Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,837 members • 5,410 posts

All posts for March 2024

Diagnosis

Has anyone been diagnosed with a differential: Eosinofillic Fasciitis /Diffuse Scleroderma/Pan Sclerotic Morphea. I was diagnosed in 2011 with diffuse...

Has anyone been diagnosed with a differential: Eosinofillic Fasciitis /Diffuse S...

Loobyloo12

•29 days ago

Be the first to reply

Bursitis of toes & Steroid Injection

I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can...

I've had pain from between the second & third toe since last May. It hurts to st...

sarahsch

•29 days ago

11 Replies

Sjogrens Syndrome

Sjogrens, Raynauds, Mixed Connective Tissue Disorder….. was diagnosed maybe 20 years ago with Sjogrens. No treatment was needed other eye drops. Then I...

Sjogrens, Raynauds, Mixed Connective Tissue Disorder….. was diagnosed maybe 2...

Juanburr1950

•1 month ago

3 Replies

Want to take advantage of all our features? Just log in!

Has anyone been prescribed Fluoxetine for Raynaud's?

I have taken 4mg of Lacidipine for Raynaud's for several years. Nifedipine caused bad headaches so Lacidipine was prescribed instead. I don't get full blown 3...

I have taken 4mg of Lacidipine for Raynaud's for several years. Nifedipine cause...

lynntregaron

•1 month ago

2 Replies

Has anyone been prescribed Mycophenolate for stiff and painful hands rather than for ILD?

I have limited scleroderma and have been taking Hydroxychloroquine for 10 years. 2 years ago I developed corneal lesions which worsened over the next year. 1...

I have limited scleroderma and have been taking Hydroxychloroquine for 10 years....

lynntregaron

•1 month ago

17 Replies

Need help

Recently diagnosed with raynauds, I have been diagnosed with autoimmune, lupus 10 years ago, I was diagnosed raynauds 2 days ago when I went to the emergency...

Recently diagnosed with raynauds, I have been diagnosed with autoimmune, lupus 1...

Grammi5

•1 month ago

1 Reply

Raynaud's in nipples?

Anyone else get this?

Brychni

•1 month ago

9 Replies

Telangiectasias

Hi I have developed telangiectasias on my face and neck due to my schleroderma.. has anyone had treatment for this and did you have to pay private .. another...

Hi I have developed telangiectasias on my face and neck due to my schleroderma.....

Tmontana

•1 month ago

6 Replies

vitamins

Having scleroderma is there any vitamins that we should stay away from

Maxamillions

•1 month ago

7 Replies

Dorsal Sympathectomy

Did anyone have a Dorsal Sympathectomy for Raynaud’s. Did it help?

Dermatray15

•1 month ago

Be the first to reply

Life Insurance

Hi, Been diagnosed with ltd systemic sclerosis and fibromyalgia Jun 23, has had Raynaud's for a good 10+ years. I'm currently looking at getting life insurance...

Hi, Been diagnosed with ltd systemic sclerosis and fibromyalgia Jun 23, has had ...

beaglemum22

•1 month ago

8 Replies

Experience of minocycline?

The Royal Free consultant has suggested I go on minocycline for 3 months, to reduce the size of some calcinosis lumps. Has anyone had experience of this?...

The Royal Free consultant has suggested I go on minocycline for 3 months, to red...

LadyTrundle

•1 month ago

3 Replies

chilblanes

I have developed chilblanes on one toe and possibly on another any ideas on treatment's or remedy

I have developed chilblanes on one toe and possibly on another any ideas on trea...

fingers

•1 month ago

4 Replies

Fillers

Has anyone had fillers? I have scleroderma…I have done Botox and I have had mild chemical peels. If you have what kind of filler did they use? thank you

Has anyone had fillers? I have scleroderma…I have done Botox and I have had mild...

Maxamillions

•2 months ago

4 Replies

collagen

I’m wondering if anyone takes a collagen supplement for your skin (wrinkles) I’m not sure if anyone with scleroderma is able to…does it hurt us more ? thanks...

I’m wondering if anyone takes a collagen supplement for your skin (wrinkles) I’m...

