Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,410 posts

All posts for February 2022

The best of three evils: Which medication will cause me least grief?

I've been told my lung function is now about 65%. The scarring has noticeably increased over the last six years. Though, I've also been told my blood...

I've been told my lung function is now about 65%. The scarring has noticeably i...

•2 years ago

Struggling today

Hi all, Had an endoscopy today as I have been having more and more issues with getting food stuck ( I have limited scleroderma). They couldn’t get a vein so...

Hi all, Had an endoscopy today as I have been having more and more issues with ...

•2 years ago

Mrs younsi

Good morning dear I just diagnosed with scleroderma. With my Nurse specialist in hospital And I been asked to that I can apply for pip support

Good morning dear I just diagnosed with scleroderma. With my Nurse specialist...

•2 years ago

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connection between Marfan and Scleroderma

My 15 year old grand daughter has sclerosis thus has badly twisted spine which is at the moment being treated with physiotherapist to strengthen muscles which...

My 15 year old grand daughter has sclerosis thus has badly twisted spine which i...

•2 years ago

Mrs Hamida

Can I apply for pip

Can I apply for pip

•2 years ago

Difficulty in swallowing

I have been finding it difficult to swallow, not whilst I'm eating but just normally. Is there anything that can help with this.?

I have been finding it difficult to swallow, not whilst I'm eating but just nor...

•2 years ago

Help please

Hi all any advice pls , my pip an esa were stopped Nov 2020, since then I have been appealing it but no luck, as the assessment phone call was all lies, I...

Hi all any advice pls , my pip an esa were stopped Nov 2020, since then I have b...

•2 years ago

Post nasal drip / scleroderma

I have recently had my 4th covid vaccination,since when I have developed a continuous post nasal drip and cough ,my eyes are clogged up ,my throat is sore and...

I have recently had my 4th covid vaccination,since when I have developed a cont...

•2 years ago

Where to book nailfold capillaroscopy and wait times?!

My wife has recently developed purple toes/feet and was experiencing some pain around her joints over the last 3 months, reducing her mobility. She has nearly...

My wife has recently developed purple toes/feet and was experiencing some pain a...

•2 years ago

HRT & Scleroderma

Hello there, Is anyone with scleroderma currently on HRT or had experience of taking it? And if so, did it make your symptoms better or worse? (Especially...

Hello there, Is anyone with scleroderma currently on HRT or had experience of t...

•2 years ago

Travel with oxygen

Good morning. I have diffuse systemic scleroderma with ILD. I have a portable oxygen concentrator for when I’m active/walking. I have booked a holiday in July...

Good morning. I have diffuse systemic scleroderma with ILD. I have a portable ox...

•2 years ago

Acceptance

Hi just wondered how people have come to terms with their diagnosis? I mentally get so distressed having appointment after appointment, new tests new bad news....

Hi just wondered how people have come to terms with their diagnosis? I mentally ...

•2 years ago

Should I be on medication

Hi all, I am finding this site so useful, thank you all so much. I was diagnosed with limited scleroderma 3 years ago. Symptoms so far, Raynaud's , Calcinosis...

Hi all, I am finding this site so useful, thank you all so much. I was diagnose...

•2 years ago

Erythromelalgia

I am currently waiting (very long wait) for an appointment with rheumatology for a diagnosis of erythromelalgia. Four years of pain and two operations for...

I am currently waiting (very long wait) for an appointment with rheumatology for...

•2 years ago

Viagra

Hi , does anyone else take viagra for there Raynaud’s? I take 10mg of nifedipine 3 times a day as well, I was only diagnosed last year , I’d always struggled...

Hi , does anyone else take viagra for there Raynaud’s? I take 10mg of nifedipine...

•2 years ago

Itchy legs

Hi all, I have been suffering a lot recently with very itchy legs , anyone else suffer with this? I’m assuming it’s another wonderful symptom of scleroderma,...

Hi all, I have been suffering a lot recently with very itchy legs , anyone else...

•2 years ago

Tongue tip tingle

Recently diagnosed scleroderma affecting total digestive tract. Most annoying aspect - tongue tip constantly tingling affecting taste and texture experience,...

Recently diagnosed scleroderma affecting total digestive tract. Most annoying a...

•2 years ago

Tadalafil

I have been using Tadalafil for 2 months now. I too was afraid of the side effects but went forward and am so happy I did. I have Pulmonary Hypertension,...

I have been using Tadalafil for 2 months now. I too was afraid of the side effe...

•2 years ago

Pockets of swelling on palm of hands

Does anyone else have small swollen pockets on the palms of the hands? Feels squidgy like water blisters. Thanks

Does anyone else have small swollen pockets on the palms of the hands? Feels squ...

•2 years ago

Systemic sclerosis

At the age of six years old, I have been diagnosed with systemic sclerosis. I've had this sickness for 14 years and have been receiving treatment for it. My...

At the age of six years old, I have been diagnosed with systemic sclerosis. I've...

•2 years ago

gut symptoms

For the past couple of months I've had intermittent cramping pain just under my ribs, mostly left side but sometimes right across. This is accompanied by...

For the past couple of months I've had intermittent cramping pain just under my ...

•2 years ago

Happy Chilly Saturday

When people come to your door do they ask if you're on your way out because you're in mittens, a scarf, a hat and a jacket because you're so cold? LOL

When people come to your door do they ask if you're on your way out because you'...

•2 years ago

Sore changing coloured feet 🦶

Hi lovely people Hope you’re managing to stay warm today . Would appreciate any thoughts on funny feet and what could cause them to be white / red / blueish...

Hi lovely people Hope you’re managing to stay warm today . Would appreciate any ...

•2 years ago

Raynauds

Hi can any body help just been diagnosed with secondary Raynauds and have blood Results of connective tissue ANA scr report positive and Lymphocyte count...

Hi can any body help just been diagnosed with secondary Raynauds and have blood...

•2 years ago

Interesting article this morning on pain

https://www.theguardian.com/commentisfree/2022/feb/01/doctor-hypnotherapy-ibs-changed-belief-pain Useful re-framing.

https://www.theguardian.com/commentisfree/2022/feb/01/doctor-hypnotherapy-ibs-ch...

•2 years ago

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What career choice it’s better for me do to condition??

Hello everyone Those anyone know if benign a phlebotomy technician is a good idea if I have Raynaud's my fingers are affect I a little bit some of my fingers...

Hello everyone Those anyone know if benign a phlebotomy technician is a good ide...

•2 years ago