Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,835 members • 5,407 posts

All posts for September 2013

Anti TFN and Methotrexate

I have just received an appointment from my Rheumatologist to attend an Anti TFN clinic. I have done some research on the internet and it all sounds a bit...

I have just received an appointment from my Rheumatologist to attend an Anti TFN...

•11 years ago

Has anyone with Scleroderma used Prolia for bone loss? Always concerned with side effects. Thanks!

•11 years ago

What does esr borderline mean!!!

I rang my doctor for my results and they said all else is ok but my esr came back borderline... I asked her what it meant and she didn't know also I asked...

I rang my doctor for my results and they said all else is ok but my esr came ba...

•11 years ago

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"Tissue bleeds" anyone?

I guess there are other names for these haemorrhages deep under the skin. Mine aren't like what's called "blood blisters" cause mine are deeper in my soft...

I guess there are other names for these haemorrhages deep under the skin. Mine ...

•11 years ago

Bendy elbows, knees and back? Really painful, please help?!

The (wrong) rheumatologist told me that my elbows, knees and back bend too far the wrong way, but since I saw her it has gotten far worse so that I am having...

The (wrong) rheumatologist told me that my elbows, knees and back bend too far t...

•11 years ago

Hi I have been diagnosed with scleroderma & raynauds & find no matter what the weather I seem to b in constant discomfort & pain

In my fingers . Is this normal & any thoughts or suggestions as I'm new to this & finding it difficult to cope!

In my fingers . Is this normal & any thoughts or suggestions as I'm new to ...

•11 years ago

Any travel suggestions with Raynauds?

Hi. I have raynauds. I am 49 and am starting uni. I have to walk to the train station which is 10 minutes away , wait 10 mins for train then travel for...

Hi. I have raynauds. I am 49 and am starting uni. I have to walk to the tr...

•11 years ago

help!!!!

hi all my daughter is 4 and was diagnosed with Raynard last yr and we had a bad winter last year and im finding it difficult to find clothes to keep her warm...

hi all my daughter is 4 and was diagnosed with Raynard last yr and we had a bad ...

•11 years ago

link between raynauds & chronic fatigue syndrome?

I have been diagnosed with raynauds after recurrent numbness in fingers & toes, blood tests showed no underlying illness. I have had a few bouts of flu like...

I have been diagnosed with raynauds after recurrent numbness in fingers & toes, ...

•11 years ago

Hi dose any 1 know were I can get heated gloves for a 2 year old please x

•11 years ago

8 year old with Raynauds. Need advice how to keep in uniform.

Hello, This is my first post. My eight year old daughter has had Raynauds for almost five years. She finds it difficult to keep to uniform In school as its a...

Hello, This is my first post. My eight year old daughter has had Raynauds for a...

•11 years ago

Hi All, Is anybody going to the Royal Free on October 7th ifor five days.

I was wondering if anybody here was going at the same time ? XX

I was wondering if anybody here was going at the same time ? XX

•11 years ago

I have been diagnosed with Morhea. It is a patch about 2 1/2 inches wide under my left arm. It does not itch but is excruciatingly painful

to the point I can barely lift my arm without pain. Can anyone give me suggestions for the pain. Thanks.

to the point I can barely lift my arm without pain. Can anyone give me suggesti...

•11 years ago

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New to all this and looking for some guidance from those with more experience

I'm a previously fit and healthy man of 58 and have gone from a sore knee, then a swollen calf less than a year ago, through a spell in A & E with chronic...

I'm a previously fit and healthy man of 58 and have gone from a sore knee, then ...

•11 years ago

I have had CREST for 10 years,recently developed GERD & Barretts. The discomfort in the GI tract is horrible despite being on various meds.

Can anyone recommend anything for the bloatedness - I am scared the Barretts will become malignant...

Can anyone recommend anything for the bloatedness - I am scared the Barretts wil...

•11 years ago

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Scleroderma has shrunk my mouth to point where dentist can hardly get instruments into it. Anyone else shared this experience?

I'll probably have to seek more specialised help, but wonder if anyone else has had this problem and, if so, how was it dealt with?

I'll probably have to seek more specialised help, but wonder if anyone else has ...

•11 years ago

Hey everyone I have been diagnosed with scleroderma and lupus 3 years ago is it normal to still have pain and fatigue even though am being

•11 years ago