Maxamillions

•2 months ago

4 Replies

Raynauds and Hypermobility

Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative....

Hello, I've been diagnosed with primary Raynauds which is getting worse. I've h...

Boudica78

•2 months ago

8 Replies

Outdoor working

Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change....

Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned abo...

ApusApus

•2 months ago

2 Replies

Secondary Raynauds , haemorrhaged capillaries near fingernails

I've had secondary raynauds for about 3 years, diagnosed by nailfold capillaroscopy and thermology (just told bluntly that my capillaries are abnormal) I've...

I've had secondary raynauds for about 3 years, diagnosed by nailfold capillaros...

andy7551

•2 months ago

5 Replies

Scleroderma

hello everyone I have had scleroderma for 15 years now and on methotrexate which has kept it at bay but now I suffer with a painful left hip which doctors have...

hello everyone I have had scleroderma for 15 years now and on methotrexate which...

Dudman1984

•2 months ago

5 Replies

backs of hands

does anyone here get red spots on the backs of their hands and tops of fingers?

does anyone here get red spots on the backs of their hands and tops of fingers? ...

Brychni

•2 months ago

4 Replies

New Rheumatology Referral - hope it comes through quickly!

Hello folks, I’ve had fairly mild Reynaud’s for a long time and have more recently been diagnosed with fibromyalgia due to ongoing raised glands, pain &...

Hello folks, I’ve had fairly mild Reynaud’s for a long time and have more recent...

Purple_Badgers

•2 months ago

7 Replies

Acid Reflux - coughing

I have been suffering for the last 7 weeks with a constant cough. I take Gaviscon and 1 x 20mg omeprazole, I have not seen a doctor yet as I have been away....

I have been suffering for the last 7 weeks with a constant cough. I take Gavisco...

Gib90

•2 months ago

17 Replies

ulcer on fingertip?

I no longer know where to post this so it's going on Lupus website too. Anyway, for about a month, among all the other weird goings on on my hands and...

I no longer know where to post this so it's going on Lupus website too. Anywa...

Brychni

•2 months ago

9 Replies

fluoxetine

hi So I’ve asked before about Fluoxetine as treatment for my raynauds I’ve been told it’s extreme primary although they haven’t ruled out secondary. I’m...

hi So I’ve asked before about Fluoxetine as treatment for my raynauds I’ve been...

Enjoyswalking

•2 months ago

4 Replies

calcinosis

does anyone have any home remedies for dissolving a calcium deposit.

Maxamillions

•2 months ago

8 Replies

Fingertips

...forgot to say and couldn't edit previous post, my fingertips regularly look wrinkly like raisins when they're white.

...forgot to say and couldn't edit previous post, my fingertips regularly look ...

Brychni

•2 months ago

Be the first to reply

Fingertips, toes

Hello allFor decades I've had Raynaud's, since 17. Got really bad early forties then after being diagnosed with Undifferentiated inflammatory arthritis and...

Hello allFor decades I've had Raynaud's, since 17. Got really bad early forties...

Brychni

•2 months ago

7 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for March 2024

Diagnosis

Bursitis of toes & Steroid Injection

Sjogrens Syndrome

Has anyone been prescribed Fluoxetine for Raynaud's?

Has anyone been prescribed Mycophenolate for stiff and painful hands rather than for ILD?

Need help

Raynaud's in nipples?

Telangiectasias

vitamins

Dorsal Sympathectomy

Life Insurance

Experience of minocycline?

chilblanes

Fillers

collagen

Raynauds and Hypermobility

Outdoor working

Secondary Raynauds , haemorrhaged capillaries near fingernails

Scleroderma

backs of hands

New Rheumatology Referral - hope it comes through quickly!

Acid Reflux - coughing

ulcer on fingertip?

fluoxetine

calcinosis

Fingertips

Fingertips, toes

Search posts

Pinned Posts

Latest poll

How do you pronounce Raynaud's? Listen to English Cambridge Dictionary: http://bit.ly/2DmGhmz Vote now. If other then reply below.

Topics

Archive