Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,837 members • 5,411 posts

All posts for December 2022

SUDDEN increase in Sed rate, or erythrocyte sedimentation rate (ESR

Hello, I want to thank everyone that shared their personal insights replying to my post "ANCA MPO and Systemic sclerosis positive - Sudden ESR 93". Your...

Hello, I want to thank everyone that shared their personal insights replying to ...

•1 year ago

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how to put on weight

I have a horrible feeling I've asked this before but here goes: I have limited systemic scleroderma and have lost a lot of weight, so I'm now only 7 st 2 lbs...

I have a horrible feeling I've asked this before but here goes: I have limited s...

•1 year ago

how do you get into child-safe medicine bottles (as an adult with SSc)?

my hand is throbbing, and I wondered if anyone had found a foolproof method? I've tried with a towel - I managed yesterday, after trying for ages, I guess...

my hand is throbbing, and I wondered if anyone had found a foolproof method? ...

thepictrofdoryingrey

•1 year ago

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bruised finger…Achenbachs syndrome.

have not been diagnosed with anything as yet, but get bruise on my index finger sometimes and goes away within a few days. what worries me is that l sometimes...

have not been diagnosed with anything as yet, but get bruise on my index finger ...

•1 year ago

I have this too.

I have not been diagnosed with anything as yet, but get bruise on my index finger sometimes and goes away within a few days. what worries me is that l...

I have not been diagnosed with anything as yet, but get bruise on my index finge...

•1 year ago

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Raynauds: Cold exposure therapy

I would like to know if anyone has tried cold exposure therapy as a way of managing Raynaud's. I've read about this on some blogs and there's a good article...

I would like to know if anyone has tried cold exposure therapy as a way of manag...

•1 year ago

Advice for resolving sleep issues?

Hi all! I'm very new to all of this and thought I would ask for some advice. I suddenly developed Raynaud's in mid-November which has been progressing rather...

Hi all! I'm very new to all of this and thought I would ask for some advice. I...

•1 year ago

long time sore throat and getting worse.

Hello. I’m long time retired professional. I seem to always cough after sneezing but now I wake up coughing. Tired because my throat seems to take longer to...

Hello. I’m long time retired professional. I seem to always cough after sneezing...

•1 year ago

Hydroxychlorquine

Quick background: Around 2 years ago, shortly after diagnosis, I was given hydroxychloroquine. I struggled to tolerate it and vomited regularly for the 3 1/2...

Quick background: Around 2 years ago, shortly after diagnosis, I was given hydr...

•1 year ago

Swollen painful fingers, systemic sclerosis

Hi all, Wondered if anyone here suffers the same symptoms in their fingers/hands/arms? For nearly a year my fingers are swollen/puffy, which makes them...

Hi all, Wondered if anyone here suffers the same symptoms in their fingers/hand...

•1 year ago

Any experience with Phototherapy / UVB / UVA1 ?

Hi all - my main problem is swollen puffy sore fingers that won't flex - I've experienced this since January when all my fingers (except 1 thumb) swelled up...

Hi all - my main problem is swollen puffy sore fingers that won't flex - I've e...

•1 year ago

IV placement in hands when you have Scleroderma & Raynaud's

Hello, I am undergoing Rituxan infusions for ANCA vasculitis, systemic sclerosis (scleroderma) & mixed connective tissue disorder. The IV is in place an...

Hello, I am undergoing Rituxan infusions for ANCA vasculitis, systemic scleros...

•1 year ago

Running Gloves/Mittens

I live in the middle of Scotland and run every morning. Winter mornings frequently mean minus temperatures so I'm looking for recommendations for heated...

I live in the middle of Scotland and run every morning. Winter mornings frequent...

•1 year ago

Cold feet

Morning, this is my first posting as had no idea there was a site for cold feet and a name for it. Have had the problem for many years and wondering if anyone...

Morning, this is my first posting as had no idea there was a site for cold feet ...

•1 year ago

Reynauds & Achenbach

Are Reynauds & Achenbach connected ?

Are Reynauds & Achenbach connected ?

•1 year ago

Burning sensation in my leg

Yet another odd things that I was ignoring but wonder if it is actually A THING ... A couple of weeks ago I stated getting a very warm, almost burning...

Yet another odd things that I was ignoring but wonder if it is actually A THING ...

•1 year ago

Very painful lump on the sole of the foot - any experiences

I'm wondering if any of you have experience of a small, hard, lump on the sole of the foot. Very painful under pressure & to walk on.It has come on...

I'm wondering if any of you have experience of a small, hard, lump on the sole o...

•1 year ago

Covid

Anyone managed to catch Covid 5 weeks after their latest booster? After avoiding Covid for nearly 3 years it finally caught up with me, didn't think that it...

Anyone managed to catch Covid 5 weeks after their latest booster? After avoidin...

•1 year ago

Absolutely shocking Email from Electricity north west!

Hi all, as a primary raynuad's sufferer I have been a wee bit concerned about how we are going to manage this winter, gas is costing me £10 a day atm, but I...

Hi all, as a primary raynuad's sufferer I have been a wee bit concerned about ho...

•1 year ago

Chilblains

Anyone with chilblains on their toes? How do you manage with shoes?

Anyone with chilblains on their toes? How do you manage with shoes?

•1 year ago

raynaud’s plus more

Did anyone on this Board ever test positive (through punch biopsy) for Lichen Sclerosis? If so, any helpful suggestions?

Did anyone on this Board ever test positive (through punch biopsy) for Lichen Sc...

•1 year ago

Rectal cream for Reynauds!

This weekend a fellow sufferer told me about a rectal cream that has been found to relieve Raynauds, but he couldn't remember the name of it. He said it is not...

This weekend a fellow sufferer told me about a rectal cream that has been found ...

•1 year ago

Reynauds at Work

I really need some advice as I’m a bit stuck with this one. My reynauds is getting a lot more worse than it use to be. Where I work, the heating is broken and...

I really need some advice as I’m a bit stuck with this one. My reynauds is getti...

•1 year ago

Pleuroparenchymal Fiibroelastosis.....PPFE

I've recently been diagnosed with PPFE, (just to add to my numerous other conditions). I am extremely worried and desperately need information about this ....

I've recently been diagnosed with PPFE, (just to add to my numerous other condit...

•1 year ago

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Possible systemic scleroderma from ANA antibody test

Hello everyone! I am based in the US but it's nice to be able to connect with people from all over who have this condition. For the past 3 years, my husband...

Hello everyone! I am based in the US but it's nice to be able to connect with pe...

•1 year ago