Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,409 posts

All posts for June 2014

Few spells of raynauds n past few months......dr decided to take blood tests.....said results point to scleroderma, possible ill be ok?

•10 years ago

Hi everyone I am New to this but have reynauds and schleroderma

Ok so I have reynauds and schleroderma and I've only begun to suffer from ulcers/infections the past 6 years. I have had: iloprost, Viagra, nifedipine, asprin,...

Ok so I have reynauds and schleroderma and I've only begun to suffer from ulcers...

•10 years ago

Scleroderma affecting the colon? Does anyone suffer with colon spasm due to this?

I am getting pain in the colon, it feels tight and can hurt when passing a stool , cramp like pains? Is this the scleroderma? I have Limited Systemic Sclerosis...

I am getting pain in the colon, it feels tight and can hurt when passing a stool...

•10 years ago

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Please can anyone help? I have CREST limited systemic sclerosis & suffering with gullet problems.

I have tightness in the gullet & pain ....it has been there most if the week & I am reluctant to make a Rheumy appt. I do have mild Barrets oseophagus & have...

I have tightness in the gullet & pain ....it has been there most if the week & I...

•10 years ago

Bosentan decision delayed by NICE as they deem it to be non urgent and not in demand.

I wonder if anyone is being affected by "NICE" decisions regarding Bosentan? My husband had great success with a 6 month trial from the Royal Free. NICE are...

I wonder if anyone is being affected by "NICE" decisions regarding Bosentan? My ...

•10 years ago

I have Raynauds, in warm(as well as cold)weather my hands throb and are painful, does anyone else get this? Any way of stopping it?

I sometimes try cooling my hands but then they tend to become too cold and then become numb and painful. It always seems like its one or the other!

I sometimes try cooling my hands but then they tend to become too cold and then ...

•10 years ago

Raynaud's and endometriosis?

Hello everyone, I have been suffering from Raynaud's since I was 11 and I am now 24 and I have been having problems with periods for years. When I was doing...

Hello everyone, I have been suffering from Raynaud's since I was 11 and I am n...

•10 years ago

Just wondering.......

Just wondering if anyone else with raynauds, has irritable bowel syndrome or suffers from varicose veins

Just wondering if anyone else with raynauds, has irritable bowel syndrome or suf...

•10 years ago

Nifedipine

hello was put on Nifedipine 3 weeks ago 1 tablet 3 times a day 5mg each tab , wow my hands and feet felt better,and my moods felt better (probably because i...

hello was put on Nifedipine 3 weeks ago 1 tablet 3 times a day 5mg each tab , wo...

•10 years ago

Thyroid e petition request

Hello, I hope you don't mind me posting this on your forum (I can delete if necessary). I'm trying to promote a UK e petition created by Thyroid UK below....

Hello, I hope you don't mind me posting this on your forum (I can delete if ne...

•10 years ago

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I have just had my check up at the Royal Free and my consultant has arranged for me to have pamidromate infusions for my calcinosis. Has

anyone had this infusion and, if so, has it helped and were there any side effects. Thanks a lot

anyone had this infusion and, if so, has it helped and were there any side effec...

•10 years ago

My story

Hia. This is the first time iv posted . I have read many many inspiring stories though and the advice is always fab. My story begins last July when I was...

Hia. This is the first time iv posted . I have read many many inspiring stories ...

•10 years ago

What exactly is Raynaud's?

My five yr old has been having.really bad itchy feet,both, the whole arch?

My five yr old has been having.really bad itchy feet,both, the whole arch?

•10 years ago

For the last five days, when I drop my head down, I feel an electric jolt from my gut down my legs. Anyone have any idea what's going on?

•10 years ago

John O'Groats to Lands End walk June 2015 - Can you help?

One of our supporters, Liz, wants to organise a relay walk from John O'Groats to Lands End in June 2015. She is looking for people to take part and also to...

One of our supporters, Liz, wants to organise a relay walk from John O'Groats to...

Partner•10 years ago

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