Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,408 posts

All posts for August 2013

Advice for seeking medical advice for Raynauds Phenomenon please

I suffer with Raynauds Phenomenon & have done so since 2005. I ignored seeking any treatment for this because of my job & the implications it could have had...

I suffer with Raynauds Phenomenon & have done so since 2005. I ignored seeking a...

nursenicky13

•11 years ago

11 Replies

Its still August and I am sat in a microfibre fleece jumper and separate fleece and silk gloves!

Do others suffer with a feeling of coldness across their whole body if hands get cold, is this a Raynauds symptom, or should it just be hands and feet. I do...

Do others suffer with a feeling of coldness across their whole body if hands get...

c4ts

•11 years ago

3 Replies

hyperbaric oxygen therapy

Has anyone ever heard of hyperbaric oxygen therapy being used in the treatment of Raynauds sufferers to help improve circulation

Has anyone ever heard of hyperbaric oxygen therapy being used in the treatment o...

nannysue1950

•11 years ago

7 Replies

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Could it be Erythromelalgia in my knees?

Every morning I wake up with horribly stiff knees and elbows as well as all the usual symptoms of MCTD with Scleroderma and baking feet and hands thanks to...

Every morning I wake up with horribly stiff knees and elbows as well as all the ...

AMDP

•11 years ago

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Hi, I am new to this. I have systemic sclerosis,I've just been put on mycophenalate. Has anyone had this drug and how did you react to it?

Did you get any benefit and how long did it take to work? Thanks Dee

Dionne-F

•11 years ago

4 Replies

Anyone get bleeding under or blistering of very itchy skin?

I have limited systemic sclerosis and Raynauds and have had ''unscratchable'' itchy skin on and off for years. It is only relatively recently that my skin has...

I have limited systemic sclerosis and Raynauds and have had ''unscratchable'' it...

BarbJ

•11 years ago

9 Replies

I have nad CREST for 10 years,recently developed GERD & Barretts. I had a horrid gullet spasm during the night - does anyone else get these?

AliW

•11 years ago

4 Replies

Low blood sugar?

Is it possible to have really low blood sugar with raynauds, I mean, my rays is bad most of the time, but recently it seems to get worse when I'm low on blood...

Is it possible to have really low blood sugar with raynauds, I mean, my rays is ...

littlemissshy

•11 years ago

4 Replies

Gut infection

Hi guys not been here for a while as I have had gut infection am on auto supresants I take for my systemic scleroderma well on all sorts o be honest, the pain...

Hi guys not been here for a while as I have had gut infection am on auto supresa...

Dka48

•11 years ago

11 Replies

Had Raynauds for many years , now got numbness and tingling in toes and finger tips. Had bad virus 18 mths ago which made worse. Doc put me

On Adipine 20mg, helped with "fat" feeling in fingers but numbness/ tingling still comes and goes. Need fine touch for my job so having to give up. Also suffer...

On Adipine 20mg, helped with "fat" feeling in fingers but numbness/ tingling sti...

Minuet

•11 years ago

2 Replies

Suffering with Raynauds & Scleroderma, I have now gone on to have P.A.H, and the hickman line is the only way left to go.

Has anyone had this done. I'm really scared

patsyb

•11 years ago

4 Replies

Heated clothing at reduced prices.

Hi, I hope this doesn't contravene any advertising rules. I went to Maplins last week, they have heating gloves on offer at £3 and heated jackets about £9. I...

Hi, I hope this doesn't contravene any advertising rules. I went to Maplins last...

adow

•11 years ago

2 Replies

I've raynauds, sun Gave me rash on face! Dr says its roseasea! Was recom. by psychiatrist to read highly sensitive person very interesting!

Does anyone else have rash on face as well as raynauds!

poppykay

•11 years ago

8 Replies

I'm having symptoms of the menopause......I've also noticed the skin on my fingers are becoming tighter, more shiny and stiffer....,

has anyone else noticed similar symptoms or do you think this is just a coincidence ?........I'm taking oil of evening primrose to try to help with the hot...

has anyone else noticed similar symptoms or do you think this is just a coincide...

wartsandall

•11 years ago

8 Replies

burning buttock anyone?

I have Raynauds and Sjogren's syndrome and take nifepedine. This past few days, I have had a burning sensation in one buttock - I thought I had sat on...

I have Raynauds and Sjogren's syndrome and take nifepedine. This past few days, ...

Pipsmum

•11 years ago

4 Replies

Not really a question but....

I wanted to thank all who replied to my plight in trying to get my appointments sorted at The Royal Free. I have been in contact with my consultant,s...

