Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,113 members•5,638 posts

All posts for November 2017

Me

Hi my name is Kathy I was just diagnosed with this disease as time goes on I am hurting more and more right now my feet really hurt and my muscles all over and...

Hi my name is Kathy I was just diagnosed with this disease as time goes on I am ...

Canadiankat1969

•7 years ago

3 Replies

Help

So, I have suffered with ulcerated finger tips for many months. They have been infected as well. Treated with antibiotics successfully thank god! For the last...

So, I have suffered with ulcerated finger tips for many months. They have been i...

kimbalina

•7 years ago

15 Replies

Treatment for calcinosis

Hello all, just wondering if anyone is on any specific treatment for their calcinosis. I have quite extensive calcinosis in my hands (and a big blob in my...

Hello all, just wondering if anyone is on any specific treatment for their calci...

LucyJean

•7 years ago

2 Replies

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What causes scleroderma?

The cause of scleroderma is still unknown, but is known about how a condition develops, as specialist Prof. Chris Denton explains:...

The cause of scleroderma is still unknown, but is known about how a condition de...

SRUKadmin

Partner•7 years ago

22 Replies

Help? Not sure if this is scleroderma

For years I’ve suffered with fatigue, underactive thyroid, raynauds. I’ve got osteoarthritis in my right knee and a bulging disc in my thoracic spine which is...

For years I’ve suffered with fatigue, underactive thyroid, raynauds. I’ve got os...

Frankosmythe

•7 years ago

2 Replies

Morton nerona

Hi, I have really bad raynauds in my toes and now also a very painful Morton nerona the colder my feet the worse the pain I don't have many good days with my...

Hi, I have really bad raynauds in my toes and now also a very painful Morton ner...

littleme1981

•7 years ago

4 Replies

Scleroderma Sufferer.

I am 66 years old and have had scleroderma for 2 years but only been diagnosed for 6 months. I live alone and also am looking after not only myself but also my...

I am 66 years old and have had scleroderma for 2 years but only been diagnosed f...

Roselda

•7 years ago

19 Replies

New here and to the UK... and feeling very low today

My name is Doris and I am from Kenya, currently studying in the UK. So in 2003, i started having hard lesions along my elbow and at first I ignored it, but as...

My name is Doris and I am from Kenya, currently studying in the UK. So in 2003, ...

Cheptilda

•7 years ago

3 Replies

Does this look familiar?

Hi, I've posted a photo of my hand, which shows the dryness in between my fingers. This is how it starts then quickly tears to leave open sores which often...

Hi, I've posted a photo of my hand, which shows the dryness in between my finger...

AField

•7 years ago

6 Replies

Been away from here for a while, but need support

Things are really tough for me atm, I'm in so much pain physically that it's effected my mental well-being 😟 to top it off my Dad just passed away so I'm here...

Things are really tough for me atm, I'm in so much pain physically that it's eff...

gindy

•7 years ago

13 Replies

Lamsoprazol etc

I've been taking this for a few years now. As I understand it it reduces stomach acid. I assume that stomach acid is there for a reason so is not having it a...

I've been taking this for a few years now. As I understand it it reduces stomach...

Inamoment

•7 years ago

6 Replies

My skin is so dry!!

Is there any one who has cuts on their hands?

Rudiguer

•7 years ago

12 Replies

Does this sound like scleroderma?..

Hi everyone. For years I’ve suffered with fatigue, underactive thyroid, raynauds. I’ve got osteoarthritis in my right knee and a bulging disc in my thoracic...

Hi everyone. For years I’ve suffered with fatigue, underactive thyroid, raynauds...

Frankosmythe

•7 years ago

1 Reply

Ugg Boots / chilblains.

I have limited systemic scleroderma and this autumn I have bad chilblains on one of my big toes, the first time for 20 years and it hasn't even been cold. I...

I have limited systemic scleroderma and this autumn I have bad chilblains on one...

lynntregaron

•7 years ago

10 Replies

Gwen

Hi fellas

Gwantwa

•7 years ago

3 Replies

Problem not clear

I have had neck pain for about 5 years now, I was assigned to physiotherapy but had no relief only getting worse sometimes

I have had neck pain for about 5 years now, I was assigned to physiotherapy but ...

Gwantwa

•7 years ago

4 Replies

Extreme fatigue and cognitive issues

Hi, new on here n a little nervous about posting. Just looking to see if others feel the same and how you cope. Got blood results back from my GP who said I...

