Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,409 posts

All posts for October 2018

Gastroparesis

Does anyone here have this due to sclerderma? If so how was it diagnosed?

flowflow

•5 years ago

11 Replies

Electrical impulses throughout my body.

Hi, I get electrical impulses that run through my whole body. I always have like a low hum but suddenly I will get a jolt that travels through my whole body....

Hi, I get electrical impulses that run through my whole body. I always have like...

Embu

•5 years ago

2 Replies

Hope! Cannabis Oil

Hi all! I wanted to share that I have been using cannabis oil and cannabis skin based products for almost 2 months now with some wonderful feedback. I have...

Hi all! I wanted to share that I have been using cannabis oil and cannabis skin ...

SarahJane926

•5 years ago

25 Replies

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Odd recurring lip bruise/mark

Hi all, not sure if this is related to raynauds but I thought it was worth asking. Firstly I have primary raynauds and no diagnosed autoimmune disorders. I...

Hi all, not sure if this is related to raynauds but I thought it was worth askin...

Julesboz

•6 years ago

24 Replies

Im not certain what the heck is going on

K so recently, when I’m out walking after about 8 minutes my hand start to turn white except the tips but they get really hot and start sweating. After I stop...

K so recently, when I’m out walking after about 8 minutes my hand start to turn ...

Idunnowhattonameme

•6 years ago

6 Replies

Hi, I'm new here and would like to just start by saying hello to everyone.

I have now been diagnosed with diffuse cutaneous systemic sclerosis and raynaud's phenomenon since early 2017 but as far as I can figure out this disease has...

I have now been diagnosed with diffuse cutaneous systemic sclerosis and raynaud'...

Ladyandorla83

•6 years ago

11 Replies

Slits on fingers

I get these in cold weather and now I understand what the problem is, thanks to these helpful posts. I have psoriasis, psoriatic arthritis and Reynaud’s...

I get these in cold weather and now I understand what the problem is, thanks to ...

Reyzor

•6 years ago

2 Replies

Dark feets

Are you a vegetarian or vegan. Because I have been suffering from this problem for several years , now I find out that it could be protein deficiency along...

Are you a vegetarian or vegan. Because I have been suffering from this problem f...

Shazhyd

•6 years ago

1 Reply

Hello Everyone

As It Says I am new here. So here is me opening up and asking for help from strangers on the internet. This is going to be interesting. I am 41 years old,...

As It Says I am new here. So here is me opening up and asking for help from stra...

QofL

•6 years ago

13 Replies

Looking forward to a month with no hosp appts!!

Hello everybody, I hope you are all keeping as well as you can. It suddenly dawned on me that we are rapidly approaching the end of the year!!! Only because I...

Hello everybody, I hope you are all keeping as well as you can. It suddenly dawn...

fairy56

•6 years ago

5 Replies

Can't read message

Hi someone called suesure2002 has tried to contact me via messenger on this site but I can't read the message. Any tips? When I clicked on the name it says...

Hi someone called suesure2002 has tried to contact me via messenger on this site...

KatieAnna

•6 years ago

8 Replies

Which one is the Rarest Form of the different types of Scleroderma???

Because I'm now puzzled .... Just over the past year ..., Now ..., I thought there were Several people being treated ..., (With ***Systemic Sclerosis...

Because I'm now puzzled .... Just over the past year ..., Now ..., I thought th...

8whitetoes

•6 years ago

5 Replies

Living by faith

Living by faith hi I just wanted to make friends with people who have scleroderma I want to let you know that you can over come by GOD'S grave

Living by faith hi I just wanted to make friends with people who have scleroderm...

StudyGodwords

•6 years ago

2 Replies

Iloprost

I had 5 days of Iloprost infusion for the first time last week. How long is it before you usually start to feel the benefit?

I had 5 days of Iloprost infusion for the first time last week. How long is it b...

blueberry20

•6 years ago

13 Replies

Pain in legs

On holiday I was diagnosed with cellulitis. I was given clindamycin and the redness and swelling reduced quickly. 2 months later however I’ve been left with...

On holiday I was diagnosed with cellulitis. I was given clindamycin and the redn...

Mac-1234

•6 years ago

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Older Scoliosis?

Hi, anyone here developed scoliosis as an older adult? All info I read seems to be addressing teenagers. I'm agonising about surgery, there are so many...

Hi, anyone here developed scoliosis as an older adult? All info I read seems t...

aa44

•6 years ago

6 Replies

Birmingham meeting in November and Facebook page

Hi Folks, just a gentle reminder that we have our next meeting in Birmingham is booked for November 30th at 2.00pm in the John Lewis restaurant. You're more...

Hi Folks, just a gentle reminder that we have our next meeting in Birmingham is ...

avtargill31

•6 years ago

4 Replies

Methotracate

Can methotrexate cause being diabetic

marcuspaul123

•6 years ago

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Possibly worse than acid reflux

Last year around this time I stayed up a whole night puking so bad that my throat bleed and eventually nothing but acid came up for a while I was scared to...

Last year around this time I stayed up a whole night puking so bad that my throa...

107us

•6 years ago

6 Replies

Limited cutaneous systemic sclerosis and lung involvement question.

Hello to anyone reading. I just wanted to get a general feel for how many people diagnosed with Lcss actually have lung involvement? Trying to gage how rare or...

Hello to anyone reading. I just wanted to get a general feel for how many people...

