Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for December 2020

Colostomy due to Scleroderma, Dietary advice needed

Hi, I am looking for advice for my Mum who is 87, has had scleroderma for 50 years, has severe oeasophageal dis-motility, had a colostomy about 14 years ago...

Hi, I am looking for advice for my Mum who is 87, has had scleroderma for 50 yea...

•4 years ago

Reaction to Losartan

I have been on Losartan fo about a week... one tablet a day to help with blood flow into my hands. Seem to have had a painful response in knee, elbow joints,...

I have been on Losartan fo about a week... one tablet a day to help with blood ...

•4 years ago

Has anyone had a successful PIP claim?

Hi, I am going to apply for PIP just wondering if there any useful sites with example answers. I have SS Diffused which has affected by joints, skin and...

Hi, I am going to apply for PIP just wondering if there any useful sites with ex...

•4 years ago

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It appeared day before yesterday. Looked a bit like a blood blister when it first popped up. It's since flattened a bit, faded then a new tiny blood spot has...

It appeared day before yesterday. Looked a bit like a blood blister when it fir...

•4 years ago

Rigid lower legs and arms

Has anybody had / got hardened, rigid lower arms and legs.... hard and ribbed on arms? Fingers and hands also puffed and swollen, particularly at night . My...

Has anybody had / got hardened, rigid lower arms and legs.... hard and ribbed on...

•4 years ago

oesophageal dysmotility

Hi people, I thought you might be interested to hear that I did get a referral to Prof Denton's Royal Free clinic really quickly and was seen on 3rd December...

Hi people, I thought you might be interested to hear that I did get a referral t...

•4 years ago

A peaceful time for all!

Here's wishing everyone peace, no flair ups (family or health) and contentment wherever you are in the world. It has been a tough year and one of great loss...

Here's wishing everyone peace, no flair ups (family or health) and contentment w...

•4 years ago

Hi, am new here but just wanted to know if anyone has experienced large areas of calcinosis?

Hi. Was diagnosed with systemic sclerosis 11 years ago. Within last 2 years, I have experienced areas of calcinosis under the arms and just wondered if...

Hi. Was diagnosed with systemic sclerosis 11 years ago. Within last 2 years, I...

•4 years ago

Nifepidine results?

Hi all! I'm new here; and have been diagnosed with Raynauds since forever! This year things deteriorated rather badly, and I started to really be affected by...

Hi all! I'm new here; and have been diagnosed with Raynauds since forever! This...

•4 years ago

Nail loss with Raynauds

Hi, I have Raynaud's and suffer with chilblains, mainly on my fingers. They lead to swollen, itchy, 'sausage' fingers which lasts for a few days. In the past...

Hi, I have Raynaud's and suffer with chilblains, mainly on my fingers. They lead...

•4 years ago

Help!

Hi, I have been diagnosed with Pm scl 75. Is there anyone else with this? I know it’s an overlap syndrome so I have Raynaulds and Sjogrens, joint pain... I...

Hi, I have been diagnosed with Pm scl 75. Is there anyone else with this? I know...

•4 years ago

Sore Lips

Can anyone offer a recommended product for sore cracked split lips, would be really gratefully. Thank you

Can anyone offer a recommended product for sore cracked split lips, would be rea...

•4 years ago

Power tools

Hi all I wondered if any can help with advice,my employer has said my job role is under review and I must stop using low impact power tools because I suffer...

Hi all I wondered if any can help with advice,my employer has said my job role i...

•4 years ago

COVID 19 Vaccination

Has anyone who is taking an immune suppressing tablet (like Mycophenylate), heard whether it is okay to have the new vaccination. I'm sure I heard recently...

Has anyone who is taking an immune suppressing tablet (like Mycophenylate), hea...

•4 years ago

Pulmonary hypertention?

Anyone with Crest syndrome firmiliar with pulmanary hypertension ? I have been geeting weird feelings in my chest like my heart beating slower and its between...

Anyone with Crest syndrome firmiliar with pulmanary hypertension ? I have been g...

•4 years ago

Different results with two blood tests anyone?

I was told by my GP I tested positive for Scleroderma and just saw a Rheumatologist last month. Of course she wanted to run her own tests because she swears...

I was told by my GP I tested positive for Scleroderma and just saw a Rheumatolog...

•4 years ago

Fingers slowly bending

Has anybody has experience of fingers slowly curling please? I am quite worried about this and do exercises every day... the skin over the backs of my hands...

Has anybody has experience of fingers slowly curling please? I am quite worried ...

•4 years ago

Lip biopsy result

I received the result of my lip biopsy, it says the biopsy shows features consistent with sjogren's but level of inflammation is low, with a focus score of...

I received the result of my lip biopsy, it says the biopsy shows features consis...

•4 years ago

Dr. Gunawardena

Does anyone have experience of seeing Dr. Gunawardena at Bristol?

Does anyone have experience of seeing Dr. Gunawardena at Bristol?

•4 years ago

sores inside tip of nose

All these symptoms are coinciding with the cold weather. My nose is constantly dripping and now I have permanent sores just inside the tip. It used to be...

All these symptoms are coinciding with the cold weather. My nose is constantly ...

•4 years ago

Warm swollen hands

Hi I think I have raynauds . when my hands are cold they turn like purple but as soon as we have the heating on they go really warm and a little swollen and...

Hi I think I have raynauds . when my hands are cold they turn like purple but a...

•4 years ago

Anyone else have this?

Looks like dried blood in the cuticle. My index finger on the other hand has it too. I have Inflammatory arthritis and Raynaud's, is it connected?

Looks like dried blood in the cuticle. My index finger on the other hand has it ...

•4 years ago

Reflux advice please

Hello everyone, I’m having a bad reflux flare up again and wondered how everyone else manages this problem. Last year I was put on a ppi but as most of my...

Hello everyone, I’m having a bad reflux flare up again and wondered how everyone...

•4 years ago

New to the site

I had Sjogren's antibodies and slightly positive SCL 70 two years ago. Other than photosensitivity and leg pain, I didn't have any other symptoms. In March of...

I had Sjogren's antibodies and slightly positive SCL 70 two years ago. Other tha...

•4 years ago

Finally got to see a Rheumatologist.

I was told by my General Dr. that my ANA test showed that I had ANTISCLERODERMA-70 Antibodies. That along with the symptoms I have been having he recommended...

I was told by my General Dr. that my ANA test showed that I had ANTISCLERODERMA-...

•4 years ago

Just remember you are you own best advocate!

https://selfmanagescleroderma.com/lessons/what-is-self-advocacy.html

https://selfmanagescleroderma.com/lessons/what-is-self-advocacy.html

•4 years ago