Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for July 2014

Fatigue - a possible answer

Hey Everyone I have been suffering worsening fatigue cumulating in periods of 2-3 days unable to stand and largely sleeping. As an athlete, this was even...

Hey Everyone I have been suffering worsening fatigue cumulating in periods of ...

•10 years ago

Shine On Conference 2014!

This year our annual Conference is being held in Chester on Friday 5th and Saturday 6th September at the Mercure ‘Abbots Well’ Hotel. This year’s theme ‘SHINE...

This year our annual Conference is being held in Chester on Friday 5th and Satur...

Partner•10 years ago

Lung involvement

I am curious if it is possible to have lung involvement as the first symptom of Scleroderma? I had a severe case of pneumonia and they did x rays and a ct...

I am curious if it is possible to have lung involvement as the first symptom of ...

•10 years ago

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I'm desperate for help!

Ive had systemic scleroderma, RA and Raynauds etc. for 14 years. One of my fingers has been numb and purple from the knuckle to the tip of my finger for 5...

Ive had systemic scleroderma, RA and Raynauds etc. for 14 years. One of my finge...

•10 years ago

Things are changing

I have just been for annual lung and heart check ups. PAH in its early stages is showing . I have obviously been reading up about it and I see an awful lot...

I have just been for annual lung and heart check ups. PAH in its early stages ...

•10 years ago

PFT results

I got the results of my PFT printed at my GP's surgery. Ok, so this is above most people's pay grade here but what do all those letters and numbers mean? I...

I got the results of my PFT printed at my GP's surgery. Ok, so this is above mos...

•10 years ago

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Pins & Needles in hands

Following a broken ankle 3months ago and being in plaster for months followed by a moonboot for a month I get pins & needles in both hands all the time, Could...

Following a broken ankle 3months ago and being in plaster for months followed by...

•10 years ago

Cold feet in hot weather

Hi- is anyone suffering with cold feet in bed in this hot weather? Last night I was soaked with sweat in bed, but my feet were cold; I just couldn't sleep....

Hi- is anyone suffering with cold feet in bed in this hot weather? Last night I ...

•11 years ago

Itching and Rashes

Hi there. I was diagnosed with limited systemic sclerosis three years ago. There has been no skin involvement but in Feb I developed rashes on backs of knees,...

Hi there. I was diagnosed with limited systemic sclerosis three years ago. Ther...

•11 years ago

frustrated with doctors ?

I was originally diagnosed 3 years ago with mixed connective tissue , Raynauds etc and in the last 3 years my walking has become very limited. I asked for a...

I was originally diagnosed 3 years ago with mixed connective tissue , Raynauds e...

sylviagreenhalgh

•11 years ago

Blood results

Hi everyone, I have just had a blood result with a raised CK of 254. Can anyone explain what this means? I may also need an EMG. Thanks. Debbie

Hi everyone, I have just had a blood result with a raised CK of 254. Can anyone ...

•11 years ago

My GP has stopped my domperidone medication

My GP has stopped the motility and anti sickness medication domperidone because it has been banned from long term use due to it causing adverse side effects...

My GP has stopped the motility and anti sickness medication domperidone because ...

•11 years ago

Polymyositis, scleroderma and Raynaud's

I am curious to find out if anyone in the UK have managed to attain a Disability Living Allowance? I have Polymyositis, scleroderma and Raynaud's. If you have...

I am curious to find out if anyone in the UK have managed to attain a Disability...

•11 years ago

A Daughters pain

I watched my mom die from Reynolds and scleroderma ,I was 10 when she died within a year of her diagnosis she was gone her first symptom was picking me up from...

I watched my mom die from Reynolds and scleroderma ,I was 10 when she died withi...

•11 years ago

Hands are red, peeling, wrinkling, and spreading up arms.

What treatments did you follow? A month now, and getting worse.

What treatments did you follow? A month now, and getting worse.

•11 years ago

Acupuncture for Raynauds?

It has been recommended that I should acupuncture for my Raynauds symptoms - has anyone else tried acupuncture for Raynauds? I'd be very interested to hear...

It has been recommended that I should acupuncture for my Raynauds symptoms - has...

•11 years ago

itching in hands and fingers swelling and become red

•11 years ago

Was sent appointment for follow up appointment with Rheumatologist while I was on holiday although they had been told 3 times the dates I

was away! Now been given date in October. Am seeing Gp on monday so am going to adk if he can arrange a private appointment or refer me to a different...

was away! Now been given date in October. Am seeing Gp on monday so am going to ...

•11 years ago

Has anyone been diagnosed with Candida in the GI tract>? If so what was the treatment ?

•11 years ago

Has anyone suffered with Leaky Gut? If so was this due to an autoimmune disease?

Also what was the treatment ?

Also what was the treatment ?

•11 years ago

Methotrexate side effects - has anyone any information about this list?

I have been taking methotrexate for 11 weeks for skin morphea, but have developed a collection of possible side effects: cramp, night sweats, eyes watering...

I have been taking methotrexate for 11 weeks for skin morphea, but have develope...

•11 years ago

Itchy scalp

My scalp is itching like crazy, google says it could be due to Scleroderma . Doc gave me cold tar shampoo, it hasn't worked,does anyone suffer with this ....

My scalp is itching like crazy, google says it could be due to Scleroderma . Doc...

•11 years ago

Please help me.. i accidentally put my hand in a working ac i dont know what has happened to my two fingers, its thick by now.. please help

my fingers have some type of water coming out from it but its not too much.. they are thick by this incident.. please help me guys its really paining..

my fingers have some type of water coming out from it but its not too much.. the...

•11 years ago