Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,827 members • 5,405 posts

All posts for May 2012

Does anyone else with raynauds, have problems with sweating in their underarms.

Any advice to prevent excessive sweating, as its embaressing, any products you use

Any advice to prevent excessive sweating, as its embaressing, any products you u...

bookworm

•12 years ago

6 Replies

General rant about air conditioning !!!

Ok so the weather has been fantastic, I recently had iloprost so am doing really well with the old raynauds, its barely affecting me at all (if i get moments...

Ok so the weather has been fantastic, I recently had iloprost so am doing really...

Rp321

•12 years ago

11 Replies

Cosmetic problems

Hi What does anyone use to remove hair from upper lip or to cleanse the face? I used a face pack a few weeks ago and the next day my skin was red and...

Hi What does anyone use to remove hair from upper lip or to cleanse the face? ...

Irene55

•12 years ago

8 Replies

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RIP Shelley

My sister list her battle with scleroderma and pulmonary fibrosis on May 18, 2012. I am here to help anyone with what I've learned from these ugly diseases....

My sister list her battle with scleroderma and pulmonary fibrosis on May 18, 201...

iconcur35

•12 years ago

19 Replies

Fibromyalgia,Rheumotoid Arthritus,Lupus and Raynauds.

I suffer from the above conditions. My medications at the moment are Amitriptyline,Etodolac,Gabapentin,Sulfasalazine, Prednasole,Nifedipine and more recently...

I suffer from the above conditions. My medications at the moment are Amitriptyli...

Loopy-loo

•12 years ago

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+ bladder infestions also in this painful experience?

maka

•12 years ago

1 Reply

What do you use to stimulate circulation in hands and feet?

Jean15

•12 years ago

10 Replies

hi

Iloprost just back from having my first session of iloprost at the Royal Free Hospital where the nurses doctors and all staff in ward a Pitu where amazing....

Iloprost just back from having my first session of iloprost at the Royal Free...

britty

•12 years ago

10 Replies

What can I do about hands seizing up?

I'm 16. I was diagnosed with Raynaud's last year – my symptoms are cold, numb fingers and toes, purple, yellow, black or red hues in extremities, occasional...

I'm 16. I was diagnosed with Raynaud's last year – my symptoms are cold, numb fi...

ilexrava

•12 years ago

6 Replies

Hi, is there anyone else with raynauds and scleroderma that suffers with tender, aching muscles in the arms, hips, and thighs ?

I wake every night with pain, my hands and knees are also stiff and painful. I am taking so many pain killers and apply analgesia gel before getting into bed....

I wake every night with pain, my hands and knees are also stiff and painful. I a...

wartsandall

•12 years ago

9 Replies

Ground glass appearance on CT scan

Hi, My GP has just informed me today that my last 2 CT scans have shown ground glass appearance on the right lobe of my lung. Glad someone told me, no-one...

Hi, My GP has just informed me today that my last 2 CT scans have shown grou...

Hidden

•12 years ago

6 Replies

Has anyone had a High Resolution CT scan of chest

I live in Spain and have been told I need a TAC AR test. From what I can tell on the internet it is a High Resolution Thoracic Computed Tomography - has anyone...

I live in Spain and have been told I need a TAC AR test. From what I can tell on...

sandraj

•12 years ago

7 Replies

New MD

Started with a new MD this week. She says she believes that the sjogren's is primary. More testing, biopsy and scans. She is believable. The last guy, not so...

Started with a new MD this week. She says she believes that the sjogren's is pri...

SheriFrost

•12 years ago

1 Reply

Hidden Ulcers

I got out of the bath this morning and started to cut my toenails , everything was going fine ( my feet are still purple despite the warmer weather ) I have a...

I got out of the bath this morning and started to cut my toenails , everything w...

TJme

•12 years ago

5 Replies

Hi all , dose anybody get recurring chest infections

i seem to get infections quite a lot, i need antibiotics every time it happens

lynbw

•12 years ago

11 Replies

Does turmeric help with circulation? Anyone tried?

foxglove

•12 years ago

5 Replies

Scleroderma and very dry skin

I have just had my 5th Cyclophosphomide chemo for scleroderma lung fibrosis. Only 1 to go!! I was telling my chemo nurse about my very dry skin, particularly...

