Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for July 2016

Salty or rotten taste 24/7 - anyone else?

I was going to ask if this is normal but it has become my normal so instead I'll just ask what I can do to improve it. I drink a lot of water, don't have a...

I was going to ask if this is normal but it has become my normal so instead I'll...

•8 years ago

Denosumab and diffuse SSc

Hi I was wondering if there is anyone out there that has had/ or taking Denosumab, for bones, our GP has recommended that my partner who has diffuse SSc,...

Hi I was wondering if there is anyone out there that has had/ or taking Denosuma...

•8 years ago

Spasms/seizures. Any idea?

I don't know if this is in the write section but I'll try. The last 11 weeks I've been ill. I've had streptococcus, ear infection in both ears, off balance,...

I don't know if this is in the write section but I'll try. The last 11 weeks I'v...

•8 years ago

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Wee Splotches of White?

Wee puzzle....anyone else notice white 'freckling' of their skin? I have loads of these white patches which look like freckles all over my arms which are...

Wee puzzle....anyone else notice white 'freckling' of their skin? I have loads o...

•8 years ago

The one thing you hate

What's the one thing you hate about your condition. I have Raynaud's disease. the thing I hate more then anything is people telling me I just get a bit cold,...

What's the one thing you hate about your condition. I have Raynaud's disease. th...

•8 years ago

Electrick body shock

Electric body shock hola a todos soy de Peru tengo electrick body shock en diferentes partes del cuerpo hace 7 años pero solo por momentos esto me asusta mucho...

Electric body shock hola a todos soy de Peru tengo electrick body shock en difer...

•8 years ago

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New diagnosis from skin biopsy

I have had episodes when my skin goes very hard and chunky. It especially affects my right arm going across my back. The skin feels wooden to touch. The first...

I have had episodes when my skin goes very hard and chunky. It especially affect...

•8 years ago

Doing the inca trail with raynauds

Hi I have mild raynauds and am going to be doing the inca train in a few months. Does anyone have any tips for my packing list? I am particularly concerned...

Hi I have mild raynauds and am going to be doing the inca train in a few months....

•8 years ago

Sclerderma and fatigue

HI i have raynauds sclerderma and for the last two months have been suffering with Anemia although my blood levels are now back to normal i am still suffering...

HI i have raynauds sclerderma and for the last two months have been suffering wi...

•8 years ago

Scleroderma and ulcers

Hi all. I have recently started to suffer really bad mouth ulcers at the moment I have 4 very large ones. I have just had iloprost infusions and started taking...

Hi all. I have recently started to suffer really bad mouth ulcers at the moment ...

•8 years ago

Why am I suffering when it's hot????

I was diagnosed with raynauds 6 years ago and was told it was primary only, only use to get it in my toes, but this year I'm getting new symptoms, I'm getting...

I was diagnosed with raynauds 6 years ago and was told it was primary only, only...

•8 years ago

Scleroderma and colostomy

I have had problems with my bowels for 10 years now and my consultant and GP both suggest I consider a colostomy, which they say transforms the lives of their...

I have had problems with my bowels for 10 years now and my consultant and GP bot...

•8 years ago

Swallowing/bowels

Hi haven't posted for a while. Having more problems with swallowing chocking on fluids and at times mixed consistencies. Also have to go for yet another...

Hi haven't posted for a while. Having more problems with swallowing chocking on...

•8 years ago

Burning mouth syndrome getting me down.

Hi everyone, this is the first time I have used this site . I've had burning mouth syndrome for 1 month now. I have been taking Amiltriptyline for 4 days now...

Hi everyone, this is the first time I have used this site . I've had burning mo...

•8 years ago

RECENT HOSPITAL APPTS

Hi, have had loads of hospital appts, ( another heart scan, occupational therapist, rheumatology consultant, and oral medicine dept ) and rheumatology...

Hi, have had loads of hospital appts, ( another heart scan, occupational therap...

•8 years ago