Hi, new on here n a little nervous about posting. Just looking to see if others ...

AngG1

•7 years ago

21 Replies

Is this Scleroderma? I’m so unwell

I’m currently undergoing first line blood tests (ANA etc) my doctor suspects sjogrens/crest/scleroderma/lupus. I need some advice. I have a severely disabled...

I’m currently undergoing first line blood tests (ANA etc) my doctor suspects sjo...

Pat1ence

•7 years ago

10 Replies

Pulmonary hypertension

I posted yesterday but cannot find my post.

JJMR

•7 years ago

2 Replies

Diagnosed yesterday!

Hi All, Well...guess I'm joining the gang. Yesterday i was diagnosed with Systemic Sclerosis/Scleroderma. I have suffered from Raynaud's for years. Can anyone...

Hi All, Well...guess I'm joining the gang. Yesterday i was diagnosed with System...

Chrisey35

•7 years ago

6 Replies

Vertigo and nauseous

I have scleroderma and spinal issues ( 4 levels in my necked were fused and two areas in my thoracic area are compressed on cord and bulged). I have been...

I have scleroderma and spinal issues ( 4 levels in my necked were fused and two ...

Littleleni

•7 years ago

2 Replies

Newly diagnosed systemic sclerosis

Hi, I am a 54 female and have recently been diagnosed with systemic sclerosis. I had never heard of it before so it came as a big shock. But at least I now...

Hi, I am a 54 female and have recently been diagnosed with systemic sclerosis. I...

Fr4nces

•7 years ago

33 Replies

Finger splints

Hi All I have had systemic sclerosis for 18 years and my fingers are very curled. I have been recommended to get finger splints to wear at night. Does anyone...

Hi All I have had systemic sclerosis for 18 years and my fingers are very curled...

Pennypetra

•7 years ago

16 Replies

iloprost for scleroderma

Hi! I was diagnosed with systemic scleraderma just over a year ago following a stomach ulcer and a positive ana blood test. Have been on losartan with...

Hi! I was diagnosed with systemic scleraderma just over a year ago following a s...

babycatcherem

•7 years ago

41 Replies

Raynauds - help?

Hi, I was diagnosed with Raynauds back in January 2017. I was given a leaflet which referred to arthritis and had a section referenced to Raynauds, but apart...

Hi, I was diagnosed with Raynauds back in January 2017. I was given a leaflet wh...

AField

•7 years ago

6 Replies

Cold weather

Anyone out there has the same problems I am experience? This first time in years and I'm feeling the cold more than usual. I becoming more stiff in my body. I...

Anyone out there has the same problems I am experience? This first time in years...

Bexsam

•7 years ago

2 Replies

Crest Syndrome

I have Crest and my hair is breaking off does anyone know if thats possible? thanks

I have Crest and my hair is breaking off does anyone know if thats possible? tha...

Belinda1960

•7 years ago

7 Replies

Raynauds

Anyone out there with a child who has Raynauds?

Lisa17

•7 years ago

17 Replies

Sore nose

Does anyone else suffer with a sore nose it feels like it's raw inside and constant for weeks then clears up for a while then starts again. Coyld it be ulcers?...

Does anyone else suffer with a sore nose it feels like it's raw inside and const...

bloo

•7 years ago

2 Replies

Salt craving

Just wondering if anyone else craves salt ? I always have but it seems to be getting worse lately and wondered if it’s connected Thanks

Just wondering if anyone else craves salt ? I always have but it seems to be ge...

Sami13

•7 years ago

5 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for November 2017

Me

Help

Treatment for calcinosis

What causes scleroderma?

Help? Not sure if this is scleroderma

Morton nerona

Scleroderma Sufferer.

New here and to the UK... and feeling very low today

Does this look familiar?

Been away from here for a while, but need support

Lamsoprazol etc

My skin is so dry!!

Does this sound like scleroderma?..

Ugg Boots / chilblains.

Gwen

Problem not clear

Extreme fatigue and cognitive issues

Is this Scleroderma? I’m so unwell

Pulmonary hypertension

Diagnosed yesterday!

Vertigo and nauseous

Newly diagnosed systemic sclerosis

Finger splints

iloprost for scleroderma

Raynauds - help?

Cold weather

Crest Syndrome

Raynauds

Sore nose

Salt craving

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