Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,835 members • 5,407 posts

All posts for April 2018

Surprise - a New Rheumatologist....

Hi everyone, I'm feeling really frustrated....I turned up for my rheumatologist appointment this afternoon, to be confronted by a complete stranger. My...

Hi everyone, I'm feeling really frustrated....I turned up for my rheumatologist ...

Wengc

•6 years ago

9 Replies

Thank you!

To everybody that took the time to reply to my previous post a big thank you. Cotton gloves standing by, so will be applying copius amounts of cetraben,...

To everybody that took the time to reply to my previous post a big thank you. Co...

fairy56

•6 years ago

1 Reply

SPLIT SKIN!!

Hello everybody, I have split skin around 5 fingers and 1 thumb!!! Very sore. Been putting on my certrabam cream and plasters, not at the same time. Nothing...

Hello everybody, I have split skin around 5 fingers and 1 thumb!!! Very sore. Be...

fairy56

•6 years ago

16 Replies

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Just a little hello

I signed up to this site because I’ve started couch 2 5k. I was delighted to spot this group. Im 30 and have suffered with Raynaud’s for as long as I can...

I signed up to this site because I’ve started couch 2 5k. I was delighted to sp...

Patchparker87

•6 years ago

4 Replies

Chest pain with numbness in arms

Chest pain and numbness in arms, anyone else get this. Another blood clot ruled out but feel so under the weather 😔 been told it cud he inflammation but only...

Chest pain and numbness in arms, anyone else get this. Another blood clot ruled ...

Ncoff

•6 years ago

10 Replies

Anyone else fancy coming to our meeting in Birmingham on 01/08/18 approx. 12 midday, you're more than welcome.

Hi Folks. I haven't been on here for a while (about a month) and seems like an age ago. I have 3 folks confirmed as coming and wandering if anyone else who...

Hi Folks. I haven't been on here for a while (about a month) and seems like an ...

avtargill31

•6 years ago

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Systemic sclerosis

I just wanted to say that anything is achievable if you prepared to work towards it. Yes it's hard, some days are so tough I just wanted to cry, i hurt, i...

I just wanted to say that anything is achievable if you prepared to work towards...

Sylviaherring

•6 years ago

21 Replies

Calcinosis coming through feet

Does anyone have reacurring calcinosis that comes from the bottom of your feet? The podiatrist can remove them and they are back in a month. They are like...

Does anyone have reacurring calcinosis that comes from the bottom of your feet? ...

lifeforce

•6 years ago

9 Replies

Nere

Recently diagnosed with Crest. Main complaint was Raynauds, and given my age (59) Ordered lab tests. It turned out I'm ANA positive, centomers number also...

Recently diagnosed with Crest. Main complaint was Raynauds, and given my age (59...

Nereyda

•6 years ago

63 Replies

Sudden Mini cuts on hand. HELP please! Advice needed

Hi there! Today was just a regular day: cleaning house, running errands, and doing the dishes. After I was done with the dishes, I noticed a aim when I made a...

Hi there! Today was just a regular day: cleaning house, running errands, and doi...

AbbyMarie1992

•6 years ago

11 Replies

cold draft at work

I work as a doorman. My station is located right between 4 doors and 2 big air conditioners. Every summer I feel sick in my groin. Probably, the cold air is...

I work as a doorman. My station is located right between 4 doors and 2 big air c...

Askar74

•6 years ago

6 Replies

Iloprost treatment - twitching side effect?

I underwent my Iloprost treatment and suffered from a severe headache and nausea. I did experience a lot of twitching. I asked a nurse and she said this wasnt...

I underwent my Iloprost treatment and suffered from a severe headache and nausea...

BertieB_280616

•6 years ago

3 Replies

Niacin and scleroderma

If alcoholism is the cause of niacin deficiency then would a supplement even help since the liver cannot absorb the niacin properly? My husband has scleroderma...

If alcoholism is the cause of niacin deficiency then would a supplement even hel...

Phardin

•6 years ago

2 Replies

Guys this weatherrrr 😍😍☀️☀️☀️ ...

Guys this weatherrrr 😍😍☀️☀️☀️

Dani_7

•6 years ago

6 Replies

Do you experience 'Painful legs and moving toes' (PLMT) together with Raynaud's?

One of our community members has got in touch to ask whether anyone else experiences Raynaud's, alongside a condition called 'painful legs and moving toes'...

One of our community members has got in touch to ask whether anyone else experie...

SRUKadmin

Partner•6 years ago

29 Replies

Severe head pain

I was wondering if anyone have severe headaches or overall pain in their head. The pain I have in my head sometimes is so much more than just calling it a...

I was wondering if anyone have severe headaches or overall pain in their head. T...

Tollie

•6 years ago

8 Replies

Stress

My work are trying to mess up my agreed shift pattern. I’m so stressed out having palpitations can’t eat I’m so exhausted

My work are trying to mess up my agreed shift pattern. I’m so stressed out havi...

