Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for June 2012

Lovely husband!!!!

I saw the consultant for the first time on Monday and since I've got a diagnosis I just wanted to share with you what a loving and supportive husband I've...

I saw the consultant for the first time on Monday and since I've got a diagnosis...

Kerry72

•12 years ago

6 Replies

World Scleroderma Day 29th June

Having a disease that nobody has heard of is a lonely business. When even the doctors cannot recognise it, or tell you what is going to happen, it is lonelier...

Having a disease that nobody has heard of is a lonely business. When even the do...

RSA_Hannah

•12 years ago

1 Reply

World Scleroderma day Fri 29th June 2012

Hi everyone ! is anyone doing anything special for world scleroderma day ? I have emailed all of my local radio / media outlets letting them know it is world...

Hi everyone ! is anyone doing anything special for world scleroderma day ? I hav...

living-the-dream-ssc-ray

•12 years ago

5 Replies

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Raynauds and low blood pressure

Does anyone else have both Raynauds and LOW blood pressure - if so do you take meds for Raynauds?

Does anyone else have both Raynauds and LOW blood pressure - if so do you take m...

sandraj

•12 years ago

26 Replies

Hi, I have had Sjorgens symptoms for many years, why is it taking so very very long for me to be sent to a RA?

Hi, I've had so many ill problems over the years, ie terrible back pain that comes and goes, chronic fatigue and depression. Anyway nearly 3 years ago my...

Hi, I've had so many ill problems over the years, ie terrible back pain that c...

Giny

•12 years ago

8 Replies

Just what are the signs and symptoms of scleroderma?

I'm 54, and had to go on disability in '09. I have fibro, CFS, Sjogren's, Raynauds, and degenerative disk disease (neck and back). I also found out last Nov,...

I'm 54, and had to go on disability in '09. I have fibro, CFS, Sjogren's, Rayna...

Vickisu

•12 years ago

9 Replies

new to all this...bit scary!!!

ok...so i saw the consultant for the first time today...he didnt say exactly that its scleroderma but he did mention that...well systemic sclerosis along with...

ok...so i saw the consultant for the first time today...he didnt say exactly tha...

Kerry72

•12 years ago

11 Replies

Teeth problems

I have 2nd Raynauds, ANA+ and positive nail fold capillary test. In the last year I have had 3 of my back teeth break right through the root. In the past I...

I have 2nd Raynauds, ANA+ and positive nail fold capillary test. In the last yea...

sandraj

•12 years ago

27 Replies

Project Scleroderma - great movie raising scleroderma awareness directed by Christy, in memory of her mum who had scleroderma

click on this link : http://www.indiegogo.com/projectscleroderma well done Christy for spreading the awareness across the globe !! :)

click on this link : http://www.indiegogo.com/projectscleroderma w...

living-the-dream-ssc-ray

•12 years ago

1 Reply

Do you have Iloprost treatment?

If so, we'd love to hear about your experience. In particular we are interested to hear if you have had any difficulties in receiving the infusions, any...

If so, we'd love to hear about your experience. In particular we are inte...

RSA_Hannah

•12 years ago

14 Replies

Wehoo the sun is out over here in the UK - the flip flops are on, the toes are blue ;)

HI everyone ! I am very excited about being able to not have to wear my thick socks and Ugg boots !! Yesterday I was able to wear my pink pair of trainers,...

HI everyone ! I am very excited about being able to not have to wear my thick ...

living-the-dream-ssc-ray

•12 years ago

7 Replies

HI everyone I`ve not been on here before.

I`m usualy on the Fibromyalgia site.But I do suffer very severly from reynouds. I have very red palms and when I looked up for what it might be,Crest came up...

I`m usualy on the Fibromyalgia site.But I do suffer very severly from reynouds. ...

Butterfly54

•12 years ago

9 Replies

Sjogren's Syndrome

I have had Raynaud's since I was 14 (now 55). At 21 I was diagnosed with CREST Syndrome (Limited Cutaneous Systemic Sclerosis) but now I'm wondering whether I...

I have had Raynaud's since I was 14 (now 55). At 21 I was diagnosed with CREST ...

Sarahbv

•12 years ago

9 Replies

Has anyone with raynauds and scleroderma ever worked in industry,

I worked in industry during the late 70s , 80s and early 90s, that handled raw materials that were used for making toiletries and household cleaners. I was...

