Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for July 2018

Eyesight loss

My most upsetting problem is my eyes. Do any of you good people have vision problems?

My most upsetting problem is my eyes. Do any of you good people have vision prob...

Debbiedoughnut

•6 years ago

17 Replies

scared and lonely

I meant this to appear in the scleroderma site but it got put into the lung one – so here it is again: I was diagnosed with limited systemic scleroderma 2...

I meant this to appear in the scleroderma site but it got put into the lung one ...

volvox45

•6 years ago

6 Replies

Sarah Taylor

Hi my name Sarah Taylor got scleroderma n raynards some days so pain full no one seems to understand what it's like xx

Hi my name Sarah Taylor got scleroderma n raynards some days so pain full no one...

Sarog72

•6 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Incontinence due to torn spinchter muscle due to childbirth

Has anyone had this ? I am living a nightmare I cannot wish I was always constipated so I wouldn't have accidents but I think my only other choice is a...

Has anyone had this ? I am living a nightmare I cannot wish I was always consti...

Meimster1989

•6 years ago

4 Replies

CBD oil

Just invested in CBD oil has anyone used ? Do anything to relieve pain now

babyinny

•6 years ago

7 Replies

Blepharospasm, paraesthesias nerve and neurological symptoms orthostatic hypotension

Hi there I'm due to see a neurologist again soon so I'm trying to gather some information before I do. I have suffered with a lot of paraesthesias, muscle...

Hi there I'm due to see a neurologist again soon so I'm trying to gather some in...

shaunalouise26

•6 years ago

9 Replies

Burning sore tongue and throat for a year getting worse driving me to despair

I have recently tested positive for Crest Syndrome awaiting rheumatology appointment I have been attending dental hospital were they diagnosed burning mouth...

I have recently tested positive for Crest Syndrome awaiting rheumatology appoint...

babyinny

•6 years ago

10 Replies

Who feels lonely?

Why does it seem odd to others that I want to find a person who I can talk to about the way I feel and not feel like an alien? At the moment it feels like a...

Why does it seem odd to others that I want to find a person who I can talk to ab...

Debbiedoughnut

•6 years ago

15 Replies

Hopeful

Hi, I don't really know much about computers but am trying to find someone,anyone who also has scleroderma, raynauds, and other seemingly still unknown...

Hi, I don't really know much about computers but am trying to find someone,anyon...

Debbiedoughnut

•6 years ago

10 Replies

Struggling with middle finger/arm.

Hi I am just hoping someone can help me with this ongoing problem. About 5 months ago I had a sharp pain in my middle finger on my right hand, it felt like an...

Hi I am just hoping someone can help me with this ongoing problem. About 5 month...

Cyrus65Conra

•6 years ago

2 Replies

the joys of school summer hols!!!

Hello everybody, oh the joys of looking after my 11yr old granddaughter!! First week in, and we have had a day out at a museum, a macdonalds breakfast! a walk...

Hello everybody, oh the joys of looking after my 11yr old granddaughter!! First ...

fairy56

•6 years ago

4 Replies

Experience of Iloprost infusion?

Hi all, long post incoming but I need some advice/help!! I am a 24yo female was diagnosed with Primary Raynaud’s when I was 11 and I suffer with it pretty...

Hi all, long post incoming but I need some advice/help!! I am a 24yo female was ...

celvo

•6 years ago

12 Replies

Secondary Raynauds

Does anyone here have Secondary Raynauds? The more severe case of typical Raynauds? My husband was diagnosed at the beginning of May after spending 8 days in...

Does anyone here have Secondary Raynauds? The more severe case of typical Raynau...

hendryx826

•6 years ago

13 Replies

Newbie, waiting time.

Hi I'm new to the forum. I have had Raynaud's for a number of years but only recently went to see my GP about it. She took my bloods and they came back with...

Hi I'm new to the forum. I have had Raynaud's for a number of years but only rec...

kes07

•6 years ago

14 Replies

Confused a bit

Hi guys . I've been in the dark about the diagnosis I was given beginning of this year for limited scleroderma and reynaud. I have gone to see the rheumy...

Hi guys . I've been in the dark about the diagnosis I was given beginning of thi...

Emfrenette

•6 years ago

11 Replies

Only one more week before our 1st informal meeting in Birmingham on 01 August, you're welcome to come along.

Hi Folks, only one more week before our informal meeting in Birmingham. If anyone else would like to come, you're more than welcome to. It's by Grand central...

Hi Folks, only one more week before our informal meeting in Birmingham. If anyon...

avtargill31

•6 years ago

4 Replies

I'm new here

I have scleroderma limited recently my knees got sore and it's sprinkling some thing yellow. what's this? why?

I have scleroderma limited recently my knees got sore and it's sprinkling some t...

akvan

•6 years ago

5 Replies

Improve your condition

I was diagnosed with scleroderma about 3 years ago and also have limited cutaneous systemic sclerosis, Raynaud’s phenomenon, gastro-oesophageal reflux and lung...

