Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for December 2019

Connective Tissue Disease?

Hi, when I had my rheumatologist appointment a few weeks ago, she told me she was referring me onto a connective tissue disease consultant as this was a doctor...

Hi, when I had my rheumatologist appointment a few weeks ago, she told me she wa...

•5 years ago

Frankincense oil helps

Frankincense oil applied to my hands about three times daily, has been very helpful in stopping Raynaud's attacks. It relaxes the blood vessels, thereby...

Frankincense oil applied to my hands about three times daily, has been very help...

•5 years ago

I'm new

Hi I'm a very scared recently diagnosed with scleroderma and raynauds

Hi I'm a very scared recently diagnosed with scleroderma and raynauds

•5 years ago

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Kidney function and scleroderma

I was diagnosed with limited systemic sclerosis in 2017. Looking through my blood test notes, I can see that I have always had eGFR rate above 90 which is...

I was diagnosed with limited systemic sclerosis in 2017. Looking through my bloo...

•5 years ago

Folic acid

I have been on methotrexate and folic acid every day except injection day but today I forgot I had my injection then I took the folic acid later on will...

I have been on methotrexate and folic acid every day except injection day but to...

•5 years ago

Hello 👋

Hello , just thought I’d say hello ,this is my first time doing anything like this so bear with me!!! I was diagnosed with diffuse scleroderma in September ,it...

Hello , just thought I’d say hello ,this is my first time doing anything like th...

•5 years ago

Christmas Wishes

I'd like to wish everyone a very Happy Christmas and a great New Year! Whatever you're dealing with healthwise I hope you all find the strength of will to get...

I'd like to wish everyone a very Happy Christmas and a great New Year! Whatever...

•5 years ago

Sore tongue with dry mouth 🙁

Hi everyone Just wondered if any of you lovely people have suffered with a really sore and sensitive tongue as part of your Scleroderma? I always have a dry...

Hi everyone Just wondered if any of you lovely people have suffered with a real...

•5 years ago

Anyone had carpal tunnel surgery? How did it go for you?

I have overlap mixed connective tissue disease on methotrexate and hyroxychloroquin. I had an EMG (long needle muscle test) yesterday which diagnosed myosotis...

I have overlap mixed connective tissue disease on methotrexate and hyroxychloroq...

•5 years ago

Losartan for Reynaud's?

Hi, Does anyone have experience of taking Losartan for Reynaud's? I've been prescribed Losartan 25mg for primary Reynaud's. I also have erythromelalgia. Any...

Hi, Does anyone have experience of taking Losartan for Reynaud's? I've been pres...

•5 years ago

Hydroxychloroquine

Wish me luck starting the above mess tomorrow for 2 months, 5 days a week. Any recommendations gladly received re side effects etc...

Wish me luck starting the above mess tomorrow for 2 months, 5 days a week. Any...

•5 years ago

Recommendations for gloves?

Hi All, Thank your letting me join your community. I have primary Raynaud’s and was wondering if anyone had any recommendations for gloves that people have...

Hi All, Thank your letting me join your community. I have primary Raynaud’s and ...

•5 years ago

Blood results

Hi All, I have just today been emailed some blood results from a specialist Raynauds clinic in London, with no explanation with them and impossible to reach...

Hi All, I have just today been emailed some blood results from a specialist Rayn...

•5 years ago

Recent bloods show elevated creatine. Systemic sclerosis and secondary Raynauds sufferer.

Hi all I suffer with Systemic sclerosis and secondary Raynauds with GI issues including dyspagia, GORD and Oesophagitis. I’ve recently had bloods taken and...

Hi all I suffer with Systemic sclerosis and secondary Raynauds with GI issues in...

•5 years ago

Scleroderma morphia

Hi I've just been diagnosed with scleroderma morphia. Haven't got a clue what's going on only the usual symptoms making too much collagen and knackered by 8pm....

Hi I've just been diagnosed with scleroderma morphia. Haven't got a clue what's ...

•5 years ago

Nail fold capillary test (capillaroscopy) - private?

Does anyone know of anywhere in or around London/Surrey where I can get one of these tests done privately? My Rheumy's idea of doing one was to glance at my...

Does anyone know of anywhere in or around London/Surrey where I can get one of t...

•5 years ago

ANA disease and Celery Juice

Any chance with the celery juice movement that has picked up with respect to the autoimmunity issues?? Anyone with ANA issues has benefited from the celery...

Any chance with the celery juice movement that has picked up with respect to the...

•5 years ago

beta blockers

I would like (and have been advised) to take beta blockers daily for irregular heartbeat but on the other hand have been told not to because it will make my...

I would like (and have been advised) to take beta blockers daily for irregular h...

•5 years ago

Painful Hands

Hi all, my hands are hurting more and more (MCTD + Scleroderma) can anybody recommend some painkillers please? AX

Hi all, my hands are hurting more and more (MCTD + Scleroderma) can anybody reco...

•5 years ago

Scleroderma & Sacral Nerve Stimulation Trial for bowel problems

Has any one undergone a 2 week trial of Sacral Nerve Stimulation? Wondered how it went, and if successful did it work straight away or was it slow to show...

Has any one undergone a 2 week trial of Sacral Nerve Stimulation? Wondered how i...

•5 years ago

Drops for dry eyes

Has anyone found effective drops for dry eyes? I've tried most over the counter ones as well as one recommended by the optician and one prescribed by the...

Has anyone found effective drops for dry eyes? I've tried most over the counter...

•5 years ago

Has anyone had side effects from omeprazole

Hi everyone.I have limited scleroderma and was taking omeprazole for the reflux,however i began to get pretty nasty pockets of stomach pain and honestly...

Hi everyone.I have limited scleroderma and was taking omeprazole for the reflux,...

•5 years ago