Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for September 2024

Acid Reflux - anyone tried anything new that helps?

Hi Everyone, I'm still on a mission to try to find something that helps with reflux. Currently in the middle of another bad flare-up. No idea what's...

Hi Everyone, I'm still on a mission to try to find something that helps with r...

Duck33

•4 months ago

35 Replies

Shingles

Hi anyone had shingles on ankle with nerve damage?

Gran54

•4 months ago

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Suggestions welcome 🙏

Hi everyone Sorry to sound like cracked record but as the “ waking” headache enters its 6th year I’ve noticed a change . The headache is still very intense...

Hi everyone Sorry to sound like cracked record but as the “ waking” headache en...

Tiggywoos

•4 months ago

32 Replies

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SRUK Webinar - Physiotherapy for Scleroderma

Hi everyone! We will be hosting a webinar tomorrow on Physiotherapy for Scleroderma with William Gregory, a Consultant Physiotherapist working in...

Hi everyone! We will be hosting a webinar tomorrow on Physiotherapy for Scler...

SRUKadmin

Partner•4 months ago

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Twisting and it's nothing to do with Chubby Checker.

Hi all I don't post very often but I do read what you guys post. In fact I would say that I have learnt nearly everything I know from reading posts on this...

Hi all I don't post very often but I do read what you guys post. In fact I woul...

angelahook

•4 months ago

19 Replies

angiogram update

Hi all, Just a quick update for anyone that is interested, I went for the cardiac angiogram on Friday and apart from a few bruises and a rash, probably a...

Hi all, Just a quick update for anyone that is interested, I went for the card...

Buttsy

•4 months ago

2 Replies

Thoracic Sympathectomy

I just wondered if anyone has had a Thoracic Sympathectomy for Raynauds. I had the procedure done last November to see if it would help my raynauds, CRPS and...

I just wondered if anyone has had a Thoracic Sympathectomy for Raynauds. I had t...

Bessieboo1

•4 months ago

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USB Heated gloves for outdoors - home made

Fairly inexpensive too: - Two pairs of gloves, outer one with fingertip for touch-sensitive screens. - Wires from two "reptile heating pads" for $10USD on...

Fairly inexpensive too: - Two pairs of gloves, outer one with fingertip for touc...

RayStarAl

•4 months ago

4 Replies

supplements

Hi all new to this group and appreciate any help. I have Reynards and Systemic Scleroderma. My problem is I seem to catch any bugs going that either I catch...

Hi all new to this group and appreciate any help. I have Reynards and Systemic ...

Bickyn

•4 months ago

3 Replies

Waiting on diagnosis

hi everyone. I’m waiting on a diagnosis but my doctor thinks I have linear scleroderma, is there anyone on here that can have a chat to me about this please?...

hi everyone. I’m waiting on a diagnosis but my doctor thinks I have linear scler...

Angelemz85

•4 months ago

2 Replies

Do I have Raynauds?

Hi everyone, This is my first post here and I am hoping all you knowledgeable folk can help me decide ‘Next Steps’. I am a 61 yo female living in Hampshire &...

Hi everyone, This is my first post here and I am hoping all you knowledgeable f...

2SWD

•4 months ago

5 Replies

Poly Myalgia Rheumatica

I have scleroderma for past 12 + years and been on mycophenolate for 10 years for lung fibrosis I have now been diagnosed with PMR and in chronic pain...

I have scleroderma for past 12 + years and been on mycophenolate for 10 years fo...

Carolanne

•4 months ago

1 Reply

Recently Diagnosed

Hi Everyone, I’ve recently been diagnosed with Diffuse Systemic Sclerosis at 35, after about 9 months of experiencing various symptoms. One week ago, I saw a...

Hi Everyone, I’ve recently been diagnosed with Diffuse Systemic Sclerosis at 3...

Sebastian2024

•4 months ago

9 Replies

Problems with ankles ….

I was diagnosed with Scleroderma in 2008 although like many others I think it was well established before my diagnosis. I have had excellent treatment from Dr...

I was diagnosed with Scleroderma in 2008 although like many others I think it wa...

creditcrunchie

•4 months ago

Be the first to reply

Problems with ankles ….

