Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for January 2022

Pelvic prolapse connection to Systemic Sclerosis?

I have recently suffered from a pelvic prolapse and wondered if any one else had had the same experience and been told it was caused by Sysyemic Sclerosis...

I have recently suffered from a pelvic prolapse and wondered if any one else had...

SKivell

•3 years ago

3 Replies

Best foundation for telangiectasia?

Hi all, Anyone out there found a good foundation to cover telangiectasia on the face? I was diagnosed with systemic sclerosis 3 years ago. I know it seems...

Hi all, Anyone out there found a good foundation to cover telangiectasia on the ...

Helenlouise40

•3 years ago

11 Replies

Protection for clinically vulnerable people in the UK

There is a petition on Change.org entitled "Protection for clinically vulnerable people in the UK" This is asking for properly fitted protective for the wearer...

There is a petition on Change.org entitled "Protection for clinically vulnerable...

Poppy221

•3 years ago

2 Replies

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Keyboards for weak fingers - any recommendations?

I already have an ergonomic keyboard which is not that firm, but my little fingers have always been on the weak side, and now have osteoarthritis in the top...

I already have an ergonomic keyboard which is not that firm, but my little finge...

Poppy221

•3 years ago

3 Replies

Have a restful, relaxing weekend everyone!

Don't overdo anything.

Sophiebun11

•3 years ago

6 Replies

Digital Ulcers and Surgical Debridement

I am facing a decision now about surgical debridement and nail removal. Horrible ulcers on three fingertips. On nifedipine and recently started 20 mg...

I am facing a decision now about surgical debridement and nail removal. Horribl...

K9rsqr

•3 years ago

12 Replies

Lecture Given to SRUK by Dr. Frances Hall, a rheumatologist specialising in Reynaud’s.

I recently watched a lecture given by Dr. Frances Hall to SRUK. During the course of the lecture, she mentioned that people suffering from Reynaud’s should not...

I recently watched a lecture given by Dr. Frances Hall to SRUK. During the cours...

Morganalefaye

•3 years ago

1 Reply

Tips on Fingertips Please

I have been told that I have Secondary Reynauds. Do other sufferers have deatroyed finger nails, painful inflamation around the nails and yellowing, sore, numb...

I have been told that I have Secondary Reynauds. Do other sufferers have deatroy...

magria

•3 years ago

11 Replies

Has anyone had iloprost at the Royal Free in London recently?

I've been recommended a week of iloprost in the next few months, and wondered what to expect, particularly in terms of practicalities like what accommodation...

I've been recommended a week of iloprost in the next few months, and wondered wh...

LilyInTheSun

•3 years ago

3 Replies

loss of fat pads on soles of feet

lost fat pads on feet very sore to walk any suggestions?

Gran54

•3 years ago

16 Replies

I bet you're a faux Dr. too, right?

We have to learn and advocate.

Sophiebun11

•3 years ago

11 Replies

Healing time for digital ulcers

Just wanted to hear back from any of you suffering with digital ulcers to find out on average, how long it takes them take to heal? I’ve had anything from 6...

Just wanted to hear back from any of you suffering with digital ulcers to find o...

Eden1234

•3 years ago

6 Replies

Raynaud's Newsletter

Hi all, I thought I'd post this newsletter link in case you may wish to sign up. https://www.raynauds.org/raynauds-association-newsletter/

Hi all, I thought I'd post this newsletter link in case you may wish to sign up....

Sophiebun11

•3 years ago

10 Replies

Possible Scleroderma

Is it possible to have G I tract scleroderma without skin issues? Been suffering for 12 years with no diagnosis but worsening symptoms. I do have a peculiar...

Is it possible to have G I tract scleroderma without skin issues? Been suffering...

roseter

•3 years ago

27 Replies

Trying to explain an Autoimmune disease to someone

A constant battle, day after day against our own bodies and vice versa.

Sophiebun11

•3 years ago

6 Replies

Chilblains

Any tips on how to care for my chilblains ( they are chilblains not a skin issue ) this is what they look like come up on top of years if scar tissue created...

Any tips on how to care for my chilblains ( they are chilblains not a skin issue...

TJme

•3 years ago

5 Replies

Jaw spasm & neck muscle problems?

Hi, I am new to this forum which I am now following on behalf of my husband. He has scleroderma primarily upper body, as a result of Chronic Graft vs Host...

Hi, I am new to this forum which I am now following on behalf of my husband. He ...

AnnW22

•3 years ago

3 Replies

Recommended dentist for scleroderma

Hi everyone. I wondered if anyone knows of any good dentists in the tayside area who has experience with scleroderma patients? All my front top teeth are...

