Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for February 2014

Has anyone experienced Multi-Connective Tissue Disease?

My sister has recently been diagnosed with this following a drs appointment with Raynauds. She has a whole load of other health issues that could be symptoms...

My sister has recently been diagnosed with this following a drs appointment with...

•11 years ago

Confused....I was diagnosed with Raynauds and hyperhidrosis in around 1980, whilst in South Africa . My surgeon performed a lumbar

Sympathectomy first, followed a year later by a cervical sympathectomy. The cervical one not being quite as successful, but not bad. Now I have restless leg...

Sympathectomy first, followed a year later by a cervical sympathectomy. The cerv...

•11 years ago

What is Raynaud's?

•11 years ago

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Dealing with raynauds

Hi I was diagnosed with raynauds about 3 years ago but over the past year or so its been getting worse . This winter has been unbearable as I'm now getting...

Hi I was diagnosed with raynauds about 3 years ago but over the past year or so ...

•11 years ago

Is it normal to have blue lips?

Hi all, I have mild raynauds and hypothyroidism. On most days my lips (especially the top lip) turn blue randomly throughout the day. It doesn't seem to matter...

Hi all, I have mild raynauds and hypothyroidism. On most days my lips (especiall...

•11 years ago

TAI CHI

I am thinking of doing Tai Chi. Does anyone do it and if so does it help. I have limited Systemic Sclerosis and Raynauds, I have tried Yoga but found I could...

I am thinking of doing Tai Chi. Does anyone do it and if so does it help. I have...

•11 years ago

February is Raynaud's Awareness Month

February is Raynaud’s Awareness Month in which we aim to highlight Raynaud’s and the work of the RSA by asking you to "Get your gloves on!". If you could tweet...

February is Raynaud’s Awareness Month in which we aim to highlight Raynaud’s and...

•11 years ago

Hi every one , i wonder if you can tell me if you get really bad muscle pain .

My left arm has been very painful between shoulder and elbow ,i cannot reach out and sleep with it ,the pain wakes me up . i have fibro as well as scleroderma...

My left arm has been very painful between shoulder and elbow ,i cannot reach out...

•11 years ago

Has any suffered from painful colour changing feet ?

Hi guys the last 2 night i have been woken by bad stabbing pains in my big toe and on the ball of foot i have just looked and the places where the pain was...

Hi guys the last 2 night i have been woken by bad stabbing pains in my big toe a...

•11 years ago

Hi I have been diagnosed with Raynauds and recently Scleroderma.

Since I was diagnosed with raynauds, I seem to suffer a lot of attacks and more so digital ulcers. Its terribly painful and give me sleepless nights, I'm...

Since I was diagnosed with raynauds, I seem to suffer a lot of attacks and more ...

•11 years ago

HI, Since being diagnosed with Raynaud's and Scleroderma I have suffered with rapid onset neuropathy I have lost surface skin feeling.

from head to toe including teeth. I have just been prescribed Gabapentin alongside my methotrexate. Does anyone have experience of this drug. Thanks Helen

from head to toe including teeth. I have just been prescribed Gabapentin alongsi...

•11 years ago

Are infected spots on your feet connected to Raynaud's ?

Hi i was diagnosed with Raynauds (primary i think) 16 years ago, i've been on and off nifidepine for this long (to conceive, side effects) but for the last 6...

Hi i was diagnosed with Raynauds (primary i think) 16 years ago, i've been on an...

•11 years ago

Heated motorcycle gloves

I have just been out for a motorcycle ride in temperatures below 10 degrees and tried my new Gerbing XR-12 heated motorcycle gloves with the 4 heat level...

I have just been out for a motorcycle ride in temperatures below 10 degrees and ...

•11 years ago

I am feeling desperate today, the calcinosis in my elbows and hands is getting bigger and more painful by the day. I have had a long

sleepless night with the pain. I had an emergency appointment with the Royal Free last week where I was told there is nothing new and nothing they can do to...

sleepless night with the pain. I had an emergency appointment with the Royal Fr...

•11 years ago

I have raynaurds limited scleroderma for over 20 years just got out hospital had inflamation stomach helibactor. Fluid round heart

Is this fluid round the heart dangerous

Is this fluid round the heart dangerous

•11 years ago

How to cope with snow with a baby raynauds sufferer?

just wondering how people manage with snow?can you go out in it or is it best to keep my 18 month old indoors? She's on nipedifine and that has brought down...

just wondering how people manage with snow?can you go out in it or is it best to...

•11 years ago

Any one know if there are any support groups in the Doncaster South Yorkshire area

•11 years ago

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Just had my second Prolia shot less than two weeks ago. A few days ago I noticed thick hard skin on a few knuckles...Scleroderma?

Am suspecting that the Prolia has started Scleroderma, which I have never had before. Will be talking to my rheumatologist soon. Anyone else have it start up...

Am suspecting that the Prolia has started Scleroderma, which I have never had be...

•11 years ago

Hi my partner has scleroderma,,he has lung problems,,finds it hard to swallow sometimes,, don't know much about it treatments,, medication

We live in aberdeen and there's not much doctors know about this condition.

We live in aberdeen and there's not much doctors know about this condition.

•11 years ago

Any advice on worsening Raynauds?

I have suffered from Raynauds for the past 30 years. i started treatment when i was 14 that included electric shocks through my nerves and nifedepine, wearing...

I have suffered from Raynauds for the past 30 years. i started treatment when i...

•11 years ago

Raynaud's Awareness Month

February is Raynaud's Awareness Month! If you can help to spread awareness by putting up some posters in your local area, for example in your workplace, local...

February is Raynaud's Awareness Month! If you can help to spread awareness by pu...

Partner•11 years ago

Does anyone with raynauds suffer with problems with earwax ?

Had to have my ears syringed a few times, and suctioned out once. Plus recently the dr said my ears were that blocked she couldn't see my ear drums and have to...

Had to have my ears syringed a few times, and suctioned out once. Plus recently ...

•11 years ago