Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for September 2012

Dry eyes worse at night

I have dry eyes and use liquifilm for them which works during the day, my trouble is during the night they don't last long enough. I put them in before I go to...

I have dry eyes and use liquifilm for them which works during the day, my troubl...

•12 years ago

Anybody experience of osteoathritis? Menopause? arrgh!!

On top of my scleroderma, primary biliary cirrhosis, sjogrens, hypothroidism, aneamia, vit D deficiency, and infertility i have had osteoathritis in my knees...

On top of my scleroderma, primary biliary cirrhosis, sjogrens, hypothroidism, an...

•12 years ago

I have hypo motility and suffer from constipation. Over the last few weeks I've had a huge swollen bloated tummy...........

Does anyone have any tips or ideas to help with these symptoms....... I'm so fed up,... in the morning my tummy is soft and flat....... until I have a cup of...

Does anyone have any tips or ideas to help with these symptoms....... I'm so fed...

•12 years ago

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Brrrr Winters certainly here!

Haven't been up long but when I ventured downstairs this morning the living room was registering 18.5C. Brrr it felt cold, thankfully the kettle went on....

Haven't been up long but when I ventured downstairs this morning the living room...

•12 years ago

Hi All

Hi everyone, I haven't blogged in ages, I lurk around a bit and put my two cents in here and there but just haven't had the energy to do much more than...

Hi everyone, I haven't blogged in ages, I lurk around a bit and put my two c...

•12 years ago

Bronchiectasis and Scleroderma.

My respiratory consultant does not seem to connect one with the other and yet on google it says that the Scleroderma can cause Bronchiectasis. I've become far...

My respiratory consultant does not seem to connect one with the other and yet on...

•12 years ago

Wish me luck guys... I ve got my dla tribunal tomorrow and I'm well nervous ...

Plus I'm not good under stress either... just hope its not to bad ... has anyone else gone through this ... if so I need as much help support as poss x x

Plus I'm not good under stress either... just hope its not to bad ... has anyone...

•12 years ago

Suggestions for warm boots (Raynauds)

Hi My feet are terrible when I sit still for any length of time. For work, I wear lycra tights, wool socks and leather boots, but they still freeze. I take...

Hi My feet are terrible when I sit still for any length of time. For work, I ...

•12 years ago

long term effects of iloprost

was just recently at my local hospital to see the rhemy, who worried me slightly. he kept saying about the long term effects of iloprost. Didnt actually...

was just recently at my local hospital to see the rhemy, who worried me slightly...

•12 years ago

very stiff arms and wrists does anyone else have this

•12 years ago

does anyone else have rhuematiod and scleroderma togethor

•12 years ago

Does anyone know if there is any evidence that suggests that a person with Systemic Sclerosis is most likely to have a weakened spine?

The reason why I am writing is because, I injured my back in 1999, whilst attending a patient in my work place. As a consequence, I have herniated, dehydrated...

The reason why I am writing is because, I injured my back in 1999, whilst attend...

•12 years ago

below

Hi Everyone, I've just been listening to 'Inside Health' on radio 4. They had a discussion on symptoms for a lack of vitamin B12(pernicious anemia). I ticked...

Hi Everyone, I've just been listening to 'Inside Health' on radio 4. They had a...

•12 years ago

Severe Raynauds

I have severe raynauds secondary to scleroderma. The raynauds has affected my hands, knees, and feet. I get arterial ulcers on my fingers and toes. I live in...

I have severe raynauds secondary to scleroderma. The raynauds has affected my ha...

•12 years ago

Mycophenolate..HELP

Hello. My name is Ashton, I am 21 and I have Systemic Sclerosis. At first, my Raynaud's affected me the most. I had at least 6-8 ulcers on my fingers at one...

Hello. My name is Ashton, I am 21 and I have Systemic Sclerosis. At first, my...

•12 years ago

white feet

i have raynauds in my feet lately inbetween my toes they seem to be white all the time my feet are cold but they still sweat everytime i see my doctor she dont...

i have raynauds in my feet lately inbetween my toes they seem to be white all th...

•12 years ago

Does anyone get the occasional tingling in hand/arms and feet/legs? I am also peri-menopausal?

•12 years ago

royal free

went to hospital to get my first check up after the illoprost my doctor was happy with me and checked me over a bit concluded that I need the illoprost twice...

went to hospital to get my first check up after the illoprost my doctor was hap...

•12 years ago

running nose

i have primary raynauds, does anyone else suffer from a running nose? when the tempreture changes even ever so slightly my nose runs continually, but i very...

i have primary raynauds, does anyone else suffer from a running nose? when the t...

•12 years ago

Is anyone else with raynauds having these symptoms!!! They said I have primary!!

Freezing cold most of the time... All over the body apart from sweating under the arm pits and groin area!!! Colour changes with pins & needle, numbness and...

Freezing cold most of the time... All over the body apart from sweating under th...

•12 years ago