Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for October 2016

Side effects of opiate pain meds for SSc.

Morning guys, I hope you've all altered your clocks. 😃 Okie doke here goes, as I've got to take opiate pain meds for my SSc symptoms (i've tried lots of...

Morning guys, I hope you've all altered your clocks. 😃 Okie doke here goes, as...

•8 years ago

Opinion on business idea - am I nuts?

Hello! I posted this message yesterday on the Lupus UK forum so apologies if you've already read it on there. I've had lupus since I was a child and secondary...

Hello! I posted this message yesterday on the Lupus UK forum so apologies if you...

•8 years ago

New to all this

Hi there, My mum has been diagnosed with systemic sclerosis and has recently moved to Taunton to be nearer family. Are there any local support groups or meet...

Hi there, My mum has been diagnosed with systemic sclerosis and has recently mov...

•8 years ago

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Pulmonary regurgitation

Hi everyone, I hope you can help me ... I had my annual echocardiogram last month and this morning received a letter from the Rheumatologist, saying that it...

Hi everyone, I hope you can help me ... I had my annual echocardiogram last mon...

•8 years ago

Falling over

Does anyone else experience falling over a lot and bumping into things ? I am so clumsy now and have smashed a lot of plates,glasses and mugs. Saves on the...

Does anyone else experience falling over a lot and bumping into things ? I am so...

•8 years ago

Scleroderma pain lessening or disappearing?

Three years ago the all over excruciating unbearable pain came on like a ton of bricks and stayed for 2 1/2 years . I was told I had Systemic Scleroderma...

Three years ago the all over excruciating unbearable pain came on like a ton of...

•8 years ago

Erythromelalgia?

Does anyone here also suffer from this? My family doctor believes I have this as well now. I went on that forum and posted a question, but no response. I don't...

Does anyone here also suffer from this? My family doctor believes I have this as...

•8 years ago

Out there..

Hello everyone. Im Morsy. Ive been suffering from Raynauds for the last 5 year. Ive tried advice from pple who also suffer from raynauds. Yes winter is worse...

Hello everyone. Im Morsy. Ive been suffering from Raynauds for the last 5 year....

•8 years ago

Help

Hiya, My husband for the last 2 years has suffered with gastroparesis (stomach paralysis) and his esophagus has stopped working. The consultants do not know...

Hiya, My husband for the last 2 years has suffered with gastroparesis (stomach ...

•8 years ago

Podiatry

Reference podiatrists and hard skin, I am lucky enough to have treatment on the NHS at my local hospital (I live in N Yorkshire) they do wonderful work, clip...

Reference podiatrists and hard skin, I am lucky enough to have treatment on the...

•8 years ago

Hints and tips please from my "Scleroderma family"? (new on this website)

Dear "family", It's been only a few days that I came across this forum and I've already found some of the posts invaluable. I was diagnosed with limited sSc in...

Dear "family", It's been only a few days that I came across this forum and I've ...

•8 years ago

Hard skin on heels

Hey guys, Do u get really hard skin on the base of your heels? Mine are really thick with dead skin which I'm scared of trying to get rid of in case it turns...

Hey guys, Do u get really hard skin on the base of your heels? Mine are really ...

•8 years ago

SSc and GI tract issues

I have had SSc for about 3 years now. Aside from my skin, I am beginning to have some real problems with my GI tract, vomiting quite frequently, constipation,...

I have had SSc for about 3 years now. Aside from my skin, I am beginning to have...

•8 years ago

Can you recommend any good, warm gloves?

I currently use a relatively thin pair of Nike running gloves to protect my hands when I'm outside and also for handling food from the freezer but wondered if...

I currently use a relatively thin pair of Nike running gloves to protect my hand...

•8 years ago

Red itchy lumps and blisters following an attack

Hi, I self-diagnosed myself with Raynaud's a few years ago (the GP agrees but hasn't run any tests) but it's been getting worse and for the last 2-3 yrs my...

Hi, I self-diagnosed myself with Raynaud's a few years ago (the GP agrees but ha...

•8 years ago

Nifedipine ER

My doctor just put me on 30 mg of Nifedipine ER (extended release) as I have had digital ulcers from my Raynauds since May. I have Raynauds, Ra, suspect...

My doctor just put me on 30 mg of Nifedipine ER (extended release) as I have had...

•8 years ago

Medication effect s on Raynaud's

Does anyone know if Amitriptyline (for PHN - after shingles pain ) or Vesicare (for OAB)affects Raynaud's? - i.e. makes it worse, I would be grateful for any...

Does anyone know if Amitriptyline (for PHN - after shingles pain ) or Vesicare (...

•8 years ago

Finger prints

At my school where I work we top up money for the canteen on line then use finger prints as identification. When I set myself up in April the weather was fine...

At my school where I work we top up money for the canteen on line then use finge...

•8 years ago

Moving on

Thanks for all the advice you kind people have given. My new medication Esomeprazole, 20mg taken twice daily, gap made a huge difference. Can now eat a lot...

Thanks for all the advice you kind people have given. My new medication Esomepra...

•8 years ago

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Help feeling very lost

Hi I'm new to the website and to the illness. I have been having problem for 4 years. I have just got my bloods back and it show a positive ANA it's 1/640 I...

Hi I'm new to the website and to the illness. I have been having problem for 4 ...

•8 years ago

NEGATIVE ENA

Hi Today I had the results of my ENA screen and it came back negative. Does that mean I don't actually have Systemic Sclerosis? and I have something else? I...

Hi Today I had the results of my ENA screen and it came back negative. Does tha...

•8 years ago

Ridiculously itchy shins.

Evening guys, Do any of you that suffers with SSc/CREST find that you get really itchy shins, like so itchy that you can rip the skin on them when you give in...

Evening guys, Do any of you that suffers with SSc/CREST find that you get really...

•8 years ago

Changes following an electric shock

First post, 34 yo male, I've always had undiagnosed Raynauds since I was a child, cold hands (and feet) turning white, blue and red at the slightest change in...

First post, 34 yo male, I've always had undiagnosed Raynauds since I was a child...

•8 years ago

Raynauds and newly diagnosed with Undifferenated connective tissue disease is it secondary raynauds or primary??

Hi I have suffered with raynauds for 9 years and have been to see my rheumatologist and she has said I'm a slight positive on my blood work and has newly...

Hi I have suffered with raynauds for 9 years and have been to see my rheumatolog...

•8 years ago