Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,410 posts

All posts for September 2023

SIBO symptoms?

Good evening, I am struggling with stomach problems and am trying to find out if my symptoms could be caused by SIBO.please can anyone advise if they have...

Good evening, I am struggling with stomach problems and am trying to find out i...

•7 months ago

CREST systemic sclerosis

spent the day at the Sheffield hospital yesterday having a heart catheterisation and when all results were in the consultant said I have developed pulmonary...

spent the day at the Sheffield hospital yesterday having a heart catheterisation...

•7 months ago

Royal Free consultation – result

In case anyone's interested, I spent 3 hours at the RF having my heart and lungs checked very thoroughly, and then a general chat with a consultant – who...

In case anyone's interested, I spent 3 hours at the RF having my heart and lungs...

•7 months ago

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Royal Free visit

I have a general review appointment at the scleroderma unit tomorrow afternoon – cardiology, lung function and rheumatology. I haven't been since 2020 so want...

I have a general review appointment at the scleroderma unit tomorrow afternoon –...

•7 months ago

Mycophenolate

Hi, just wondering if anyone else has problems with fluctuating sugars levels whilst taking this drug ? Lifestyle and diet have been ruled out for me, so it...

Hi, just wondering if anyone else has problems with fluctuating sugars levels wh...

•7 months ago

Sildenafil

I'm about to start talking sildenafil for my Raynaud's,having tried Nifedipine and losartan with no noticeable effect.Any advice?? Interestingly the leaflet...

I'm about to start talking sildenafil for my Raynaud's,having tried Nifedipine a...

•7 months ago

Urgostart Plus dressing

I was wondering if anyone has any experience with a new wound dressing Urgostart Plus. I am seeing a tissue viability nurse & GP surgery nurse, they are trying...

I was wondering if anyone has any experience with a new wound dressing Urgostart...

•8 months ago

Calcinosis

I was diagnosed with scleroderma in 1998. I had been diagnosed with Raynauds before that and Rheumatoid Arthritis. Lucky me! My hands give me the most...

I was diagnosed with scleroderma in 1998. I had been diagnosed with Raynauds b...

•8 months ago