I have just had my 5th Cyclophosphomide chemo for scleroderma lung fibrosis. On...

Carolanne

•12 years ago

13 Replies

Anyone with Scleroderma with secondary raynaud and pulmonary fibrosis and pulmonary hypertension?

lakemon

•12 years ago

15 Replies

Do any of you have secondary Sjogrens?

I have this secondary to my scleroderma/PBC. My eyes are very dry and i use viscotears for them. My mouth is also a bit dry, and i have developed cracks on my...

I have this secondary to my scleroderma/PBC. My eyes are very dry and i use visc...

Hidden

•12 years ago

16 Replies

Runs in families????

When I was first diagnosed with scleroderma in 2000,no one in my family had ever heard of or experienced anything like it. Now I have an aunt, 10 years older...

When I was first diagnosed with scleroderma in 2000,no one in my family had ever...

lifeforce

•12 years ago

6 Replies

Biofeedback for Raynauds

Having tried everything I can get my hands on to alleviate my raynauds over the years, I'm considering Biofeedback.Has anyone had any experience of this & did...

Having tried everything I can get my hands on to alleviate my raynauds over the ...

Sue_Hazel

•12 years ago

6 Replies

Much help needed please. . . SSc DUs complicated by Raynaud's. . . Throbbing pain & no sleep in over a month

Hello, I live in New Jersey with my boyfriend & our 2 month old son. My boyfriend was diagnosed with Scleroderma & Raynaud's at about age 9. He is now age...

Hello, I live in New Jersey with my boyfriend & our 2 month old son. My boyfrie...

80881lrd

•12 years ago

13 Replies

Diffuse Systemic Scleroderma

My kidneys failed in 2009 & i nearly died, i was diagnosed with Diffuse Systemic Scleroderma 5 days after my kidneys failed. Over the past 2 & a half years i...

My kidneys failed in 2009 & i nearly died, i was diagnosed with Diffuse Systemic...

keza

•12 years ago

7 Replies

I have crest and had a foot op July 2011 and it has not healed.In time my toe will have to be amputated.Has anyone had experience of this.

smiler2012

•12 years ago

7 Replies

raynauds

hi there can anyone tell me, is it safe to force circulation back ie in hot water/on radiator as i have been told not too, is it also ok to use...

hi there can anyone tell me, is it safe to force circulation back ie in hot wat...

angelah

•12 years ago

9 Replies

New to HealthUnlocked

Hi I've just joined you and it's interesting to read all your comments. I have secondary Raynaud's plus Sjogren's and hypothyroidism. I'm having a lot of...

Hi I've just joined you and it's interesting to read all your comments. I have s...

MInerva

•12 years ago

7 Replies

Can anyone offer any help with hot flushes

I have raynauds and limited scleroderma so l have to keep warm but at the moment l am having really bad hot flushes can anyone recommend any help. thank you

I have raynauds and limited scleroderma so l have to keep warm but at the moment...

rosewood

•12 years ago

8 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for May 2012

Does anyone else with raynauds, have problems with sweating in their underarms.

General rant about air conditioning !!!

Cosmetic problems

RIP Shelley

Fibromyalgia,Rheumotoid Arthritus,Lupus and Raynauds.

+ bladder infestions also in this painful experience?

What do you use to stimulate circulation in hands and feet?

hi

What can I do about hands seizing up?

Hi, is there anyone else with raynauds and scleroderma that suffers with tender, aching muscles in the arms, hips, and thighs ?

Ground glass appearance on CT scan

Has anyone had a High Resolution CT scan of chest

New MD

Hidden Ulcers

Hi all , dose anybody get recurring chest infections

Does turmeric help with circulation? Anyone tried?

Scleroderma and very dry skin

Anyone with Scleroderma with secondary raynaud and pulmonary fibrosis and pulmonary hypertension?

Do any of you have secondary Sjogrens?

Runs in families????

Biofeedback for Raynauds

Much help needed please. . . SSc DUs complicated by Raynaud's. . . Throbbing pain & no sleep in over a month

Diffuse Systemic Scleroderma

I have crest and had a foot op July 2011 and it has not healed.In time my toe will have to be amputated.Has anyone had experience of this.

raynauds

New to HealthUnlocked

Can anyone offer any help with hot flushes

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