I was diagnosed with scleroderma about 3 years ago and also have limited cutaneo...

NSV69

•7 years ago

5 Replies

Should I be claiming PIP and ESA

I have scleraderma and it's starting to bring out alot of pain now I'm older the use in my fingers aren't the same I used to love writing now my writing is a...

I have scleraderma and it's starting to bring out alot of pain now I'm older the...

Ninag75

•7 years ago

2 Replies

Shoulder Ultrasound

Hi, I recently underwent a shoulder U/S and it showed mild Supraspinatus tendinopathy and subacromial subdeltoid bursitis. I have diffuse systemic...

Hi, I recently underwent a shoulder U/S and it showed mild Supraspinatus tendin...

naila_007

•7 years ago

11 Replies

Doctors not clued up

I went to my gp as I discovered when I was five I have morphea sclareaderma on my right arm and now on my shin on my leg. Doctors weren't clued up then now 43...

I went to my gp as I discovered when I was five I have morphea sclareaderma on m...

Ninag75

•7 years ago

5 Replies

Stopping Limited SSc meds temporarily

So, I’ve arrived on holiday and found, to my horror, that I’ve left ALL of my meds at home!! I take Mycophenolate, Hydroxychloroquine, sildenafil and...

So, I’ve arrived on holiday and found, to my horror, that I’ve left ALL of my me...

ECGordon

•7 years ago

9 Replies

Severe headaches

Hi everyone, i post here on behalf of my son who is 24 , he has just been diagnosed with localised scleroderma. I was wondering if headaches are a symptom ,...

Hi everyone, i post here on behalf of my son who is 24 , he has just been diagno...

weathervane

•7 years ago

6 Replies

How has the current spell of hot weather affected your condition(s)?

I was just wondering how everyone was coping with the current spell of hot weather in Britain. Do you welcome it? Has it provided you with some relief or has...

I was just wondering how everyone was coping with the current spell of hot weath...

Rollcage

•7 years ago

7 Replies

Life is passing me by....

HELP! I've been trying for years now to get a definite diagnosis. All of my doctors seem to agree that I appear to have an autoimmune immune disorder, but fail...

HELP! I've been trying for years now to get a definite diagnosis. All of my doct...

greyhoundlady5

•7 years ago

6 Replies

Spontaneous bruising (toes)

Does anyone suffer from this? In the last week I’ve had two occasions where one of my toes has just suddenly bruised for no reason. Today, I was literally...

Does anyone suffer from this? In the last week I’ve had two occasions where one ...

SadieMeg

•7 years ago

12 Replies

Candida Fungi

This time I have esophagual Candida Fungi growing in my esophagus and upper respiratory system..... Cause the chocking .... I wonder if I'm on the edge of my...

This time I have esophagual Candida Fungi growing in my esophagus and upper resp...

8whitetoes

•7 years ago

1 Reply

Dry skin and systemic sclerosis

I have systemic sclerosis and secondary raynauds and saw my rheumatologist yesterday (2nd appt) we talked about things that are different in the last 6 months...

I have systemic sclerosis and secondary raynauds and saw my rheumatologist yeste...

Sylviaherring

•7 years ago

17 Replies

CTD screen

Hi I had some bloods back from the doctors and it said CTD screen 0.9. I was wondering if anyone knows what this means? My only symptoms is a indent line...

Hi I had some bloods back from the doctors and it said CTD screen 0.9. I was wo...

oi_hilton

•7 years ago

1 Reply

Raynauds, Limited Scleroderma

I have been reading a lot of these posts. I have had Raynaud's for two years and diagnosed with limited Scleroderma for a year. Many may already know this, but...

I have been reading a lot of these posts. I have had Raynaud's for two years and...

Richmi

•7 years ago

9 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for July 2018

Eyesight loss

scared and lonely

Sarah Taylor

Incontinence due to torn spinchter muscle due to childbirth

CBD oil

Blepharospasm, paraesthesias nerve and neurological symptoms orthostatic hypotension

Burning sore tongue and throat for a year getting worse driving me to despair

Who feels lonely?

Hopeful

Struggling with middle finger/arm.

the joys of school summer hols!!!

Experience of Iloprost infusion?

Secondary Raynauds

Newbie, waiting time.

Confused a bit

Only one more week before our 1st informal meeting in Birmingham on 01 August, you're welcome to come along.

I'm new here

Improve your condition

Should I be claiming PIP and ESA

Shoulder Ultrasound

Doctors not clued up

Stopping Limited SSc meds temporarily

Severe headaches

How has the current spell of hot weather affected your condition(s)?

Life is passing me by....

Spontaneous bruising (toes)

Candida Fungi

Dry skin and systemic sclerosis

CTD screen

Raynauds, Limited Scleroderma

Search posts

Pinned Posts

Latest poll

How do you pronounce Raynaud's? Listen to English Cambridge Dictionary: http://bit.ly/2DmGhmz Vote now. If other then reply below.

Topics

Archive