Ncoff

•6 years ago

7 Replies

? Dominate side more effected by Scheloraderma/Raynaurd’s

I have asked my rheumatologist and researched why dominate side is effected more by schleroderma then other side and hadn’t found an answer. Does anyone know?...

I have asked my rheumatologist and researched why dominate side is effected more...

lennyplus5

•6 years ago

11 Replies

? Quell Pain Relief

Has anyone used Quell to elevate pain? It is pricey but if it works then I don’t care about price. Currently taking Prednisone which helps with the swelling...

Has anyone used Quell to elevate pain? It is pricey but if it works then I don’t...

lennyplus5

•6 years ago

2 Replies

SUNNY WARM WEATHER!!!!

Hello everybody, I hope where you are, you have the same warm sunny weather I have here. I ventured out to my garden and did some weeding, rested a while,...

Hello everybody, I hope where you are, you have the same warm sunny weather I ha...

fairy56

•6 years ago

2 Replies

Cold/flu’s

Wondering what most of you use during a cold , I have such bad pressure in my ears lately and I have a cold also not sure if I’m developing tinnitus along with...

Wondering what most of you use during a cold , I have such bad pressure in my ea...

Emfrenette

•6 years ago

2 Replies

Trouble with nasal passages

Hello everyone Just wondering if anyone has had very dry nostrils, with traces of blood in the mucus? It's been going on for some weeks, mucus can be dry and...

Hello everyone Just wondering if anyone has had very dry nostrils, with traces o...

Wengc

•6 years ago

10 Replies

Kalawalla herb

Hey all, I found this on Youtube! This herb from what I've watched has cured people! I think I'm going to order it give it a try!

Hey all, I found this on Youtube! This herb from what I've watched has cured peo...

Susanissufferingtoo

•6 years ago

22 Replies

More blood done today

Hey guys, just another update.. Went to see the doctor monday and she has determined ME but cannot diagnose yet, as I have to be reacouring my symptoms for at...

Hey guys, just another update.. Went to see the doctor monday and she has deter...

Rebecca1993Foster

•6 years ago

2 Replies

Severe finger numbness in morning

Wondering if anyone else gets severe numbness upon waking up I feel as if I could roll over onto my fingers as I’m sleeping and may not notice if they are...

Wondering if anyone else gets severe numbness upon waking up I feel as if I coul...

Emfrenette

•6 years ago

8 Replies

Foot pain

I have foot pain - when it happens, it feels like trying to walk on broken glass with the added handicap of crushed toes! Occasionally I have woken up, got out...

I have foot pain - when it happens, it feels like trying to walk on broken glass...

Jen3131

•6 years ago

4 Replies

Oxygen

Hi all, Is anyone here on oxygen? I also have copd fibromyalgia and just got diagnosed with Raynulds and scleroderma. Had testing done waiting on results as to...

Hi all, Is anyone here on oxygen? I also have copd fibromyalgia and just got dia...

Susanissufferingtoo

•6 years ago

5 Replies

Question about member

Hello everyone. I was wondering if anyone has heard from Jazpont. I am very concerned about her. Thank you

Hello everyone. I was wondering if anyone has heard from Jazpont. I am very conc...

agnbg0826

•6 years ago

1 Reply

Waiting to see a rheumatologist.

I have arthritis in my back hands & shoulder....My right hand is getting difficult to use. Numbness & tingling in my arms & for the last year in my legs below...

I have arthritis in my back hands & shoulder....My right hand is getting difficu...

Soddygurl

•6 years ago

4 Replies

Stopping steroids

I want to stop taking my steroids I'm worried about side effects,I would rather deal with the pain,I'm on 5mgs daily would it be ok to just stop or should I...

I want to stop taking my steroids I'm worried about side effects,I would rather ...

mad4cavs

•6 years ago

12 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for April 2018

Surprise - a New Rheumatologist....

Thank you!

SPLIT SKIN!!

Just a little hello

Chest pain with numbness in arms

Anyone else fancy coming to our meeting in Birmingham on 01/08/18 approx. 12 midday, you're more than welcome.

Systemic sclerosis

Calcinosis coming through feet

Nere

Sudden Mini cuts on hand. HELP please! Advice needed

cold draft at work

Iloprost treatment - twitching side effect?

Niacin and scleroderma

Guys this weatherrrr 😍😍☀️☀️☀️ ...

Do you experience 'Painful legs and moving toes' (PLMT) together with Raynaud's?

Severe head pain

Stress

? Dominate side more effected by Scheloraderma/Raynaurd’s

? Quell Pain Relief

SUNNY WARM WEATHER!!!!

Cold/flu’s

Trouble with nasal passages

Kalawalla herb

More blood done today

Severe finger numbness in morning

Foot pain

Oxygen

Question about member

Waiting to see a rheumatologist.

Stopping steroids

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