I worked in industry during the late 70s , 80s and early 90s, that handled raw m...

wartsandall

•12 years ago

11 Replies

There is now a healthunlocked specifically for scleroderma!

http://sclerodermasociety.healthunlocked.com

Hidden

•12 years ago

2 Replies

Juvenile Linear Scleroderma

My 9 year old daughter has had Type 1 Diabetes for 3 years and last May got diagnosed with Juvenile Linear Scleroderma (In a line affecting her right hand,...

My 9 year old daughter has had Type 1 Diabetes for 3 years and last May got diag...

debbie7

•12 years ago

7 Replies

Hi

I'm new on here, it's not me that suffers but my 12 year old son. He has raynauds and scleroderma and was diagnosed about 3 years ago after suffering for a few...

I'm new on here, it's not me that suffers but my 12 year old son. He has raynaud...

JoannaB

•12 years ago

3 Replies

My Life Through Pictures & Poems

I Suffer With Scleroderma And I'm writing my story Visit Me On . www.facebook.com/PicturesAn... I Also have My Own Blog...

I Suffer With Scleroderma And I'm writing my story Visit Me On . www.facebo...

shalloweir

•12 years ago

6 Replies

Back with another chapter

Hi all, Well I am back again, have been in and out of hospital again. One of my necrotic toes got infected very badly and I ended up in hospital for 14 days...

Hi all, Well I am back again, have been in and out of hospital again. One of ...

uknlv

•12 years ago

3 Replies

How do I cope without my best friend?

I am heartbroken. My gorgeous Bullmastiff has had to be put to sleep as he had cancer. He was still a baby at 4 and this is the second dog same breed and same...

I am heartbroken. My gorgeous Bullmastiff has had to be put to sleep as he had c...

suzy66641

•12 years ago

8 Replies

Incapacity Benefit /ESA

Has anyone been on IB and has now undergone a medical with ATOS for ESA? They reckon I will be fit for work in 2 years time - what a joke..... I will be...

Has anyone been on IB and has now undergone a medical with ATOS for ESA? They...

Anteater

•12 years ago

17 Replies

Pedalling and Scleroderma Awareness Week!

Hi all We've been super busy here at the RSA Head Office preparing for Scleroderma Awareness Week which will take place next week (11th-16th June). We...

Hi all We've been super busy here at the RSA Head Office preparing for Sclero...

RSA_Hannah

•12 years ago

4 Replies

miss lynn yates

i found out 6 years ago that id got raynaulds very bad , now ive got three problems now two fingers all the nerves are dead,have to wear black gloves all the...

i found out 6 years ago that id got raynaulds very bad , now ive got three probl...

raynaulds

•12 years ago

32 Replies

I was diagnosed with scleroderma about a year ago not sure which on I have.

I also have raynauds and had iloprost infusion in March but still having lots of difficulties with the cold.however my question is I am experiencing a strange...

I also have raynauds and had iloprost infusion in March but still having lots of...

queen

•12 years ago

5 Replies

continual infections

for the last couple of years have been suffering continual ear infections which graduates toward the nose and chest no amount of antibiotics clears it, as fast...

for the last couple of years have been suffering continual ear infections which ...

Jeanette_Ish

•12 years ago

3 Replies

Thermal urticaria!

I have just been diagnosed with thermal urticaria, apparently sudden temperature changes causes this for people with Raynaud's. Has anyone ever had this?

I have just been diagnosed with thermal urticaria, apparently sudden temperature...

Ladyscar

•12 years ago

4 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for June 2012

Lovely husband!!!!

World Scleroderma Day 29th June

World Scleroderma day Fri 29th June 2012

Raynauds and low blood pressure

Hi, I have had Sjorgens symptoms for many years, why is it taking so very very long for me to be sent to a RA?

Just what are the signs and symptoms of scleroderma?

new to all this...bit scary!!!

Teeth problems

Project Scleroderma - great movie raising scleroderma awareness directed by Christy, in memory of her mum who had scleroderma

Do you have Iloprost treatment?

Wehoo the sun is out over here in the UK - the flip flops are on, the toes are blue ;)

HI everyone I`ve not been on here before.

Sjogren's Syndrome

Has anyone with raynauds and scleroderma ever worked in industry,

There is now a healthunlocked specifically for scleroderma!

Juvenile Linear Scleroderma

Hi

My Life Through Pictures & Poems

Back with another chapter

How do I cope without my best friend?

Incapacity Benefit /ESA

Pedalling and Scleroderma Awareness Week!

miss lynn yates

I was diagnosed with scleroderma about a year ago not sure which on I have.

continual infections

Thermal urticaria!

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