Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,028 members•5,552 posts

All posts for February 2017

Morphoea - Curious

Hi I started with Morphoea when I was 11 years old, I am now 40. I have flare ups of new patches every now and again. I am prescribed cream for the patches to...

Hi I started with Morphoea when I was 11 years old, I am now 40. I have flare up...

•8 years ago

Primary Raynaud's Syndrome

Hi I'm new here... 18 years old and was diagnosed with Primary Raynaud's last year, I constantly feel cold, my whole body shakes, my feet, knuckles, wrists,...

Hi I'm new here... 18 years old and was diagnosed with Primary Raynaud's last y...

•8 years ago

Amlodipine for Raynauds

I have seen a rheumatologist who is doing blood works to investigate the cause of raynauds. he has prescribed me Amlodipine at 2.5mg for the raynauds. I am a...

I have seen a rheumatologist who is doing blood works to investigate the cause o...

•8 years ago

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Massages

I been thinking about getting massages. Does anyone get them and does it help?

I been thinking about getting massages. Does anyone get them and does it help?

•8 years ago

Lower back and left side pain

Hi there, I was diagnosed with scleroderma and raynaud's in 2015 after feeling unwell since 2012. I have had lower back and left side pain for sometime now....

Hi there, I was diagnosed with scleroderma and raynaud's in 2015 after feeling u...

•8 years ago

Stiff achey hands

Does anyone with raynauds have stiff achey hands. Can't work out if it raynauds, fibromyalgia or arthritis causing it 😕

Does anyone with raynauds have stiff achey hands. Can't work out if it raynauds,...

•8 years ago

Weak legs

I have been diagnosed with limited scleroderma 18 months ago my legs are very weak if I try to lift my legs up while lying down they would shake badly does...

I have been diagnosed with limited scleroderma 18 months ago my legs are very we...

•8 years ago

I'm I overreacting

I'm I overreacting, I have Crest for about 8 years but only diagnosed officially for 3 years. I so very tired, still work full time but now finding working...

I'm I overreacting, I have Crest for about 8 years but only diagnosed officiall...

•8 years ago

Scleroderma

Since recently being diagnosed with scleroderma (which type I'm not sure) I feel so down and anxious and severely tired. Is anyone else feeling this way the...

Since recently being diagnosed with scleroderma (which type I'm not sure) I feel...

•8 years ago

Scientists monitor crosstalk between intestinal microbes and immune system

"Researchers have successfully 'listened in' on the crosstalk between gut microbes and the immune system. This is the first study to perform a system-wide...

"Researchers have successfully 'listened in' on the crosstalk between gut microb...

•8 years ago

Gangrene tip of index finger and thumb, any help PLEASE

Hi, just recently diagnosed with Limited Cutaneous Systemic Sclerosis, have been referred to the Royal Free. Have had a very negative few months from Nov with...

Hi, just recently diagnosed with Limited Cutaneous Systemic Sclerosis, have been...

•8 years ago

stomach trouble with scleroderma

Hi everyone. this is my first post. I was diagnosed with limited scleroderma six months ago. I have been suffering also with terrible reflux and my omeprazole...

Hi everyone. this is my first post. I was diagnosed with limited scleroderma six...

•8 years ago

Scleroderma in a 22 yr male????????

Hi,everyone....I am a 22 year old male....I was having Raynaud's like symptoms since last two winters though I didn't get it this winter perhaps bcoz of a...

Hi,everyone....I am a 22 year old male....I was having Raynaud's like symptoms s...

•8 years ago

Well here I am, unable to sleep due to pain :(

Hi guys, Haha typically my pain levels have soared the night when I really needed to be in bed early. I've got an important playdate with my nephew tomorrow,...

Hi guys, Haha typically my pain levels have soared the night when I really neede...

•8 years ago

Irony

Anyone find it ironic that so many are being diagnosed with Raynaud's and Scleroderma and no real cures to date? Am told that 200,000 patients added every...

Anyone find it ironic that so many are being diagnosed with Raynaud's and Sclero...

•8 years ago

Discharged! !

Hi all. Went to rheumy hospital appointment today. Haven't been since June 2015 so had my check up and she discharged me ! Even though I've had ridges on all...

Hi all. Went to rheumy hospital appointment today. Haven't been since June 2015...

•8 years ago

Should I be referred by GP?

Hello, I've suffered with Raynauds for almost 3 years now. I have been prescribed Adalat Retard by my GP. Recently my symptoms have gotten worse, both my feet...

Hello, I've suffered with Raynauds for almost 3 years now. I have been prescribe...

•8 years ago

ANA NEGATIVE LIMITED S S

Hi everybody, has anyone else got ANA negative limited s s, sjorgens, reynauds. I am fairly recently diagnosed and rheumatologist has done another set of...

Hi everybody, has anyone else got ANA negative limited s s, sjorgens, reynauds...

•8 years ago

Do I have to stay out of the sun?

Hi I was diagnosed with limited curtaneous systemic scleroderma and secondary reynauds 2 years ago. My consultant advised me to stay out of the sun but...

Hi I was diagnosed with limited curtaneous systemic scleroderma and secondary r...

bev-stanley2017

•8 years ago

Morphea

Hi, my 15 yr old son has had Morphea for about 6 years and in the last 18months his wrist has become completely 'stuck' in ulnar drift position. Having been...

Hi, my 15 yr old son has had Morphea for about 6 years and in the last 18months ...

•8 years ago

Eosinophilic fasciitis

I was told almost 4 years ago that I had Diffuse Systemic Cutaneous Sclerosis and that I was at the 'severe' end of the scale. Now there's a new theory that I...

I was told almost 4 years ago that I had Diffuse Systemic Cutaneous Sclerosis an...

•8 years ago

am i finding a pattern to this?

hi all, i have secondary raynauds,and so far we dont know what else is going on.Ive been suffering with swollen joints on all my fingers these last few weeks...

hi all, i have secondary raynauds,and so far we dont know what else is going on....

•8 years ago

Am I going mad?

Hi all, I was diagnosed with CREST approximately 18 months ago, since then my condition has moved on at some speed. Recently, I was referee to hospital with...

Hi all, I was diagnosed with CREST approximately 18 months ago, since then my co...

•8 years ago

Helpful supplements for Raynaud's and Erythromelalgia?

Has anyone that has both Raynaud's and Erythromelalgia found supplements that help? I've been doing research, but many of the supplements are for one or the...

Has anyone that has both Raynaud's and Erythromelalgia found supplements that he...

•8 years ago

Duppydoo

Hello peeps hope your all having a good day . I know our days vary for all of us don't they . Well today as I love to cook cakes standing in the kitchen in...

Hello peeps hope your all having a good day . I know our days vary for all of us...

•8 years ago

I learn something new everyday

Hi folks. Its 7 in the morning and been awake most of the night, just restless sleeping. After seeing an arthritis hospital doctor back in November about my...

Hi folks. Its 7 in the morning and been awake most of the night, just restless s...

•8 years ago