iloprost at the royal free: Just... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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iloprost at the royal free

lollipop profile image
5 Replies

Just wondered if anyone else was going for ilorpost at the royal free in nivember and staying at the premier inn

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lollipop
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5 Replies
Loopy-loo profile image
Loopy-loo

Hi lollipop,

Yes I am waiting for an appointment to have Iloprost Infusion at the Royal Free, not sure how long I have to wait though. Take Care.

in reply toLoopy-loo

Yes I am due to go into The Royal Free and stay at The Premier Inn as last year, on 4th November for five days Iloprost treatment. However this date could be altered as my consultant's secretary thinks it a bit early for me. This will be my fourth Iloprost treatment. Maybe see you there! Good luck and take care.

lollipop profile image
lollipop

You never know maybe we could be there at the same time. where do you eat for good value? i am told you get breakfast and lunch is this at the hospital

in reply tolollipop

Hi. Yes , breakfast is cereal and toast with marmalade or jam. Lunch is often refused by patients because it is not really that nice a lot of the time. I can't say the Cafe in the hospital is good value and the choice is fairly limited. The restaurant at Premier Inn is very good, but not cheap. I am going in for Iloprost 4th November. May meet you there? Best wishes.

lollipop profile image
lollipop

i go the eleventh i am going striaght to the hospital not sure what time i will get done hope the premier inn are used to ppl checking in at night (not used to all this). what is the average time you get done at the hospital. Also worried they wont get venflon in as i have rubbish veins, but am told they are used to it

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