Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,410 posts

All posts for October 2022

diagnosis

i have had Raynaud's for years now but never actually had it diagnosed. I mentioned it once to GP and he said it probably was and to keep my hands warm. A lot...

i have had Raynaud's for years now but never actually had it diagnosed. I menti...

•1 year ago

Diagnosis at last for hubby

After 2 years of waiting for the NHS, paying out thousands for private consultations and tests, only to be referred back to the NHS and have all the tests done...

After 2 years of waiting for the NHS, paying out thousands for private consultat...

•2 years ago

Has anyone been prescribed Sildenafil for their Raynaud's?

I have suffered with Raynaud's for many years. I don't tolerate drugs very well and typically have to find a homeopathic alternative. My rheumatologist is...

I have suffered with Raynaud's for many years. I don't tolerate drugs very well ...

•2 years ago

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Scleroderma and plasmapheresis / plasma exchange

Has anyone here tried this for scleroderma or know anyone who has? I've seen a fair bit of talk about this and read some studies to do with this on the...

Has anyone here tried this for scleroderma or know anyone who has? I've seen ...

Wanderinglost22

•2 years ago

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Is this Raynaud's??? (pic)

Hello, i'm sort of sure i don't have Raynaud's since my hands just have weird spots and all my vessels so notorious but they are like that. Lot of doctors...

Hello, i'm sort of sure i don't have Raynaud's since my hands just have weird s...

•2 years ago

pamphlets for employers published by SRUK?

Are there any? If so, do l pm with my address in order to have one posted or downloaded? l think l need to give one to my boss.

Are there any? If so, do l pm with my address in order to have one posted or d...

•2 years ago

Methotrexate and Hydroxychloroquine for Scleroderma and Raynauds

I was prescribed Hydroxychloroquine 200mg daily and MTZ in 2019. started MTZ in tablets 7.5mg and gradually increased to 20mg and changed to injection too....

I was prescribed Hydroxychloroquine 200mg daily and MTZ in 2019. started MTZ ...

•2 years ago

Scleroderma recently diagnosed

I am seeking forum users experience with treatment with methotrexate which I’ve been advised I’ll be using.

I am seeking forum users experience with treatment with methotrexate which I’ve ...

•2 years ago

Fine gloves for typing

Hello can anyone recommend fine gloves for typing. I have some fingerless ones but they're a bit too thick and the ends of my fingers still get cold. I was...

Hello can anyone recommend fine gloves for typing. I have some fingerless ones b...

•2 years ago

Painful Fingers

I have calcium deposits in my fingers. I have had six operations to remove them, but they keep returning, and surgeon has decided not to operate any more....

I have calcium deposits in my fingers. I have had six operations to remove them,...

•2 years ago

Cerecten

Good evening I am wondering if you can help me to relay this back to my husband so that I can speak to his G.P or he can, sorry if this sounds confusing, but...

Good evening I am wondering if you can help me to relay this back to my husband ...

completely-zero654

•2 years ago

Best hand warmers/gloves for severe raynauds?

Hello everyone, Im looking for any advice on what to purchase for severe raynauds. I’ve tried thermal ski gloves but they are too bulky! Ive also purchased a...

Hello everyone, Im looking for any advice on what to purchase for severe raynaud...

•2 years ago

Breathing

Suffer with Limited Scleraderma and have had a cough for about three weeks, the night time is the worst have purchased a humidifier which helps slightly, but...

Suffer with Limited Scleraderma and have had a cough for about three weeks, th...

•2 years ago

suspected raynauds (pics)

hi guys for about a year I’ve been noticing my fingers and toes going slightly blue. Pics attached. I had a cal with doctor yesterday who suspects raynauds,...

hi guys for about a year I’ve been noticing my fingers and toes going slightl...

•2 years ago

Moderna vaccinations

Had my second Moderna jab on Monday and as last time I had quite strong reaction. Headache, neck and back pain, intensified pain in muscles and joints and...

Had my second Moderna jab on Monday and as last time I had quite strong reaction...

•2 years ago

Losartan

Hi im just about to start losartan for Raynaud's .anyone any experience of this drug

Hi im just about to start losartan for Raynaud's .anyone any experience of this...

•2 years ago

My scleroderma story

My scleroderma story,in this months take a break

My scleroderma story,in this months take a break

•2 years ago