Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for January 2025

Can you get Scleroderma with a normal blood report?

I have symptoms of Scleroderma like skin tightening, lungs damage,Raynaud's, and difficulty swallowing. However, my blood tests for ANA, ACA, and Scl70 are all...

I have symptoms of Scleroderma like skin tightening, lungs damage,Raynaud's, and...

•4 days ago

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Update to my post re Scleroderma

Just an update to my earlier post, approximately a month ago, I have now received my blood test results which show nothing alarming or different so while I am...

Just an update to my earlier post, approximately a month ago, I have now receive...

•5 days ago

Low muscle tone

Starting two weeks before Christmas ‘23 I have had over eleven weeks in hospital and am now on total parenteral nutrition, scleroderma resulting in failed...

Starting two weeks before Christmas ‘23 I have had over eleven weeks in hospital...

•6 days ago

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Linked to Raynaurd's

I was diagnosed with Raynaurd's some 20 + years ago, recently in say last six months, I've woke up from sleeping on left side to not feeling anything in my...

I was diagnosed with Raynaurd's some 20 + years ago, recently in say last six mo...

•11 days ago

Micophenalic acid and weight loss

Hello everyone I am looking for some answers from you in regards to taking micophenalic acid and loosing weight. Ever since I start taking it I have loss...

Hello everyone I am looking for some answers from you in regards to taking mi...

•11 days ago

Can you get Raynaud's without color change?

Do you get Raynaud's in your hands without any change in color of your fingers from pink to white or blue? The palms of my hands turn white when they get cold...

Do you get Raynaud's in your hands without any change in color of your fingers f...

•13 days ago

Rheumatology Appointment

Finally after waiting about 10 months I have a rheumatology appointment later this month re my Raynaud's I will not want to be fobbed off off so I have started...

Finally after waiting about 10 months I have a rheumatology appointment later th...

•14 days ago

Raynaud’s Pain

Has anyone had a surgical procedure to relieve Raynaud’s pain? If not what do you do for pain?

Has anyone had a surgical procedure to relieve Raynaud’s pain? If not what do yo...

•14 days ago

sildenafil

hi I have raynauds and been diagnosed with a mild connective tissue disorder. I’m currently on 50 mg sildenafil 3 times a day - morning, lunchtime and bedtime...

hi I have raynauds and been diagnosed with a mild connective tissue disorder. I...

•15 days ago

Fingerless gloves

Hope everyone had a warm Xmas and Happy New Year to you all. I brought some fingerless gloves from a company called Turtle Doves. Perfect for my Raynaud's....

Hope everyone had a warm Xmas and Happy New Year to you all. I brought some fi...

•16 days ago

How was your Scleroderma diagnosed?

If you have Scleroderma then I would like to know how your Scleroderma is diagnosed? Was it confirmed from the blood test?

If you have Scleroderma then I would like to know how your Scleroderma is diagno...

•16 days ago

Scleroderma

Hi there, I've had scleroderma for just over 5 years now and have pulmonary hypertension and ILD (interstitial lung disease). Over the past few months my bowel...

Hi there, I've had scleroderma for just over 5 years now and have pulmonary hype...

•16 days ago

Colorectal surgeon recommendations

I've had Scleroderma for 14 years. This summer I started having extreme pain going to the loo. I'm dealing with it with laxatives and a diet change (no...

I've had Scleroderma for 14 years. This summer I started having extreme pain go...

•17 days ago