Hi everyone. I wondered if anyone knows of any good dentists in the tayside area...

Mylomydog

•3 years ago

Be the first to reply

How many times did you hear this before your diagnosis?

Time for a new Dr.

Sophiebun11

•3 years ago

18 Replies

Long-term use of PPIs for acid reflux

Hello everyone, Just wondering if anyone has experience of taking PPIs for a long time... I've been using them off and on now, for a couple of years to manage...

Hello everyone, Just wondering if anyone has experience of taking PPIs for a lo...

Duck33

•3 years ago

18 Replies

Pulmonary function tests

Hi My mum has systemic sclerosis which has a massive impact on her lungs and breathing. She’s now in her third year without having the normal pulmonary...

Hi My mum has systemic sclerosis which has a massive impact on her lungs and br...

Ajack

•3 years ago

17 Replies

Does hand lotion makes Raynauld's worse?

My hands are dry due to my heat in my apt. I have tried to moisturize them but my hands get really cold and my Raynauld's worsens, my fingers turning blue or...

My hands are dry due to my heat in my apt. I have tried to moisturize them but m...

Berniz

•3 years ago

6 Replies

Tear in rotator cuff

Hi, just wanted to ask if anyone has had or has calcinosis and tear in rotator cuff and if so, what has the outcome been?

Hi, just wanted to ask if anyone has had or has calcinosis and tear in rotator...

Eden1234

•3 years ago

2 Replies

Digital ulcers

I have had so many problems with the digital ulcers on my fingers since it got cold an suffer with so much pain..

I have had so many problems with the digital ulcers on my fingers since it got c...

Belinda1960

•3 years ago

9 Replies

Livedo Reticulairs

Hi can anyone give me some advice on Livedo Reticulairs please, I have been to GP but they don't seem interested, I had blood test weeks ago an when ask about...

Hi can anyone give me some advice on Livedo Reticulairs please, I have been to G...

Seeley

•3 years ago

1 Reply

Understanding Localised Scleroderma

Understanding Localised Scleroderma publication Our latest booklet, Understanding Localised Scleroderma, goes into the different types, causes, and symptoms...

Understanding Localised Scleroderma publication Our latest booklet, Understandi...

Chicunique27

Administrator•3 years ago

1 Reply

Raynaud's Nipple

Raynauds Nipple-Definition, Causes & Treatments We've gone personal with today's topic: we're talking all things Raynaud's Nipple with Dr Elizabeth Price....

Raynauds Nipple-Definition, Causes & Treatments We've gone personal with today'...

Chicunique27

Administrator•3 years ago

2 Replies

Excessive Gas

Lately I have been experiencing excessive gas. I have not done anything different, I have not changed my eating habits (still sugar free, dairy free, gluten...

Lately I have been experiencing excessive gas. I have not done anything differen...

Jmrose

•3 years ago

8 Replies

Hydroxychloroquine with negative ANA and blood test results

Hi I am new to all of this. Has anyone else been put on Hydroxychloroquine with negative ANA and blood test results?

Hi I am new to all of this. Has anyone else been put on Hydroxychloroquine with ...

KatieLB

•3 years ago

10 Replies

Our Spirit Animal

Spirit Animal for those of us with autoimmune diseases!!! I feel like a sloth most days.

Spirit Animal for those of us with autoimmune diseases!!! I feel like a sloth m...

Sophiebun11

•3 years ago

6 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for January 2022

Pelvic prolapse connection to Systemic Sclerosis?

Best foundation for telangiectasia?

Protection for clinically vulnerable people in the UK

Keyboards for weak fingers - any recommendations?

Have a restful, relaxing weekend everyone!

Digital Ulcers and Surgical Debridement

Lecture Given to SRUK by Dr. Frances Hall, a rheumatologist specialising in Reynaud’s.

Tips on Fingertips Please

Has anyone had iloprost at the Royal Free in London recently?

loss of fat pads on soles of feet

I bet you're a faux Dr. too, right?

Healing time for digital ulcers

Raynaud's Newsletter

Possible Scleroderma

Trying to explain an Autoimmune disease to someone

Chilblains

Jaw spasm & neck muscle problems?

Recommended dentist for scleroderma

How many times did you hear this before your diagnosis?

Long-term use of PPIs for acid reflux

Pulmonary function tests

Does hand lotion makes Raynauld's worse?

Tear in rotator cuff

Digital ulcers

Livedo Reticulairs

Understanding Localised Scleroderma

Raynaud's Nipple

Excessive Gas

Hydroxychloroquine with negative ANA and blood test results

Our Spirit Animal

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