Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

11,273 members•5,721 posts

All posts for April 2021

Nurse helpline

Does anyone have the telephone number for the specialist Scleroderma/Raynaud helpline? Thank you x

Does anyone have the telephone number for the specialist Scleroderma/Raynaud hel...

trunchalobesity

•4 years ago

Could this be Covid ? Scary symptoms resemble autoimmune conditions in long Covid

My daughter developed this after Xmas - she had had Covid then too. Firstly seemed like raynauds but then extra complications appeared with swelling on...

My daughter developed this after Xmas - she had had Covid then too. Firstly seem...

•4 years ago

Is GI issues common with CREST syndrome or limited scleroderma?

Hi just wondering if GI symptoms such as GERD, upper abdominal bloating, bowel issues are common with CREST or limited scleroderma?

Hi just wondering if GI symptoms such as GERD, upper abdominal bloating, bowel i...

•4 years ago

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Does this look like Raynaud's ph.?

Hello! l've been having some troubles with my fingers for a year it all started one night with a sudden dull pain in my middle joint of index finger only, then...

Hello! l've been having some troubles with my fingers for a year it all started ...

•4 years ago

Professor Chris Denton, London for calcinosis treatment

Hi, just wondered if anyone has been referred to, or is a patient of Professor Chris Denton at the London Free Hospital and if so, how did you, or do you...

Hi, just wondered if anyone has been referred to, or is a patient of Professo...

•4 years ago

vitamin b12 deficency in sojgrens

hi anyone had sore tongue like you've had something too hot and burnt your tongue also is the shortage of vit b12 related to sjogrens ?

hi anyone had sore tongue like you've had something too hot and burnt your tongu...

•4 years ago

Problems after the COVID vaccine

I want to say, firstly I am not an anti vaccination person. However, I have had my two AstraZeneca vaccines and the first one gave me terrible headaches and...

I want to say, firstly I am not an anti vaccination person. However, I have had...

•4 years ago

Raynaud's in big knuckles??

Hi all I have just had the strangest experience. I do have Raynaud's which started about 10 years ago and typically affects only my right hand. It's a hot day...

Hi all I have just had the strangest experience. I do have Raynaud's which star...

•4 years ago

Can anyone please help me out !!

Anyone tell me what these are on my fingers ? They niggle all day and all night they are really painful. I keep this one covered most of the time coz it feels...

Anyone tell me what these are on my fingers ? They niggle all day and all night ...

•4 years ago

Specialist consultant for raynaulds/scleroderma assessment ?

Hello I have been monitored at my local hospital in Torbay since a Raynauld's diagnosis 6 ish years ago They do bloods every 2 years and see how things are...

Hello I have been monitored at my local hospital in Torbay since a Raynauld's di...

•4 years ago

Thoughts Please

Hi, first time poster here. Any thoughts on the photo please? All bloods normal and negative ana. Huge fatigue and non specific aches along with several minor...

Hi, first time poster here. Any thoughts on the photo please? All bloods normal ...

•4 years ago

Unsure of Raynauld's diagnosis , thoughts very much appreciated

Hi there, I'm new to this group.... 47 yr old male. living in the uk 6ish years ago my hands started going cold when surfing... sometimes blue I was sent to...

Hi there, I'm new to this group.... 47 yr old male. living in the uk 6ish years ...

•4 years ago

Health insurance policy

Hi there , I wondered if anyone with systemic sclerosis has since applied for health insurance policy / medical coverage and had to pay a higher premium due to...

Hi there , I wondered if anyone with systemic sclerosis has since applied for he...

•4 years ago

Cold water swimming and Raynaud's symptoms.

Cold Water swimming and Raynauds symptoms - ? I am new here and wondering if it could be detrimental to go cold water swimming when it triggers Raynaud's...

Cold Water swimming and Raynauds symptoms - ? I am new here and wondering if it ...

•4 years ago

lung conditions

I have limited systemic scleroderma which primarily affects my guts, and also bronchiectasis which seems to be connected or caused by SSc, though no one quite...

I have limited systemic scleroderma which primarily affects my guts, and also br...

•4 years ago

Glossopharyngeal neuralgia

Hell everyone, just wondering if any of you have experienced Glossopharyngeal neuralgia? I get severe pain left side of tongue, jaw ,base of tongue and throat...

Hell everyone, just wondering if any of you have experienced Glossopharyngeal ne...

•4 years ago