Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,823 members • 5,405 posts

All posts for June 2017

Methotrexate injections

Hi guys! I've not used this site for a while but wondered if anyone has any experience with methotrexate injections? I saw my consultant yesterday and he...

Hi guys! I've not used this site for a while but wondered if anyone has any expe...

scotgirl

•7 years ago

5 Replies

Sildenafil (Viagra) in the treatment of Raynaud's?

Hi Folks, It's been ages since I posted on this site but was hoping that I could get a bit of feedback from those of you out there taking Sildenafil for help...

Hi Folks, It's been ages since I posted on this site but was hoping that I could...

Rach18

•7 years ago

10 Replies

Ulcer growths

I have scleroderma and ray aids and have recently got an ulcer on the knuckle of my little finger. This has become a growth about 3cm out from the finger. Has...

I have scleroderma and ray aids and have recently got an ulcer on the knuckle of...

Pennypetra

•7 years ago

4 Replies

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HUMIRA

Since they changed the formulation of HUMIRA I have had a lot of trouble. I have been on HUMIRA for 5 years and it has worked great keeping my Rheumatoid...

Since they changed the formulation of HUMIRA I have had a lot of trouble. I have...

mydog

•7 years ago

2 Replies

cold extremities, body overheating

Hi, this is my first post. I was diagnosed with limited scleroderma last month, main symptoms have been raynauds and difficulty swallowing. this week I have...

Hi, this is my first post. I was diagnosed with limited scleroderma last month, ...

quebec

•7 years ago

4 Replies

Generalised morphoea and emphysema

This may not be coherent as I think I'm in shock! Diagnosed in March, have been on MTX since then 15mg. Followed by Mycophenelate 6 weeks ago. Had a CAT scan...

This may not be coherent as I think I'm in shock! Diagnosed in March, have been ...

ChrisM28

•7 years ago

1 Reply

Does anyone read the leaflets in with your medication

They make horrendous reading enough to scare your pants off,I've just been prescribed Hydroxychloroquine, I'm on mycophenolate,steroids,allopurinol...

They make horrendous reading enough to scare your pants off,I've just been presc...

mad4cavs

•7 years ago

17 Replies

Problems with veins

Anyone have problems with finding veins and what helps? I have tried drinking lots of water but don't think that does anything to help. Got stuck 3 times...

Anyone have problems with finding veins and what helps? I have tried drinking l...

LisaCl

•7 years ago

10 Replies

Just a quickie

Just a quickie Is Systemic scleroderma linked with or at risk of developing MS? Thanks Kelsey

Just a quickie Is Systemic scleroderma linked with or at risk of developing MS?...

kel87

•7 years ago

9 Replies

How symmetrical is your skin involvement?

I have limited systemic sclerosis and to date although I have some skin tightening on my hands and fingers and to a lesser extent, my feet, I do not have...

I have limited systemic sclerosis and to date although I have some skin tighteni...

cowhide

•7 years ago

12 Replies

Hard Tight Hands

Hello All, Any ideas how to releive tight, hard hands. I do moisterise often. cant even clench or make a fist. Am taking 10mg of nifidpine twice a day. I...

Hello All, Any ideas how to releive tight, hard hands. I do moisterise often. c...

naila_007

•7 years ago

6 Replies

Do you ever wish you could take a day off. pain

I would just like to wake up one morning and there be no pain, had my mst increased today from 40mg to 50mgs, bd, what analgesia is everyone on ,doctor has...

I would just like to wake up one morning and there be no pain, had my mst increa...

mad4cavs

•7 years ago

3 Replies

Stomach polyps

Went for an endoscope on Tuesday, the diagnoses was as follows: Multiple polyps in stomach but okay, hiatus hernia is a bit bigger, oesophagus, stomach and...

Went for an endoscope on Tuesday, the diagnoses was as follows: Multiple polyps...

Denny57

•7 years ago

9 Replies

Osteoporosis and prolia

Anyone using prolia and having side effect. I started my first shot 10 days ago . The first thing I noticed was two little hives on my belly ( four days after...

Anyone using prolia and having side effect. I started my first shot 10 days ago ...

Batbara

•7 years ago

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Mycophenolate newbie

Hi everyone, Am going to see the rhemotolgy nurse tomorrow. Am presuming thiis will be one of many visits as they start me on mycophenolate. I thought u only...

