Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for April 2011

Does anyone else get pins and needles worse in one hand more than the other with Raynaud's?

bookworm

•14 years ago

3 Replies

Chemo related question regarding Raynaud's

I have developed Raynauds from being on chemo drugs. Has anyone else had this experience? Also does Raynaud's ever just go away? I can barely wear shoes...

I have developed Raynauds from being on chemo drugs. Has anyone else had this e...

faith89

•14 years ago

2 Replies

Lost and confused

Is it just me or do the rest of you get confused when talking to your doctor? When I was first diagnosed I was told that I had Limited Systemic Sclerosis, then...

Is it just me or do the rest of you get confused when talking to your doctor? Wh...

uknlv

•14 years ago

4 Replies

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Has anyone had a sacral neuro stimulator (SNS) implant for incontinence in scleroderma and if so was it successful?

I would be interested to know how other people cope with this problem and has any treatment been helpful?

I would be interested to know how other people cope with this problem and has an...

AHM42

•14 years ago

2 Replies

My wife who is 63 has suffered from Raynaud's for may years but has never received any treatment. Is there any treatment available?

butros

•14 years ago

1 Reply

Has anyone tried ginseng for Raynaud's?

I have been recommended it for hypothtroid. Apparantly Siberian is more suitable than Korean. Just thought it might also help with Raynaud's. Any opions...

I have been recommended it for hypothtroid. Apparantly Siberian is more suitable...

foxglove

•14 years ago

1 Reply

Does anyone suffer from brown patches on their hands and feet (I think I have been told they are damaged/leaking blood vessels?)

They appear as itchy/painful white spots and then seem to turn into dappled brown patches. I was just wondering if anyone had had them and/or could advise any...

They appear as itchy/painful white spots and then seem to turn into dappled brow...

Hanosity

•14 years ago

5 Replies

Easter Sunshine - Off with the layers (or at least some of them)!

Hope everyone is enjoying the bank holiday sunshine, I certainly am, yesterday was the first time since last summer that I have been able to get outside in...

Hope everyone is enjoying the bank holiday sunshine, I certainly am, yesterday w...

Rach18

•14 years ago

5 Replies

Anyone have hearing loss?

I am 55 years old and have hearing loss - has been gradually going for at least 10 years now. The audiologist says that I am quite young to experience hearing...

I am 55 years old and have hearing loss - has been gradually going for at least ...

Anteater

•14 years ago

8 Replies

Hobbies !!!

Is there anyone on this blog you has Raynaud's, scleroderma and other conditions that ride a horse?

Is there anyone on this blog you has Raynaud's, scleroderma and other conditions...

Anteater

•14 years ago

1 Reply

Keep up the blogging

Thank you so much to all the members on the RSA HealthUnlocked site for your blogs and comments. Your contributions are very much appreciated. Please keep up...

Thank you so much to all the members on the RSA HealthUnlocked site for your blo...

Hidden

•14 years ago

5 Replies

If it isn't one thing its another

Well I just got back from an appointment with the Gynaecologist and although it has been known that Sclero can cause early menopause, no I am not one of the...

Well I just got back from an appointment with the Gynaecologist and although it ...

uknlv

•14 years ago

4 Replies

Supermarket Freeze

Gloves and coat at the ready, no, not a winters day, time to go food shopping. Why do Supermarkets have to be so cold? Not just around the chillers or freezer...

Gloves and coat at the ready, no, not a winters day, time to go food shopping. W...

Steph

•14 years ago

5 Replies

Invisible are we !!!

I believe we all have an invisible illness, its a daily struggle feeling sick on the inside while we look fine on the outside.

I believe we all have an invisible illness, its a daily struggle feeling sick on...

Anteater

•14 years ago

2 Replies

hi does any scleroderma patients suffer with multiple pe's and dvt or is it just me ????

annmarie72

•14 years ago

3 Replies

I suffer with Raynaud's & have recently started suffering with numbness in my feet when doing exercise, has anyone else experienced this?

Heleno

•14 years ago

21 Replies

Clinic, scary doctors, abroad.

Currently organising my trip to Sri Lanka! In true teenage style I was 3 weeks ago crying at my doctors because I was feeling dreadful and needing Illoprost...

Currently organising my trip to Sri Lanka! In true teenage style I was 3 weeks a...

