Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,826 members • 5,405 posts

All posts for April 2017

My first Raynaud's ulcer.

I've had Raynauds for 15 years or more with many indicators for Secondary Raynauds - extremely high ANA and more. Now I have an ulcer on my index finger under...

I've had Raynauds for 15 years or more with many indicators for Secondary Raynau...

Hkrysth

•7 years ago

10 Replies

Hair

Has anyone experienced hair loss with scleroderma and if so what can be done

Frankie86

•7 years ago

9 Replies

Stopping mycophenolate

Last Monday I upped the dose of mycophenolate to 1000mgs bd since then I've been feeling increasingly unwell and last night I was debating whether to call the...

Last Monday I upped the dose of mycophenolate to 1000mgs bd since then I've been...

mad4cavs

•7 years ago

14 Replies

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Hospital Visits

Hi everybody, I had another lung function test today, and on this coming Sunday a high resolution chest CT scan, oh and on Tuesday a MRI scan, the results from...

Hi everybody, I had another lung function test today, and on this coming Sunday ...

fairy56

•7 years ago

10 Replies

Bloods suggestive of lupus

Hello 😊 My recent blood have come back suggestive of lupus and to be repeated in three months. I'm struggling with fatigue in work and my personal life. My...

Hello 😊 My recent blood have come back suggestive of lupus and to be repeated ...

Jordana88

•7 years ago

4 Replies

NEW BODY PLEASE NOT ASKING FOR MUCH

Hi I have been diagnosed FIBROMYALGIA 5 years ago and RHEUMATOID ARTHRITIS , and the last 4 months i have been told i have Raynauds phenomenon , which i have...

Hi I have been diagnosed FIBROMYALGIA 5 years ago and RHEUMATOID ARTHRITIS , and...

Skye26

•7 years ago

1 Reply

How can I prevent an ulcer developing?

Hi all, I have CREST and have had Raynaud's for about 8 years now. I have had ulcers on my lower legs, and one on my index finger tip (excruciating when it was...

Hi all, I have CREST and have had Raynaud's for about 8 years now. I have had ul...

Dunhorse123

•7 years ago

4 Replies

Feeling horrid !

I'm on week four of methotrexate and the side effects have kicked in. I feel so sick I took it Monday and the nausea started Tuesday. I called the...

I'm on week four of methotrexate and the side effects have kicked in. I feel so...

Sami13

•7 years ago

17 Replies

Oral Thrush

Hi, Has anyone else had oral thrush. After 3 double doses of antibiotics I have been left with oral thrush. I have been on 2 different courses of medication....

Hi, Has anyone else had oral thrush. After 3 double doses of antibiotics I have ...

nanapat112

•7 years ago

9 Replies

Knobbly Knuckles

Does anyone else have knobbly, misshapen knuckles as a result of Raynauds? A couple of mine have developed bumps. When I mentioned it to my doctor, she just...

Does anyone else have knobbly, misshapen knuckles as a result of Raynauds? A co...

darkdreamer

•7 years ago

7 Replies

Anyone else have Morphea

I was diagnosed with Morphea about 6months ago, I'm 52,, though looking back, I've had pigmentation problems for about 3-4 years but just put it down to...

I was diagnosed with Morphea about 6months ago, I'm 52,, though looking back, ...

Hidden

•7 years ago

13 Replies

Sore tongue

Hi folks, jut need to share this with you, I read somewhere that coconut oil mixed with turmeric can help with the yellow tinge to your teeth that you get...

Hi folks, jut need to share this with you, I read somewhere that coconut oil m...

Denny57

•7 years ago

2 Replies

support

i have seldelma and find it hard to cope with as am only 34 and am like an old woman and so stiff all the time and theres no support here where am from just...

i have seldelma and find it hard to cope with as am only 34 and am like an old w...

jt20

•7 years ago

18 Replies

Vital3

Does anyone take VITAL3 for joint stiffness, and general aches and pains (3 drops a day in water). I've just started taking it and wondered if it works?

Does anyone take VITAL3 for joint stiffness, and general aches and pains (3 drop...

Sally1234567

•7 years ago

2 Replies

UTI s 3rd in 4weeks

I've never had them before I'm sure its the mycophenolate making me more susceptible anyone else get these if so anyone have any tips on how to cope its making...

I've never had them before I'm sure its the mycophenolate making me more suscept...

mad4cavs

•7 years ago

4 Replies

Pain relief

Its two years since my spinal operation, the hospital diagnosed me Oxycontin and Oxynorm for breakthrough pain. My consultant following an MRI concluded nerve...

Its two years since my spinal operation, the hospital diagnosed me Oxycontin and...

Alanjones

•7 years ago

2 Replies

Anyone else like this?

When I have my feet lowered for more than 10 minutes, my feet turn blue with blotchy red. When I raise them, they go back to normal within a few seconds. I...