Hi everyone, Am going to see the rhemotolgy nurse tomorrow. Am presuming thiis w...

naila_007

•7 years ago

7 Replies

Im new to this

carlann

•7 years ago

2 Replies

scleraderma

the fatigue is so bad I cant get out of my own way does any one else go threw and what will help

the fatigue is so bad I cant get out of my own way does any one else go threw an...

kimpush

•7 years ago

6 Replies

scleraderma

I have had scleraderma for years i am 61 and my eyes are dry my mouth is so dry i feel like its chocking me my sinouses also close at the same time ,been...

I have had scleraderma for years i am 61 and my eyes are dry my mouth is so dry ...

kimpush

•7 years ago

13 Replies

Raynauds out of options

Hi gang, Running out of options for my raynauds. Ulcers not healing. All vasodilator meds open the veins in my head and cause migraines - even gtn patch....

Hi gang, Running out of options for my raynauds. Ulcers not healing. All vasodil...

butterfly1000

•7 years ago

7 Replies

Raynauds

Hi all so I've posted photos of how Raynaud's affect my toes but I was wondering if anyone gets this on the sides of their feet just near the ankle bone.I have...

Hi all so I've posted photos of how Raynaud's affect my toes but I was wondering...

littleones

•7 years ago

3 Replies

Diffuse scleroderma

I've been told my scleroderma should with treatment be burnt out in 2_3yrs does that mean it goes away, or just hide its ugly head,

I've been told my scleroderma should with treatment be burnt out in 2_3yrs does ...

mad4cavs

•7 years ago

16 Replies

Son diagnosed today

My 9 year old son was diagnosed with linear scleroderma. It affects his hand arm and back. His finger is particularly bad and has no flexibility at all. He...

My 9 year old son was diagnosed with linear scleroderma. It affects his hand ar...

Teri80

•7 years ago

3 Replies

Advice

Hey I`ve got my official letter from my consultant she is wanting to try me with Immunosuppressive Therapy and I`m presuming the medication is Mycophenolate...

Hey I`ve got my official letter from my consultant she is wanting to try me with...

kel87

•7 years ago

6 Replies

Change of weather

Hi everybody, just as I am getting used to the warmer weather and having near normal hands, it turns cold and my purple hands are back!! This afternoon I sat...

Hi everybody, just as I am getting used to the warmer weather and having near no...

fairy56

•7 years ago

6 Replies

Anyone tried or on any of these medications need some advice

Have received letter from my rheumatologist stating how my thermography showed significant peripheral vasospasm which is consistent with a diagnosis of primary...

Have received letter from my rheumatologist stating how my thermography showed s...

littleones

•7 years ago

4 Replies

Coping methods - Reynaud's and Erythromelalgia?

I've had Reynaud's as long as I can remember, since a young girl. Last year I started getting incredible burning, itching, pain with red swelling in my feet...

I've had Reynaud's as long as I can remember, since a young girl. Last year I st...

bengali

•7 years ago

3 Replies

Esa face to face

I have to go for a ESA /face to face medical Wednesday 4 days notice!!! I am really stressed about it my blood pressure is already high and being...

I have to go for a ESA /face to face medical Wednesday 4 days notice!!! I am re...

mad4cavs

•7 years ago

16 Replies

Need help.

I have Primary Raynauds and have been put on amlodipine 5mg and have had symptoms of headaches, trouble sleeping, increased urination. I have only been on...

I have Primary Raynauds and have been put on amlodipine 5mg and have had symptom...

BertieB_280616

•7 years ago

4 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for June 2017

Methotrexate injections

Sildenafil (Viagra) in the treatment of Raynaud's?

Ulcer growths

HUMIRA

cold extremities, body overheating

Generalised morphoea and emphysema

Does anyone read the leaflets in with your medication

Problems with veins

Just a quickie

How symmetrical is your skin involvement?

Hard Tight Hands

Do you ever wish you could take a day off. pain

Stomach polyps

Osteoporosis and prolia

Mycophenolate newbie

Im new to this

scleraderma

scleraderma

Raynauds out of options

Raynauds

Diffuse scleroderma

Son diagnosed today

Advice

Change of weather

Anyone tried or on any of these medications need some advice

Coping methods - Reynaud's and Erythromelalgia?

Esa face to face

Need help.

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