINS

Received the Puritan's Pride order

Infusion for Raynaud's and Erythromelalgia?

I cant cope right now

Blood works advice

duppydoo

Newbie just diagnosed with Lupus and Scleroderma

duppydoo

Just need to have a moan...

Systemic Scleroderma aka Systemic Sclerosis

PERCEPTION COSTS

Iloprost

tony bluenose

Responding to a Previous Post

DAY 3 ILOPROST

Raynaurds and skiing?

A little help...

Iiliprost infusions IV method query

First day of iloprost

iloprost appointment

Tenderness behind fingertips in soft tissue

Are these symptoms linked to localised scleroderma?

Cold backs of arms

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