When I have my feet lowered for more than 10 minutes, my feet turn blue with blo...

Goldyukr

•7 years ago

8 Replies

Sorry for the Rant

Hey everyone Im really struggling at the minute pressure on the chest not being able to swallow properly, really bad fatigue painful and stiff hands and feet.....

Hey everyone Im really struggling at the minute pressure on the chest not being ...

kel87

•7 years ago

8 Replies

Bemer thearpy

Hi everyone, Has anyone ever tried this Bemer thearpy? If so, could you tell how it has affected you? I'm going to a biomedical clinic next week, to look into...

Hi everyone, Has anyone ever tried this Bemer thearpy? If so, could you tell ho...

bertreeed

•7 years ago

1 Reply

Eye problem

I was diodnosed with Crest Syndrome about 2years ago . I'm a patient at Chapel Allerton Rheumatology department and not due to be seen again till July . For...

I was diodnosed with Crest Syndrome about 2years ago . I'm a patient at Chapel A...

Banker123

•7 years ago

7 Replies

Cell oxygen immunkomplex

Hi I have limited scleroderma fibromyalgia and arthritis in my spine and hips I went to the health shop and said to take cell oxygen immunkomplex has anyone...

Hi I have limited scleroderma fibromyalgia and arthritis in my spine and hips I ...

irishgal

•7 years ago

2 Replies

Support in the uk

Hi. Hope everyone is having a good day I guess that if you have raynaulds and you are in the uk the weekend was lovely being warm and today was painful again....

Hi. Hope everyone is having a good day I guess that if you have raynaulds and yo...

Sami13

•7 years ago

6 Replies

Mucus in throat

Someone told me that eating dairy stuff causes excessive mucus in the back of ur throat. I have this problem when I lie down in bed. Anyone else have this...

Someone told me that eating dairy stuff causes excessive mucus in the back of ur...

Sally1234567

•7 years ago

18 Replies

Very confused

Went to gp appointment as my results of capillarscopy and thermography were back was hopeful for help maybe even start medication as I suffer all day with...

Went to gp appointment as my results of capillarscopy and thermography were back...

littleones

•7 years ago

6 Replies

Feeling a little lost and confused

Hi everyone i was diagnosed with systematic sclerosis and raynards this time last year iv seen my consultant twice in this time the first time he was quite...

Hi everyone i was diagnosed with systematic sclerosis and raynards this time las...

Rachfen

•7 years ago

21 Replies

Red fingers, mottled red and white palms. Happens when hands get warm from being colder.

Hi, Can anyone identify with this? I don't get white or blue fingers. It happens often when I'm out walking or just when my hands start to feel warmer (I...

Hi, Can anyone identify with this? I don't get white or blue fingers. It happe...

Poppyfields65

•7 years ago

20 Replies

Raynauds

Hi Folks can anyone tell me if there is good over the counter medicines available for raynaud`s thank you,

Hi Folks can anyone tell me if there is good over the counter medicines availabl...

Hidden

•7 years ago

7 Replies

Raynaud's and supplements

Hi there I wonder if anyone can help? I have had raynauds many yrs. Got diagnosed in my 20's, I'm now 48. My question is regarding supplements I take...

Hi there I wonder if anyone can help? I have had raynauds many yrs. Got diagnos...

mimi_1

•7 years ago

4 Replies

Glove tip for cyclists (and everyday)

Riding my bike has been a big issue in the colder months. I have a road bike so get up to a decent speed (I have done over 60kph on a steep descent). So for...

Riding my bike has been a big issue in the colder months. I have a road bike so...

FlexSW19

•7 years ago

2 Replies

CYCLE RIDE!!!!

Hello everybody, I decided it was time to have my first cycle ride on my electric bike!!! so with granddaughter number 2 on her bike of we went. I thought I...

Hello everybody, I decided it was time to have my first cycle ride on my electr...

fairy56

•7 years ago

5 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for April 2017

My first Raynaud's ulcer.

Hair

Stopping mycophenolate

Hospital Visits

Bloods suggestive of lupus

NEW BODY PLEASE NOT ASKING FOR MUCH

How can I prevent an ulcer developing?

Feeling horrid !

Oral Thrush

Knobbly Knuckles

Anyone else have Morphea

Sore tongue

support

Vital3

UTI s 3rd in 4weeks

Pain relief

Anyone else like this?

Sorry for the Rant

Bemer thearpy

Eye problem

Cell oxygen immunkomplex

Support in the uk

Mucus in throat

Very confused

Feeling a little lost and confused

Red fingers, mottled red and white palms. Happens when hands get warm from being colder.

Raynauds

Raynaud's and supplements

Glove tip for cyclists (and everyday)

CYCLE RIDE!!!!

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