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Scleroderma & Raynaud's UK (SRUK)

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Systemic sclerosis with Reynauds

I have recently been diagnosed with atrial flutter and been out on apixiban to prevent blood clots, due to have a cardio conversion. Can anyone tell me if...

I have recently been diagnosed with atrial flutter and been out on apixiban to p...

•3 years ago

Calcium help

What can be done to stop calcium lines I’m getting on my face nearly every day I really need help asap as I’m waiting to get confirmation I have scleroderma

What can be done to stop calcium lines I’m getting on my face nearly every day I...

•4 years ago

Hand held massagers any help?

I have had a tightening of skin around my foot, ankle and calve. My foot often feels numb and cold. I do moisturise and use a hot water bottle but I was...

I have had a tightening of skin around my foot, ankle and calve. My foot often f...

•4 years ago

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Coronavirus and travel with Crest syndrome.

Due to travel to Thailand and Dubai. I have CREST syndrome. Has anyone had any advice from their specialist about Coronavirus? I’m worried about going with my...

Due to travel to Thailand and Dubai. I have CREST syndrome. Has anyone had any a...

•5 years ago

No fingerprints

Hi / I have just returned from a visit to USA and it was interesting that on this occasion when going through screening they could not get finger and thumb...

Hi / I have just returned from a visit to USA and it was interesting that on thi...

•5 years ago

Calcinosis??

Posted picture of ? Early Calcinosis

Posted picture of ? Early Calcinosis

•5 years ago

Painful legs when walking

Does anybody suffer with painful, heavy legs when walking. I have recently developed this and it is worrying me. The pain goes away when I stop walking but...

Does anybody suffer with painful, heavy legs when walking. I have recently devel...

•5 years ago

Radiotherapy to pelvic region with crest.

Hello I am desperately looking for answers to my health problems. I have CREST syndrome and have had for 15 years, I am a 53 year old white English female. I...

Hello I am desperately looking for answers to my health problems. I have CREST ...

•5 years ago

low dose naltrexone for CREST with Raynaud's and IBD?

Hello. Does anyone else have IBD and CREST? Technically, my GI doctor said it looks like I have "mild Crohn's activity", although there's a slight chance the...

Hello. Does anyone else have IBD and CREST? Technically, my GI doctor said it ...

•6 years ago

Hopeful

Hi, I don't really know much about computers but am trying to find someone,anyone who also has scleroderma, raynauds, and other seemingly still unknown...

Hi, I don't really know much about computers but am trying to find someone,anyon...

•6 years ago

Vitamin B and Folate levels.

My GP. Noticed three weeks ago that my vitamin B and folate levels were low. Haveing been diagnosed with scleroderma for ten years plus now I should have...

My GP. Noticed three weeks ago that my vitamin B and folate levels were low. Hav...

•6 years ago

Nere

Recently diagnosed with Crest. Main complaint was Raynauds, and given my age (59) Ordered lab tests. It turned out I'm ANA positive, centomers number also...

Recently diagnosed with Crest. Main complaint was Raynauds, and given my age (59...

•7 years ago

Crest SSC ..can anyone advise ?

Hi all, Was wondering if anyone else on here has developed neuropathy in the arms and legs due to there Crest... Also My Liver gamma GT level is 556 ... a...

Hi all, Was wondering if anyone else on here has developed neuropathy in the arm...

•7 years ago

Help with crest symptoms

Hi everyone, My name is Cathie. I was diagnosed with crest 5 weeks ago. The results of tests are still ongoing. I am a single mother and full of anxiety for...

Hi everyone, My name is Cathie. I was diagnosed with crest 5 weeks ago. The res...

•7 years ago

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