Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,028 members•5,552 posts

All posts for June 2023

Light sensativity

HiI have scleroderma and raynauds but for 6 years previous (and currently) to that diagnosis I suffered with vestibular and pain migraines and since cannot be...

HiI have scleroderma and raynauds but for 6 years previous (and currently) to th...

•1 year ago

Link with Scleroderma and Cholesterol

Hi all - I’m on mycophenolate last 6 months and have noticed my cholesterol levels slowly rising. Really careful with my diet. Does anyone have the same issue?...

Hi all - I’m on mycophenolate last 6 months and have noticed my cholesterol leve...

•1 year ago

problems wearing glasses?

Hi. I’ve always worn glasses - very shortsighted so a strong prescription and heavy lenses. For a long time I’ve had to pay for the lightest possible lenses...

Hi. I’ve always worn glasses - very shortsighted so a strong prescription and he...

•1 year ago

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Tips for starting mycophenolate

Hi all, I'm currently on hydroxychloroquine, transitioning to mycophenolate in a few weeks. (Diagnosed with diffuse systemic sclerosis.) Are there any...

Hi all, I'm currently on hydroxychloroquine, transitioning to mycophenolate in a...

•1 year ago

Random leg warmth

I have systemic sclerosis (thankfully mildly), fibromyalgia and a few other add ons. In the last few days I keep getting a warm sensation in the front of my...

I have systemic sclerosis (thankfully mildly), fibromyalgia and a few other add ...

•1 year ago

blue toe

has anyone experienced a very painful and blue to

has anyone experienced a very painful and blue to

•1 year ago

CA125 concerning

Hello everyone I did a complete blood work up because I lost weight and have stomach issues with the scleroderma. Also did pelvic ultrasound and stool tesrlt....

Hello everyone I did a complete blood work up because I lost weight and have st...

•1 year ago

scleroderma and faecal incontinence

morning. I’m struggling with this at the moment and it’s limiting me to what I can do. I’ve seen a surgeon recently who mentioned a stoma as a last resort but...

morning. I’m struggling with this at the moment and it’s limiting me to what I c...

•1 year ago

Anyone diagnosed with trigeminal neuralgia before being diagnosed with an autoimmune condition?

My daughter was diagnosed with trigeminal neuralgia (TN) aged 22. At the time she had an ANA of 640:1 but no specific antibodies. I have heard from a USA...

My daughter was diagnosed with trigeminal neuralgia (TN) aged 22. At the time sh...

•1 year ago

My Last Rheumy Appointment

I was grateful for the appointment because for the last three weeks my digestive system has been more troubling than usual. Metronidazole, which I take for...

I was grateful for the appointment because for the last three weeks my digestive...

•1 year ago

is this concerning?

i have tested positive for my ANA with Homogeneous pattern, but my recent blood work showed that my ANA was negative but my Anti-DSDNA was elevated to the...

i have tested positive for my ANA with Homogeneous pattern, but my recent blood ...

•1 year ago

Gaul bladder and bile ducts

Hey all so I’m currently in south mead as rushed in on Monday have Cholecystitis Gaul bladder no stones just infection and thickening they have said it may...

Hey all so I’m currently in south mead as rushed in on Monday have Cholecystiti...

•1 year ago

Red nose after Raynaud’s diagnosis

Morning all 😀 I was diagnosed with Raynaud’s last winter and have since been experiencing horrible nose and cheek issues. m when I get hot or if I eat hot...

Morning all 😀 I was diagnosed with Raynaud’s last winter and have since been e...

•1 year ago

rapid weight loss

hey all just a question I was diagnosed with systemic sine sclerosis in November last year and have many issues but I have lost 3 stone in 6 months had anyone...

hey all just a question I was diagnosed with systemic sine sclerosis in November...

•1 year ago