I wanted to thank all who replied to my plight in trying to get my appointments ...

Hidden

•11 years ago

3 Replies

Technical question: 3 years of positive antinuclear antibodies gone. Why? A few months ago showed a titre of 1:1100. New GP & test negative!

I have had 3 years of ANA positive results correlating with systemic sclerosis. This has been rising in titre every year since my first rheumatology...

I have had 3 years of ANA positive results correlating with systemic sclerosis. ...

Boudicca10

•11 years ago

6 Replies

What kind of work do you do with Raynauds? Right now I am on disability and make about 700 us dollars.

I do get some supplemental so I average about 200 for food a month. It doesnt go as far as I like because I am gluten free. (The bright side to all of this is...

I do get some supplemental so I average about 200 for food a month. It doesnt g...

danacetz

•11 years ago

6 Replies

My 9 yr old daughter

Hi my 9 yr old daughter has been diagnosed with raynauds and systemic sclerosis, we live in Ayrshire Scotland and just lookin to see if anyone else in Scotland...

Hi my 9 yr old daughter has been diagnosed with raynauds and systemic sclerosis,...

Twiggycfc

•11 years ago

2 Replies

Has anybody tried Loratadine for Erythromelalgia or MCTD?

I heard about it from another chat room and have found it helpful.

AMDP

•11 years ago

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I have secondary Raynaud's should I be taking Nebivolol?

I have been diagnosed with Small Vessel Ischemia, (secondary Raynauds and Coronary Microvascular syndrome) it is believed to be via spasms. I am unstable, some...

I have been diagnosed with Small Vessel Ischemia, (secondary Raynauds and Corona...

kel55

•11 years ago

Be the first to reply

Eye sight correction

I am using 5cylender glaass and very much upset regarding to get back my original.. I am doing a job on computer and this is the only way i can earn. Plz plz...

I am using 5cylender glaass and very much upset regarding to get back my origina...

zee2012

•11 years ago

5 Replies

Does anyone know of any good travel insurance for people with disabilities?

uknlv

•11 years ago

7 Replies

Weight loss and medication

Hi everyone, I haven't posted in ages, I just lurk in the background most of the time. I have been really struggling with a recent weight gain. I have been...

Hi everyone, I haven't posted in ages, I just lurk in the background most of the...

uknlv

•11 years ago

2 Replies

Has any one else or does anyone else suffer badly swollen legs feet and ankle a lot.

tinaparkii

•11 years ago

11 Replies

Raynauds help please

Hi ive had raynauds for several years now and work outdoors does anyone have any tips for keeping my hands from going white? Also slightly off topic I was ill...

Hi ive had raynauds for several years now and work outdoors does anyone have any...

gheadjoiner

•11 years ago

17 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for August 2013

Advice for seeking medical advice for Raynauds Phenomenon please

Its still August and I am sat in a microfibre fleece jumper and separate fleece and silk gloves!

hyperbaric oxygen therapy

Could it be Erythromelalgia in my knees?

Hi, I am new to this. I have systemic sclerosis,I've just been put on mycophenalate. Has anyone had this drug and how did you react to it?

Anyone get bleeding under or blistering of very itchy skin?

I have nad CREST for 10 years,recently developed GERD & Barretts. I had a horrid gullet spasm during the night - does anyone else get these?

Low blood sugar?

Gut infection

Had Raynauds for many years , now got numbness and tingling in toes and finger tips. Had bad virus 18 mths ago which made worse. Doc put me

Suffering with Raynauds & Scleroderma, I have now gone on to have P.A.H, and the hickman line is the only way left to go.

Heated clothing at reduced prices.

I've raynauds, sun Gave me rash on face! Dr says its roseasea! Was recom. by psychiatrist to read highly sensitive person very interesting!

I'm having symptoms of the menopause......I've also noticed the skin on my fingers are becoming tighter, more shiny and stiffer....,

burning buttock anyone?

Not really a question but....

Technical question: 3 years of positive antinuclear antibodies gone. Why? A few months ago showed a titre of 1:1100. New GP & test negative!

What kind of work do you do with Raynauds? Right now I am on disability and make about 700 us dollars.

My 9 yr old daughter

Has anybody tried Loratadine for Erythromelalgia or MCTD?

I have secondary Raynaud's should I be taking Nebivolol?

Eye sight correction

Does anyone know of any good travel insurance for people with disabilities?

Weight loss and medication

Has any one else or does anyone else suffer badly swollen legs feet and ankle a lot.

Raynauds help please

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