Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for September 2016

Undifferenated connective tissue disease struggling to carry on working

Undifferenated connective tissue disease is it reconisid as a disability?? I'm finding working life really hard and want help and advice if I was to give up...

Undifferenated connective tissue disease is it reconisid as a disability?? I'm f...

•8 years ago

Cyclophosphamide

I have had a few problems this year and have had my mycophenolate increased to 3 X 2 a day. My consultant says it may take up to 6 Months to feel an...

I have had a few problems this year and have had my mycophenolate increased to 3...

•8 years ago

Undifferenated connective tissue disease??

I was diagnosed with raynauds about 8 years ago was told it was primary raynauds and have just got back from rheumatologist after experiencing new symptoms...

I was diagnosed with raynauds about 8 years ago was told it was primary raynauds...

•8 years ago

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Any treatment or ways to loosen skin?

Any treatment or ways to loosen skin!? Getting proper down about face changes every one I see keep saying I have chNged n getting me really down and just want...

Any treatment or ways to loosen skin!? Getting proper down about face changes e...

•8 years ago

I MISS MY FLOWERS!!

hi everyone, this is kinda my first post,i did write a post about 4 years ago when i first got diagnosed with secondary raynauds,But i do read all posts on...

hi everyone, this is kinda my first post,i did write a post about 4 years ago wh...

•8 years ago

Face treatment?

Has anyone ever had any treatment and what did you have to try put feature back to your normal look with the most respect. I just had fillers on my nose as it...

Has anyone ever had any treatment and what did you have to try put feature back ...

•8 years ago

Knee replacement?

Hi everyone I was diagnosed with SSC 3 years ago on my first appointment with the specialist which was great but I have been suffering for many years with lots...

Hi everyone I was diagnosed with SSC 3 years ago on my first appointment with th...

•8 years ago

Stem cell transplant

I have been reading a lot about this and seems this is the cure for our dieses I am currently trying to get this done has anyone had it done or can tell me...

I have been reading a lot about this and seems this is the cure for our dieses I...

•8 years ago

Oxygen abroad

I am hoping to take a trip to Spain in October. Any advice or experience on getting oxygen there would be much appreciated. Is it best to hire and take a...

I am hoping to take a trip to Spain in October. Any advice or experience on gett...

•8 years ago

Amitriptyline

I have Raynaud's and am taking25 mg Amitriptyline for shingles after pain (PHN ). Seems to be conflicting opinions as to whether AMI. affects peripheral...

I have Raynaud's and am taking25 mg Amitriptyline for shingles after pain (PHN )...

•8 years ago

Scleroderma

Scleroderma how to live with it and it's challenges

Scleroderma how to live with it and it's challenges

•8 years ago

Weak Legs

Have had extreme muscle pain, loss of balance, weakness in knees and sore soles of feet. Was taking trimethoprim and stopped taking them, 5 days into 5 a...

Have had extreme muscle pain, loss of balance, weakness in knees and sore soles ...

•8 years ago

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Newly diagnosed

Hi. I'm new here. I developed Raynauds in January this year followed quickly by swollen and tightening skin on my hands. I think my Dr thought I had Lupus. I...

Hi. I'm new here. I developed Raynauds in January this year followed quickly by ...

•8 years ago

Calcinosis!

Hello everyone, I would like some help with a dilemma. I have an appointment to have my right thumb 'debulked' this Friday. A good term huh?! Basically they...

Hello everyone, I would like some help with a dilemma. I have an appointment to...

•8 years ago

Raynauds in summer

Hey! Everywhere talks about raynauds in cold weather but not hot weather.. For a year, I thought I had an autoimmune problems, one hand swells up with extreme...

Hey! Everywhere talks about raynauds in cold weather but not hot weather.. For ...

•8 years ago

Digital Ulcers

Any advice on my annoying digital ulcers please. I have had three lots of antibiotics and still no improvement. I've had them before and I know they take a...

Any advice on my annoying digital ulcers please. I have had three lots of antibi...

•8 years ago

Poor Memory and vertigo.

Hi I was diagnosed with limited SSc & Raynaud's 3 years ago. I have all the usual symptoms, hands, feet, oesophagus, lungs, achy joints/bones, fatigue & a year...

Hi I was diagnosed with limited SSc & Raynaud's 3 years ago. I have all the usua...

•8 years ago

Strange feeling in throat?

Hi everyone - this is my first post even though I've been in this group for about 3 years or so! Was diagnosed with LcSSc in 2012 after repeated attacks of...

Hi everyone - this is my first post even though I've been in this group for abou...

•8 years ago

Work

Who works full time with scleroderma?

Who works full time with scleroderma?

•8 years ago

I have a chance of a trip of a lifetime but not sure what to do

Hi I have a chance to travel to Australia from England next year. But with my illness Systemic Scleroderma and bad Raynards. I have already a few years back...

Hi I have a chance to travel to Australia from England next year. But with my i...

•8 years ago

Back from my hols

Hi everybody, back from my hols last night. Weather was scorching! so spent most of the time under parasol, because of mycophenolate. Now it is back to...

Hi everybody, back from my hols last night. Weather was scorching! so spent mo...

•8 years ago

Questions

Hi everyone I'm 50, male and was diagnosed with raynauds and limited scleroderma with overlap polymyositis almost a year ago. I've got a rheumatologist who's...

Hi everyone I'm 50, male and was diagnosed with raynauds and limited scleroderma...

•8 years ago