-missymoo

•6 years ago

18 Replies

Taking a gamble!

This is a bit of a gamble if anybody from the London area is going to the raynounds conference in Windsor tommoro esp if travling alone and wants to share taxi...

This is a bit of a gamble if anybody from the London area is going to the raynou...

marcuspaul123

•6 years ago

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Remission/ sores

I was told by my rheumy I was in remission? Can anyone explain this to me ? I have been diagnosed with secondary reynauds and they found it was from Crest...

I was told by my rheumy I was in remission? Can anyone explain this to me ? I ha...

Emfrenette

•6 years ago

3 Replies

Things u can do that doctors do not mention. A journey that few people understand.. we need to help each other..

I have read all personal struggles with Raynauds that I can find... not only do I have Raynauds ,one daughter and one granddaughter suffers with Raynauds and...

I have read all personal struggles with Raynauds that I can find... not only do ...

BCTK

•6 years ago

3 Replies

Erythromyalgia or something else/more? Mast Cell Activation Disorder?

Bit of history first - I've had Reynaud's since a young girl. No other issues related to anything rheumatalogical other than intermittent ulcers rarely until...

Bit of history first - I've had Reynaud's since a young girl. No other issues r...

bengali

•6 years ago

5 Replies

Scleroderma and Lung cancer

Hi everyone I was diagnosed with systemic scleroderma in 1999 with fibrosis to my lungs. In a routine x-ray with my pulmologist an anomaly was picked up. After...

Hi everyone I was diagnosed with systemic scleroderma in 1999 with fibrosis to m...

Lorna

•6 years ago

8 Replies

Feeling rubbish after exercising

Hi everyone - I was diagnosed with Systemic Sclerosis earlier this year and am suddenly feeling really crappy after my usual visit to the gym. I usually do...

Hi everyone - I was diagnosed with Systemic Sclerosis earlier this year and am s...

Cubbikins

•6 years ago

8 Replies

Could someone interpret these results please?

Hello 😊 Just looking through my blood test report and not really sure how to interpret them. Looking at the photo, what are my actual results?! So many...

Hello 😊 Just looking through my blood test report and not really sure how to in...

-missymoo

•6 years ago

6 Replies

Picture of cigarette like sore ....

Here is picture of *sore as it is healing* .... Anyone have Any clue as too ...., What the what?????!!!!!???? I'm really tired of the things ..... They are...

Here is picture of *sore as it is healing* .... Anyone have Any clue as too .......

8whitetoes

•6 years ago

5 Replies

Here is a picture of cigarette like sore

HERE is picture of sores at "2sd" stage.....

8whitetoes

•6 years ago

5 Replies

Sores that look like cigarette burns

HERE is a picture of a *sore* at it's start.....

8whitetoes

•6 years ago

Be the first to reply

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for October 2018

Gastroparesis

Electrical impulses throughout my body.

Hope! Cannabis Oil

Odd recurring lip bruise/mark

Im not certain what the heck is going on

Hi, I'm new here and would like to just start by saying hello to everyone.

Slits on fingers

Dark feets

Hello Everyone

Looking forward to a month with no hosp appts!!

Can't read message

Which one is the Rarest Form of the different types of Scleroderma???

Living by faith

Iloprost

Pain in legs

Older Scoliosis?

Birmingham meeting in November and Facebook page

Methotracate

Possibly worse than acid reflux

Limited cutaneous systemic sclerosis and lung involvement question.

Taking a gamble!

Remission/ sores

Things u can do that doctors do not mention. A journey that few people understand.. we need to help each other..

Erythromyalgia or something else/more? Mast Cell Activation Disorder?

Scleroderma and Lung cancer

Feeling rubbish after exercising

Could someone interpret these results please?

Picture of cigarette like sore ....

Here is a picture of cigarette like sore

Sores that look like cigarette burns

Search posts

Pinned Posts

Latest poll

How do you pronounce Raynaud's? Listen to English Cambridge Dictionary: http://bit.ly/2DmGhmz Vote now. If other then reply below.

Topics

Archive

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for October 2018

Gastroparesis

Electrical impulses throughout my body.

Hope! Cannabis Oil

Odd recurring lip bruise/mark

Im not certain what the heck is going on

Hi, I'm new here and would like to just start by saying hello to everyone.

Slits on fingers

Dark feets

Hello Everyone

Looking forward to a month with no hosp appts!!

Can't read message

Which one is the ***Rarest Form*** of the different types of **Scleroderma**???

Living by faith

Iloprost

Pain in legs

Older Scoliosis?

Birmingham meeting in November and Facebook page

Methotracate

Possibly worse than acid reflux

Limited cutaneous systemic sclerosis and lung involvement question.

Taking a gamble!

Remission/ sores

Things u can do that doctors do not mention. A journey that few people understand.. we need to help each other..

Erythromyalgia or something else/more? Mast Cell Activation Disorder?

Scleroderma and Lung cancer

Feeling rubbish after exercising

Could someone interpret these results please?

Picture of cigarette like sore ....

Here is a picture of *cigarette* like sore

Sores that look like cigarette burns

Search posts

Pinned Posts

Latest poll

How do you pronounce Raynaud's? Listen to English Cambridge Dictionary: http://bit.ly/2DmGhmz Vote now. If other then reply below.

Topics

Archive

Which one is the Rarest Form of the different types of Scleroderma???

Here is a picture of cigarette like sore