Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,837 members • 5,410 posts

All posts for September 2021

Chronic pain with scleroderma?

Hi, I have suffered with debilitating pain that I had attributed solely to my scleroderma as that is how it all started - pain n joints n stiffness all...

Hi, I have suffered with debilitating pain that I had attributed solely to my sc...

•3 years ago

Third Covid jab as primary dose

Like many on here I take mycophenolate for limited systemic sclerosis (3gms/day in my case) so I am immunosuppressed. It was recently confirmed that those...

Like many on here I take mycophenolate for limited systemic sclerosis (3gms/day ...

•3 years ago

Paquinimod Possible therapy

Found this article. Thought was interesting. Does anyone have input? Paquinimod, Possible Scleroderma Therapy, Shows Promise in Small Trial...

Found this article. Thought was interesting. Does anyone have input? Paquinimod,...

•3 years ago

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Scleroderma, calcinosis, infected bone

I have scleroderma and Reynolds. I have calcinosis in two of my fingers which has been excreting lumps of calcium for the last 9 months which means it never...

I have scleroderma and Reynolds. I have calcinosis in two of my fingers which ha...

•3 years ago

Osteopenia with steroid use?

Hi, just got the results back from my bone scan as I’ve been on prednisone for 3/4 years now and it shows osteopenia/bone thinning. I’m starting treatment...

Hi, just got the results back from my bone scan as I’ve been on prednisone for 3...

•3 years ago

Anyone got REALLY low platelets ie 6 after taking immuno suppressants ?I am on Revelade to try and increase them.

•3 years ago

Raynauds?

I'm under a rheumatologist but I don't currently have a diagnosis,they are thinking psoriatic arthritis and sjogren's possibly.This happens when I warm up...

I'm under a rheumatologist but I don't currently have a diagnosis,they are think...

•3 years ago

Benepali

Anyone here taking Benepali? How long does it take to work? I have just had my 9fn injection, no relief yet.

Anyone here taking Benepali? How long does it take to work? I have just had my 9...

•3 years ago

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Chronic osteomyelitis and systemic sclerosis

Hello everyone!! I have 2 questions related to systemic sclerosis and Raynaud's. 1. Does anyone with systemic sclerosis and Raynaud's phenomenon have a...

Hello everyone!! I have 2 questions related to systemic sclerosis and Raynaud's....

•3 years ago

Raynaud's - Long Covid

Hi I developed Raynaud's shortly after being diagnosed with Covid and am considering whether there is any link between the two (i.e. long covid) or whether it...

Hi I developed Raynaud's shortly after being diagnosed with Covid and am consid...

•3 years ago

Domperidone/ Oesophageal Dismotility

Hello Everyone, Had anyone taken Domperidone, if so has it helped? It’s just been prescribed to me and would be interested to hear from anyone who has taken...

Hello Everyone, Had anyone taken Domperidone, if so has it helped? It’s just be...

•3 years ago