I was diagnosed with Scleroderma in 2008 although like many others I think it was well established before my diagnosis. I have had excellent treatment from Dr...

I was diagnosed with Scleroderma in 2008 although like many others I think it wa...

creditcrunchie

•4 months ago

1 Reply

Sidenafil - does it help ?

hi , I have tried a few different meds for my raynauds including fluoxetine most recently. I haven’t found anything that helps and so stopped taking due to...

hi , I have tried a few different meds for my raynauds including fluoxetine mo...

PBMB

•4 months ago

24 Replies

High Calcification and stenosis

Morning All, I have been going through a series of test recently because I was getting chest tightness,I attributed it to GERDs and dysmotality,I had recently...

Morning All, I have been going through a series of test recently because I was ...

Buttsy

•4 months ago

13 Replies

Puffy fingers without Raynaud's?

I've committed the cardinal sin and entrusted Dr Google to diagnose me leading to feeling pretty distraught about the future, or lack of it... I've...

I've committed the cardinal sin and entrusted Dr Google to diagnose me leading t...

bracken30

•4 months ago

3 Replies

Rituximab- So Far

I had my first Rituximab at the beginning of July, the second a couple of weeks later and a couple of Iloprosts since then. I did not enjoy the infusions or...

I had my first Rituximab at the beginning of July, the second a couple of weeks ...

Lupiknits

•4 months ago

12 Replies

RSV Vaccine

The vaccine is only being given to 75 -79 yr old. I am 82 with scleroderma and other underlying health issues. The article I read said that the NHS is...

The vaccine is only being given to 75 -79 yr old. I am 82 with scleroderma an...

creditcrunchie

•4 months ago

6 Replies

Hospital referal

Hieveryone ! I have very bad reynauds and digital ulcers alongside stomach and bowel issues so have been referred to salford hospital in Manchester to...

Hieveryone ! I have very bad reynauds and digital ulcers alongside stomach and b...

Tmontana

•4 months ago

5 Replies

How were you diagnosed with Scleroderma?

I have recently been diagnosed with systemic scleroderma. My consultant seems to have based his diagnosis solely on my blood being tested positive for SCL70...

I have recently been diagnosed with systemic scleroderma. My consultant seems to...

Greetwell

•4 months ago

15 Replies

Hidden hernia

Anyone any hints etc on hidden hernia severe ongoing alst daily pain, long story don't want to bore you, having tried so many times for help mixed connective...

Anyone any hints etc on hidden hernia severe ongoing alst daily pain, long story...

Deby177

•4 months ago

1 Reply

SRUK fundraiser race result

Well the run I was doing to raise funds for SRUK was last week. Unfortunately I had to withdraw half way round as I got to a point where I was unable to...

Well the run I was doing to raise funds for SRUK was last week. Unfortunately I ...

MadDave

•5 months ago

4 Replies

Royal Free Nurses

Do others have trouble getting hold of the Royal Free hospital nurses. Whenever I leave a message I do not get a call back. Perhaps I’ve just been unlucky?

Do others have trouble getting hold of the Royal Free hospital nurses. Whenever ...

Badflower

•5 months ago

1 Reply

critical illness insurance

Hi All, I am trying to get an insurance for future critical illness, I have tried several providers but my request always gets rejected as I have been...

Hi All, I am trying to get an insurance for future critical illness, I have tri...

ScleroRay

•5 months ago

3 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for September 2024

Acid Reflux - anyone tried anything new that helps?

Shingles

Suggestions welcome 🙏

SRUK Webinar - Physiotherapy for Scleroderma

Twisting and it's nothing to do with Chubby Checker.

angiogram update

Thoracic Sympathectomy

USB Heated gloves for outdoors - home made

supplements

Waiting on diagnosis

Do I have Raynauds?

Poly Myalgia Rheumatica

Recently Diagnosed

Problems with ankles ….

Problems with ankles ….

Sidenafil - does it help ?

High Calcification and stenosis

Puffy fingers without Raynaud's?

Rituximab- So Far

RSV Vaccine

Hospital referal

How were you diagnosed with Scleroderma?

Hidden hernia

SRUK fundraiser race result

Royal Free Nurses

critical illness insurance

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