Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for September 2022

Best gloves 🧤

so I have tried lots of different gloves for my hands but to no avail as my hands always just turn white 🙈 I wondered what recommendations you have for...

so I have tried lots of different gloves for my hands but to no avail as my hand...

•2 years ago

Systemic sclerosis

Hello everyone. I would like to know about health system in the UK and the rituximab and iloprost.

Hello everyone. I would like to know about health system in the UK and the ritux...

•2 years ago

raynauds pain 🥶

Hi all , This condition is slowly making everyday life quite difficult 😞 I have tried all the handwarmers in the world and some medication and...

Hi all , This condition is slowly making everyday life quite difficult 😞 ...

•2 years ago

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SRUKs

treatments for toes and fingers ulcers due to Renaud condition

treatments for toes and fingers ulcers due to Renaud condition

•2 years ago

Excessive daytime sleepiness?

I have mild, early ssc. Does anyone else here with ssc suffer from excessive tiredness? I start getting really lethargic and sleepy by around 11 am most...

I have mild, early ssc. Does anyone else here with ssc suffer from excessive ti...

•2 years ago

JBC19, advice needed urgently. Scleroderma, severe itching

My mum started suffering with symptoms in March this year. She was diagnosed about a month ago with scleroderma but they don't know which form yet as she...

My mum started suffering with symptoms in March this year. She was diagnosed abo...

•2 years ago

Good news: CAR T-cell treatment

Hi all, read this yesterday. I know the study was in lupus patients but it does go on to mention possible success in SSc. Gave me hope for the future and...

Hi all, read this yesterday. I know the study was in lupus patients but it does ...

•2 years ago

Shiny hands: is this scleroderma???

Hello, I'm from Argentina. I developed shiny hands, this is a picture with flash. I don't think I have reynaud but I only find that shiny hands are a sign...

Hello, I'm from Argentina. I developed shiny hands, this is a picture with fl...

•2 years ago

Methotrexate and the Covid 19 vaccination

Hi all. Has anyone been advised to stop taking Methotrexate near the time of having the Covid 19 vaccination or whether one might affect the other? Thank you

Hi all. Has anyone been advised to stop taking Methotrexate near the time of hav...

•2 years ago

Covid boosters for those with a weakened immune system

Does anyone know when those of us with a weakened immune system should go for their next booster? I had a fourth - booster jab in February after the three...

Does anyone know when those of us with a weakened immune system should go for th...

•2 years ago

Sibo & Medications

I have had diffuse systemic scleroderma since 2011, I am 71 years of age. I had my first bout of sibo a year ago, for which I was prescribed metronidazole...

I have had diffuse systemic scleroderma since 2011, I am 71 years of age. I had ...

•2 years ago

Is anyone following the antibiotic protocol for systemic sclerosis/scleroderma?

•2 years ago

Suspected Erythromelalgia - boiling red hands, began in early 2021. Urgent advice needed - feel very poorly

Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy...

Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, b...

•2 years ago

Stuck without diagnosis

Hello everyone. At first I'd like to thank You all for sharing Your stories and experience, it is very helpful. I decided to post here, because maybe You'll...

Hello everyone. At first I'd like to thank You all for sharing Your stories and ...

•2 years ago

Rifaxamin and scleroderma gut issues

Hello Everyone I’ve posted before about my on going gut issues. I’m really struggling at the moment as despite rounds of different antibiotics including...

Hello Everyone I’ve posted before about my on going gut issues. I’m really str...

•2 years ago

Temperature change

I have Scleroderma/Raynards and have the classic skin colour changes in my feet and hands in response to cold or stress. I also get cold skin on my arms...

I have Scleroderma/Raynards and have the classic skin colour changes in my feet ...

•2 years ago