Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,837 members • 5,410 posts

All posts for February 2023

Looking for a recent post...

Can't find a post that a gentleman has written about a potential alternative treatment for i blv fibrosis, that I blv began with a 'C'. I didn't have time to...

Can't find a post that a gentleman has written about a potential alternative tre...

•1 year ago

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I have raynauds

I got diagnosed with raynauds a while ago but haven’t had any treatment offered but it’s beginning to be a bit debilitating and gets me down when I can’t do...

I got diagnosed with raynauds a while ago but haven’t had any treatment offered ...

•1 year ago

Methotrexate side effects in saliva?

Dear all, I have an unusual question for you. My new girlfriend has been experiencing unusual symptoms when I kiss her. She is having an adverse reaction...

Dear all, I have an unusual question for you. My new girlfriend has been exper...

•1 year ago

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chilblain damage to finger nails?

Hi folks, I wonder if anyone else has had the same problem. I had chilblains on 3 fingers, next to the finger nail base. 3 or 4 weeks later the skin has...

Hi folks, I wonder if anyone else has had the same problem. I had chilblains ...

•1 year ago

Mepacrin

hi everyone Just wanted to ask if anyone takes mepacrin alongside hydroxy ? I’ve taken it for 1 year and hydroxy for 3 years but it feels like they just work...

hi everyone Just wanted to ask if anyone takes mepacrin alongside hydroxy ? I’...

•1 year ago

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Tocilizumab for systemic sclerosis (with mild ILD) - any skin improvement?

Hello dear community, I have systemic sclerosis with mild ILD. Although my lung fibrosis is mild, my skin situation is getting worse. Initially I was...

Hello dear community, I have systemic sclerosis with mild ILD. Although my lun...

•1 year ago

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Success with with supplements/alternative treatments for Raynaud's (Curcumin, omega oils, magnesium oil)

I am still in the process of being diagnosed, but it looks like I have limited systemic scleroderma, with the main manifestations at the moment being...

I am still in the process of being diagnosed, but it looks like I have limited s...

•1 year ago

any researchers here? I might of found something

I’m on another scleroderma forum and my posts either get ignored or they become invisible. I don’t really want to waste more time writing about this until I...

I’m on another scleroderma forum and my posts either get ignored or they become ...

•1 year ago

Are there many of you on regular steroid tablets ,I'm trying to hold off

I'm trying to hold off but not sure suffer severe raynauds, mixed connective tissue disease, ibs etc. Fatigue in evening is big issue any suggestions, scared...

I'm trying to hold off but not sure suffer severe raynauds, mixed connective tis...

•1 year ago

Do you feel the cold more than folk who don't have ssc?

I read somewhere that people with ssc feel the cold/complain about feeling cold more than those without this condition, and because of the ssc, rather than if...

I read somewhere that people with ssc feel the cold/complain about feeling cold ...

•1 year ago

scared newly diagnosed

I’m afraid of this diagnosis it has been two years of constant back and forth to many doctors and nobody seemed to understand what was happening to me I had no...

I’m afraid of this diagnosis it has been two years of constant back and forth to...

•1 year ago

new job reasonable adjustments

Hi everyone, I’m starting a part time admin job soon and it’s a long time since I have worked in an office. I have had limited systemic sclerosis for over 10...

Hi everyone, I’m starting a part time admin job soon and it’s a long time sinc...

•1 year ago

Impact on your life by taking immunosuppressants?

Hi all, I have only recently been diagnosed SSc and have seen a rather rapid increase in progression of the skin and joint (and raynauds). After my 6m follow...

Hi all, I have only recently been diagnosed SSc and have seen a rather rapid inc...

•1 year ago

Hi Zinhle from South Africa, been daigonised with systematic scleroderma 7 ago, I've been changing different diets, which one is the best?

Diets nd mouth exercise?

Diets nd mouth exercise?

•1 year ago

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Worried about iloprost

Hi I go into hospital for 5 days of treatment on the 27 Feb for the first time and I am very anxious about the process. I've had little info from the......

Hi I go into hospital for 5 days of treatment on the 27 Feb for the first time a...

•1 year ago

vertigo issues

good morning, has anyone had vertigo issues? If so does it seem to occur more often than before? “Stay strong. “ Stay positive “🤠

good morning, has anyone had vertigo issues? If so does it seem to occur more of...

•1 year ago

Adenbach syndrome

I believe I may have this, since September 2022 I have had several (5) occurrences of bruising of fingers where blood supply to the tip is compromised,...

I believe I may have this, since September 2022 I have had several (5) occurrenc...

•1 year ago

Throat pain and swallowing problems

I have recently started to get a sore uncomfortable feeling in my throat and it feels really uncomfortable when i'm trying to swallow food or water. Is this...

I have recently started to get a sore uncomfortable feeling in my throat and it ...

•1 year ago

Diagnosed with Raynaud's 6/02/23 - help with toes please

Hi everyone, thank you for reading my first post. My symptoms are related to my fingers, toes and right heal in that they go white, numb and hurt. My 2nd...

Hi everyone, thank you for reading my first post. My symptoms are related to m...

•1 year ago

New Raynauds diagnosis

Hi All Went to my gp as one very cold day My feet went numb and lost all feeling and then when I looked it was white all across toes and heel. They have been...

Hi All Went to my gp as one very cold day My feet went numb and lost all feelin...

•1 year ago

New to forum, Hi advice needed

Hi first time here. Can anyone suggest a good rheumatologist in the North West. I'm under Mccabe at Withington in Manchester. I'm really struggling with...

Hi first time here. Can anyone suggest a good rheumatologist in the North West...

•1 year ago

SSc-related bronchiectasis

Does anyone know if you can have both bronchiectasis (which I've been diagnosed with) and interstitial lung disease (which I haven't)?

Does anyone know if you can have both bronchiectasis (which I've been diagnosed ...

•1 year ago

Chronic Kidney Disease

Hi, has anyone else been diagnosed with CKD in relation to Scleroderma or connective tissue disease. What’s the prognosis please? Ax

Hi, has anyone else been diagnosed with CKD in relation to Scleroderma or connec...

•1 year ago