Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,836 members • 5,408 posts

All posts for November 2015

Iloprost!!!

No drug infusion this week! Cancelled because of a heavy cold! That's twice now so maybe third time lucky, it's rebooked for next week. A week indoors now in...

No drug infusion this week! Cancelled because of a heavy cold! That's twice now ...

•8 years ago

Scleroderma Remission? Is it possible to do well?

I am reading that many times the first 3-5 years are the most aggressive with Systemic Scleroderma. And that many times the disease "burns itself out" or goes...

I am reading that many times the first 3-5 years are the most aggressive with Sy...

•8 years ago

Time off from work

Under a new absence policy at work I am only allowed to have 2 hospital appointments and 1 doctors appointment a year paid, not even allowed to make up the...

Under a new absence policy at work I am only allowed to have 2 hospital appoint...

•8 years ago

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Endoscopy and Angiogram

Hi . I hope everyone is keeping warm . I had an angiogram recently and it came back saying I had a breathing artefact but otherwise ok. But am now being sent...

Hi . I hope everyone is keeping warm . I had an angiogram recently and it came b...

•8 years ago

Stem cell transplant

Hi all I am at the moment awaiting a stem cell transplant for my systemic scleroderma as advised by professor Denton at royal free and was wondering wether...

Hi all I am at the moment awaiting a stem cell transplant for my systemic sclero...

•8 years ago

Severe depression

Hi everyone I'm currently going through a hard time with my lupus,I'm in the middle of a flare and feel abuslotuly terrible too the bone,I'm seeking anyone's...

Hi everyone I'm currently going through a hard time with my lupus,I'm in the mid...

•8 years ago

New Scleroderma Specialist

I have just been for my first appointment with Dr Anderson at Aintree Hospital, Fazakerley. What a lovely lady and she also went to medical school with Dr....

I have just been for my first appointment with Dr Anderson at Aintree Hospital, ...

•8 years ago

Is this really Raynaud's?

Hi, my GP suspects Reynaud's but I am not convinced so would love to know if these symptoms are familiar to you. The tip of one finger (only one) can be...

Hi, my GP suspects Reynaud's but I am not convinced so would love to know if the...

•8 years ago

Raynauds, Scleroderma, Pulmonary Hypertension and Heart Problems

Well it seems that my diagnosis's were never ending! I now have to learn to live with it all. To think I only went to the Doctor because I was short of...

Well it seems that my diagnosis's were never ending! I now have to learn to live...

•8 years ago

G.A.V.E.

I recently saw gastroenterologist for results of capsule endoscopy, it showed I have a condition named as G.A.V.E which is bleeding points in stomach,...

I recently saw gastroenterologist for results of capsule endoscopy, it showed I...

•8 years ago

pimples on fingers

Thanks for all of you who replied to this post question. It is indeed chilblains. I have a rather awkward job, where I have to keep taking my gloves off to use...

Thanks for all of you who replied to this post question. It is indeed chilblains...

•8 years ago

Endoscopy

Hello Jeano here, Had the Endoscopy done yesterday (with sedation), and it went well. On the report, the Doctor has put Patient has Scleroderma so may account...

Hello Jeano here, Had the Endoscopy done yesterday (with sedation), and it went ...

•8 years ago

Ventricular Tachycardia/Arrhythmia and Scleroderma - Treatment?

I am wondering if anyone who has scleroderma has had issues with ventricular tachycardia and/or arrhythmia? I also wanted to know if you do/did, did...

I am wondering if anyone who has scleroderma has had issues with ventricular tac...

•8 years ago

pimples on fingers

Does anyone get pimples on their fingers? They actually look like little boils and feel like you have been attacked by a bramble thorn, then about 10 days...

Does anyone get pimples on their fingers? They actually look like little boils a...

•8 years ago

Raynauds and investigations

Hi everyone. New to this.. I've had a diagnosis of Raynauds for over 30 years (52 now) and although pretty severe- have coped well and kept smiling. However...

Hi everyone. New to this.. I've had a diagnosis of Raynauds for over 30 years (5...

JenniferClaireA

•8 years ago

Which medication?

I have been on Nifepress MR for about 3 years and when I saw the Rheumy this week she asked if I had felt it had helped? And to be honest I don't think it......

I have been on Nifepress MR for about 3 years and when I saw the Rheumy this wee...

•8 years ago

Is diagnosis important?

Hi, I have only just realised that I have raynauds after going to the Drs with lesions/ulcers/something on the tips of my toes. They had no idea what was...

Hi, I have only just realised that I have raynauds after going to the Drs with l...

•8 years ago