Hanosity

•14 years ago

5 Replies

Has any one else suffered from recurring ingrown toe nails? or is just me

bookworm

•14 years ago

8 Replies

Any homeopathic remedies for Raynaud's?

foxglove

•14 years ago

5 Replies

Does putting on weight ease raynauds? I've had raynauds most of my life - recently someone said I might not have such cold hands if I was

heavier. P.s not exactly "size 0" but on the thin side Don't want to be "fat", but if I thought it would help I would try to put on some weight

heavier. P.s not exactly "size 0" but on the thin side Don't want to be "fat", b...

foxglove

•14 years ago

7 Replies

Yorkshire Sculpture Park Trip (Wakefield) Visit May 2011

I'm an outspoken individual but I like to think I take other people's feelings into account. I only know one person who suffers the way I do and no one else...

I'm an outspoken individual but I like to think I take other people's feelings i...

Hidden

•14 years ago

5 Replies

I have gum disease from scleroderma as this happened to any other patients ??

annmarie72

•14 years ago

11 Replies

Does anyone find vitamin E helps with Raynaud's? If so how much? I've tried nifedipine etc over the years

( I'm 71 - had raynauds from early teens) Prescribed meds only work for a time. Any suggestions welcome, I'm sure theres an answer somewhere!

( I'm 71 - had raynauds from early teens) Prescribed meds only work for a time. ...

foxglove

•14 years ago

2 Replies

Sunnyside of life!

Hi everyone, Thought it would be a nice change to do a blog about something else than all my aches, pains and moans and groans! So with the sun shining, well...

Hi everyone, Thought it would be a nice change to do a blog about something els...

uknlv

•14 years ago

1 Reply

Time for inspiration and change - and see who is right and who is wrong!

Hello again everyone Well they finally have made me mad enough to make some changes! The doctors that is. Let me start with yes I am overweight, I have been...

Hello again everyone Well they finally have made me mad enough to make some cha...

uknlv

•14 years ago

12 Replies

RSA - Leeds meeting on 13th June 2011

Is anyone going to the RSA meeting in Leeds on 13th June 2011? It is an evening meeting with a couple of medical speakers. It is a bit like a mini version of...

Is anyone going to the RSA meeting in Leeds on 13th June 2011? It is an evening...

Emma2

•14 years ago

18 Replies

I hate living like a walking Zombie

I have to go to bed between 6 pm and 9 pm any later I start feeling sick and my body hurts and aches so much. Sometimes, I sleep all night sometimes I am...

I have to go to bed between 6 pm and 9 pm any later I start feeling sick and my ...

Anteater

•14 years ago

5 Replies

education

i have been asked by my GP in preston if i would go and meet some medical students and talk about my condition to make them aware of this condition and the...

i have been asked by my GP in preston if i would go and meet some medical studen...

vaughan

•14 years ago

4 Replies

stiffness

does anybody out there suffer with severe stiffness and pain in joints some days i cant walk because of this and what can i do to relieve this?

does anybody out there suffer with severe stiffness and pain in joints some days...

vaughan

•14 years ago

5 Replies

Bit of a strange one - let's talk sweating!

I have mentioned in some previous comments that I am an exercise junkie - I spend nearly all my free time training in the gym and doing martial arts. I have...

I have mentioned in some previous comments that I am an exercise junkie - I spen...

Emma2

•14 years ago

25 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for April 2011

Does anyone else get pins and needles worse in one hand more than the other with Raynaud's?

Chemo related question regarding Raynaud's

Lost and confused

Has anyone had a sacral neuro stimulator (SNS) implant for incontinence in scleroderma and if so was it successful?

My wife who is 63 has suffered from Raynaud's for may years but has never received any treatment. Is there any treatment available?

Has anyone tried ginseng for Raynaud's?

Does anyone suffer from brown patches on their hands and feet (I think I have been told they are damaged/leaking blood vessels?)

Easter Sunshine - Off with the layers (or at least some of them)!

Anyone have hearing loss?

Hobbies !!!

Keep up the blogging

If it isn't one thing its another

Supermarket Freeze

Invisible are we !!!

hi does any scleroderma patients suffer with multiple pe's and dvt or is it just me ????

I suffer with Raynaud's & have recently started suffering with numbness in my feet when doing exercise, has anyone else experienced this?

Clinic, scary doctors, abroad.

Has any one else suffered from recurring ingrown toe nails? or is just me

Any homeopathic remedies for Raynaud's?

Does putting on weight ease raynauds? I've had raynauds most of my life - recently someone said I might not have such cold hands if I was

Yorkshire Sculpture Park Trip (Wakefield) Visit May 2011

I have gum disease from scleroderma as this happened to any other patients ??

Does anyone find vitamin E helps with Raynaud's? If so how much? I've tried nifedipine etc over the years

Sunnyside of life!

Time for inspiration and change - and see who is right and who is wrong!

RSA - Leeds meeting on 13th June 2011

I hate living like a walking Zombie

education

stiffness

Bit of a strange one - let's talk sweating!

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